How many hours of sleep do you get each night? What time do you fall asleep and wake up.
8 hrs/night for me 3am-11am
I truly believe that the people becoming asymptomatic and staying in remission after treatment are the ones who sleep well.
I think sleep is a HUGE HUGE HUGE part of beating Lyme.
---My ranking in order of importance--- 1) Sleep 2) Antibiotics 3) Exercise 4) Diet 5) Detoxing 6) Supplements
Posted by randibear (Member # 11290) on :
if i don't take sleep meds,maybe 3-4 hours.
if i take sleep meds 6-7....
Posted by sixgoofykids (Member # 11141) on :
8-9 hours.
11 PM - 8 AM approx
Posted by seekhelp (Member # 15067) on :
7-8 hrs.
12 PM - 8 AM usually. No amount of sleep provides any refreshment and i use a CPAP machine. Posted by cactus (Member # 7347) on :
Now - 9 hours. 12am - 9 am.
During most of my treatment, I could not function with less than 11 hours, and often needed naps as well.
Posted by DeniseNM (Member # 11182) on :
with sleep meds, 6-8 hours, most days a nap, too.
Posted by canefan17 (Member # 22149) on :
Holy crap Randi.
That's crazy. I would die with 4 hours of sleep every day haha.
I've just found that sleep is so crucial in my recovery.
When I have a good week of sleep I absolutely have a good week free of symptoms.
Posted by disturbedme (Member # 12346) on :
I usually go to bed around midnight and sleep in until 10:30 a.m. or even longer.
I've come to the conclusion that I usually need more than 9 hours of sleep to function at all.
Posted by Ariel1 (Member # 22227) on :
I need anywhere from 8 to 10 hours now.
Used to be able to get by on 4 to 6.
I get to bed anywhere from 12 midnight to 1AM then sleep till 9 or 10 in the morning.
Posted by Lauralyme (Member # 15021) on :
I need 8 hours at least
Thanks canefan for starting this interesting thread
Posted by Nutmeg (Member # 7250) on :
Interesting. Thank you for posting this.
Sleep time varies a lot for me. 5-9 hours, with the average being 6 or 7.
I usually go to bed about 12:30am, occasionally earlier, and try to sleep to 7 or 8am.
Most of the time my sleep is unrefreshing and I wake up fairly often, especially in the early morning.
If I sleep 4 hours without waking I usually feel pretty good the next day.
Pain often wakes me up, and since starting the AI drops, I have vivid dreams most every night that wake me up too.
Nutmeg
Posted by kellyjk4 (Member # 19731) on :
I sleep anywhere from 3 to 6 hours, waking up every two hours.
I still haven't found a sleep med that keeps me from waking up.
In bed between 11 and 1, up by 5, with short naps during the day when I can't keep my eyes open.
Posted by Teekoe95 (Member # 22859) on :
sleep is vital to healing.
I go in cycles. Great sleep for a time then suddenly, insomnia attacks. ugh!!
Posted by twinkle (Member # 16287) on :
4 - 7 hrs. most often 4 - 5. I often use 1/2 10 mg.Elavil which usually helps, but not always. Sleep is a problem for me.
What meds are good besides Elavil, Anyone use yoga, meditation, etc., before bed?
Posted by Topaz (Member # 20216) on :
I get about 7-9 hours per night. Usually closer to 9. I've always needed this to function properly, even before lyme.
I head to bed between 8:30-10:00, give or take, and wake up between 5:00-6:30(ish). Occasionally I'll stay up later, or I'll sleep till 7:00, or I'll wake up at some God awful hour for no apparent reason. Not very often though.
When lyme symptoms first hit, my ability to stay asleep was not there. I'd awake in pain every hour or two. I haven't used any sleep meds, but boy if I did, that would have been the time.
Now with treatment, I'm mostly sleeping through the night again. What a difference this makes for me.
This morning I actually feel rested and refreshed. This is a new(and pleasant) feeling.
Posted by Truthfinder (Member # 8512) on :
No more than 4 to 4.5 hours at night.
