Has anyone heard of this or had testing done? Is there a link with this to chronic Lyme? I copied in length for your reading.
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XMRV - New Retrovirus Found in CFS/ME Wednesday, October 14, 2009 Hot Off The Press! This is possibly THE biggest discovery of all Invisible Diseases history. ..And the research has just begun.
Dr D. Reports:
XMRV stands for Xenotropic MuLV-related virus. It is a retrovirus that was found in the majority of CFS / Invisible Diseases patients in a major U.S. study. Normal virus symptoms come and go, but retrovirus symptoms linger on. (The flu is a virus. HIV is a different form of retrovirus.)
The first release of the study, spearheaded by Whittemore Peterson Institute, compared blood samples from 101 severely afflicted chronic fatigue syndrome patients with samples from 218 healthy people. About 67% of the CFS/ME people had XMRV, compared with just over 3% of healthy people.
Soon after the original findings were released, further research by Dr. M and her team, found that the virus is in nearly 98% of approximately 300 patients with Chronic Fatigue Syndrome/M.E.... And counting!
This may not be the answer to it all, but it is HUGE for our Invisible Diseases community. Further research has to be done, but there is talk of XMRV being the culprit for some chronic Lyme, fibromyalgia and even POTS as well. ..Big, big news. Let's get the buzz going on this one!
There is more hope than ever to believe that we will regain our mobility, strength and our lives. Hold on, just a little longer my friends, and we will start to see the sunshine cracking through our dark clouds of illness. The dawn is coming, and it doesn't look too far off.
Here is a link to much more in-depth information from the Whittemore Peterson Institute:
Sending Love... Dr D.
Posted by D Bergy (Member # 9984) on :
There have been a few threads on it. It is in Mice and Mice are a vector for ticks, so it could be part of the Lyme equation in theory.
Whether this turns out to be a fact, is unknown at this time.
I have treated myself for it with frequencies, but I do not have Lyme. The first low frequency treatment did nothing. I converted it to a more effective Mhz range and it made my skin itch, and made my guts sore.
I have ran it twice since and the reaction is diminished with each treatment.
I have a hypothesis that it could be the cause of Crohn's Disease. That is the angle I am checking out, since I have Crohn's.
I ran the same frequencies on my wife, who has Lyme. She could not feel anything from the treatment.
Dan
Posted by PV (Member # 20436) on :
Yes this is a BIG breakthrough scientificaly.
The virus was found in mice some 20 or more years ago and they had no idea that it could be found in humans until recently.
Then the above discovery found that 95% of CFS sufferers have it, with none CFS/'normal' patients XMRV free I believe. The percentage has risen since the publication in Science btw from 67% to 95% due to refining the test. http://www.prohealth.com/library/showarticle.cfm?LIBID=14915
Mice are the main principal natural reservoir of the Lyme bacterium, Borrelia burgdorferi. Blacklegged ticks ( Ixodes scapularis ) feeding on mice are then the transporters of the mice's infectious soup to humans, so I guess this will be XMRV too? Although not all mice will carry it etc etc.
I find it hard to beileive the professor in the interview says he has no idea how the virus can get from mouse to human!?
I think us Lymies could tell him a thing or two about ticks!
Regards Peter
Posted by SForsgren (Member # 7686) on :
I think most of us will find we have this virus. Time will tell. Whether it is causal or opportunistic is the bigger question.
Posted by bugbite (Member # 23028) on :
It sounds like a blood test is not out there yet for XMRV.
Has anyone signed up for the trial test?
Posted by SForsgren (Member # 7686) on :
Test is available through VIP Labs now.
Posted by n.northernlights (Member # 17934) on :
Yes, tests are out by viplabs, and codiagnostics. The latter requires no doctor order, and just a drop of blood on tissue paper. The money (399dollars)is used to sponsor research.
And, cfs researchers who have cfs blood samples are being contacted by researchers now, huge interest.
There was just a conference with the cfs advisory committe, on thursday adn friday, and wow, it was interesting. I watched it online. The CFSAC will put the conference online very soon, check their website. Dr. Peterson spoke, and a lot of patients.
Lots of videos on youtube too already. There are several hours so it might be easier to wait til the CFSAC themselves get the videos online. http://www.hhs.gov/advcomcfs/index.html check there in the futurs.
Is there such a thing as lyme advisory committe? A parallell to CFSAC?
Also, the cfids have managed to make a Medscape physician's education programme on cfs. An idea?
Posted by D Bergy (Member # 9984) on :
I believe this virus is going to be important in regards to several autoimmune diseases, possibly Lyme also.
Thank you all for keeping us informed on developements.
Dan
Posted by bugbite (Member # 23028) on :
Thank you all for the info.
At least I have a couple of directions to go in now and hopefully get tested this week.
Good stuff posted by northernlights, THANKS!
Posted by n.northernlights (Member # 17934) on :
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