Roughly 11:00 p.m. to 3:30 a.m.
Because of back problems, I can only sleep on my back (which I hate). And more than about 4.5 hours in that position gets painful. I'm usually awakened by the need to pee anyway, and then I can't get comfortable again. *sigh* So, I absolutely have to take naps most days but it never makes up for what I miss at night.
I do sleep well when I sleep, but it just isn't enough. And I REFUSE to resort to medications. Those inevitably cause constipation issues for me. No easy answers.
Studies have shown that even healthy college students will get `Fibro-like' symptoms if they don't get proper sleep for as little as 2 weeks.
Posted by richedie (Member # 14689) on :
11 pm to 7 am. 8 hours.
Posted by radfaraf (Member # 11909) on :
About 1 - 5am usually.
I go to bed usually around 1030-1130 and take a very long time to fall asleep and always wake up much earlier than I need too. Almost impossible to sleep if I do not go somewhere around my normal time. I have completely inability to sleep during the daytime or the very early morning hours despite trying over and over again.
Then I have the days where my mind just won't shut down despite not really thinking about anything. Usually klonopin helps to get me asleep on those days, but it doesn't make me fall asleep that much faster or sleep longer as far as I can tell. It just helps me go from not able to sleep at all to being able to sleep some.
Posted by joalo (Member # 12752) on :
Usually 9 hours with sleep meds.
9PM - 6AM
Without sleep meds - 0 Posted by feelfit (Member # 12770) on :
12 a.m.- 2:00am sleep well
2:00a.m - 5:00 a.m. toss and turn some twilight sleep
5:30am-10:15 a.m. light to medium sleep Rarely feel refreshed. Have about 1-2 days per month when I can say I slept very well.
No meds because of breathing problems. Sleep meds affect breathing.
Feelfit
Posted by mrpotto (Member # 15123) on :
6-7 hours typically
Posted by canefan17 (Member # 22149) on :
Wow. Interesting stuff.
I go to bed the latest 3am
Most people here aren't getting close to 8 hours. Very intriguing.
I would love to see a poll done with patients who are in remission vs patients who are sick.
I'm willing to bet the latter aren't getting close to the amount of sleep the remission patients get.
Posted by lightparfait (Member # 22022) on :
I'm in remission: and now sleep from 11-3: as my body clock wakes to pee now... Then go back to sleep until 6:30 am.
I feel refreshed finally with sleep.
I remember not beign refreshed. Hang in there group..there is hope.
Allergie Immune therapy helped me with the sleep after my co-infections were gone with treatment.
Posted by MorningSong (Member # 19989) on :
Sleep from 10:00PM to 8:30AM when naturally wake up. Needing a lot of sleep now. 10 1/2 hours
Posted by mixxster (Member # 22765) on :
With any less than half a dozen sleeping pills: 3-4 hours
With half a dozen sleeping pills: 7-8 hours
Every single day regardless of sleeping pills I am suffering from terribly unrefreshing sleep and such terrible fatigue that I spend most of my day on a sofa or a bed TRYING to fall asleep or take a nap. I haven't successfully had a nap in months even though I am desperately and chronically tired all day long.
Before the insomnia pattern arose about 2 years ago, I would nap for hours every day and had 8-9 hours of sleep on weekdays and 12-13 hours a night on weekends.
Now, every morning that my alarm clock wakes me up (three days a week) I find myself wanting to throw a thousand ton train at it, but I don't even have the strength to throw a pillow anymore.
Crossing my fingers that Babesia treatment will help with my debilitating fatigue, weakness, and insomnia combo.
Posted by PB4 (Member # 20799) on :
7 for me!
Posted by Lymetoo (Member # 743) on :
I need 8-10 hours of sleep. Because I take several meds in order to sleep, I am not able to drag myself out of bed until about the 10th hour.
I go to bed around 11:00 - 11:30 and get out of bed until 9 or 10.
I do believe sleep is essential to recovery and thankfully, my doctor is of the same opinion!
Posted by Hoosiers51 (Member # 15759) on :
Geez, I slept for 12 hours last night/today, straight.
I thought there would be more people like that. Sometimes I just sleep forever. And even when I do wake up, I'm very tired and have to drag myself out of bed. What is causing that? Lyme? babesia?
Posted by Wonko (Member # 18318) on :
Currently 8-10 hours/night, I usually am in bed by 9-10 and up around 6-7.
I sleep through the entire night sometimes now, but didn't for a long time.
I also just recently resumed full time work, and for the first few weeks that really exhausted me and required extra sleep. Thankfully I'm adjusting and continue to improve and it's getting easier.
I'm much, much improved at nearly 11 months of treatment. At worse times, I often slept or was bed bound for most of the day. But I couldn't sleep continuously (woke up every hour or 2) and the sleep wasn't restorative.
It's nice to wake up and actually feel rested again, though not every day it's becoming more regular!
Posted by Elaine G (Member # 20735) on :
7-9 hours with one pee break and then right back to sleep. No sleep meds.
I just finished my 4th month of treatment. Prior to treatment sleep was a big problem for me.
Posted by sutherngrl (Member # 16270) on :
Okay, I'm so jealous! For me Insomnia came with LD.
Without sleep aids I sleep 3 hours a night. With sleep aids about 5 or 6 hours. 11:00pm to 5:00am. I get up once to pee, so sometimes it takes me an hour or so to go back to sleep.
I would give a million dollars for 8 straight hours of sleep.
Posted by opus2828 (Member # 15407) on :
I usually go to bed around 10pm or so and am up for the day around 7am. So, that's 9 hours but it is never straight thru.
It can vary greatly. Some nights I will sleep for 4-5 hours straight and others I'm waking every 2 hours.
My sleep record is 7 hours straight.
And when my kids are sick? All bets are off.
I do believe sleep is important. When I am sleep deprived, my symptoms intensify.
Posted by sutherngrl (Member # 16270) on :
I agree opus, that sleep is important. Dr B mentions sleep deprivation as one reason for treatment failure. I really think I would improve if I could only sleep.
Posted by Hoosiers51 (Member # 15759) on :
sutherngrl,
But what if you get 8 straight hours of sleep, and you wake up more tired than when you went to bed?
That is my problem. Sleep just doesn't help me at all, even when I get more than 12 straight hours of it.
I mean, I guess theoretically I'd prefer to be getting more, just because supposedly it is healthy for you....but I just have to wonder if the quantity of hours is even helping me, since I still feel so crummy when I get up.
So I guess my point is, don't be too jealous! Posted by sapphire101 (Member # 6638) on :
Usually I get about 6 hours of broken up sleep. I take benedryl and it does help but not enough.
Can't take sleeping pills. I've tried so many and they make the POTS symptoms worse.
Posted by hurtingramma (Member # 7770) on :
I NEED at least 8 hrs., but very seldom get it. With sleep meds, I am lucky if I get 6.
I seem to alternate weeks - one week I'll sleep 6-7, then the next it's more like 4. Follows the moon cycles. I'll admit it, I'm loony Posted by keltyl (Member # 14050) on :
2 hrs with no meds
6-7 with meds (lots of them). Although this past month since starting rocephin 2x a day, I'm lucky to get 5 with alot of dreaming.
I need alot more, would be happy if I could get just 8 hrs of solid sleep.
Posted by aiden424 (Member # 7633) on :
I sleep 7-9 hours a night with meds. Sleep does not help any of my symptoms. If I slept all day I'd still feel like crap. But I do need around 8 hours sleep a day.
Kathy
Posted by sammy (Member # 13952) on :
I usually need 9-10hrs of sleep, it was much less when I was healthy.
I'm a light sleeper and never remember any dreams. Some nights I have trouble falling asleep. Other nights I wake up like every hour.
Lunesta helps but it doesn't make me sleep like when I was well. No matter when I go to bed or what I take to help me sleep I still wake between 2-4am sweaty and or sick feeling. It's very annoying.
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3am![[Wink]](wink.gif)