This may seem stupid, but I'm really having a hard time differentiating what kind of pain is which.
I thought I was having joint pain and muscle pain, but anti inflammatories aren't helping. I just started Neurontin to treat nerve pain if that is what it is.
I literally hurt everywhere. It comes and goes of course and is always moving around.
Can you all help me with what pain is what?
Knee pain (achy hurts to walk sometimes or move)? Hand pain? Shin Pain? Foot pain (bottoms of feet hurt and tops get shooting pains)? Ankle (sharp and shooting usually)? wrists? Burning on top of feet? shooting pain on bottom side of arms (seems to radiate from elbow downward)? Neck and shoulder pain (dull achy)? Shoulder blade pain (sharp)? Tail bone? Random aches and pains all over (flu like)? Spine?
Again, sorry if this sounds stupid. But my pain levels lately have been worse and I can't explain or figure out what it is?
Thanks:)
Posted by Robin123 (Member # 9197) on :
Is there a possibility you could have both Lyme and bartonella? Since I understand bart pain can show up along the shins and the bottom of the feet.
Knee pain can be due to inflammation of the synovial area - that's Lyme.
Rest of it sounds like Lyme symptoms too - the bacteria inflames nerves and soft tissue.
In my case, my one antibiotic took care of the joint pain and soft tissue pain - the one I can take is clindamycin, 150mg, at varying frequency.
I know we're all different, but I think it just goes to show that some treatment is needed to stop the organism, or is it dual organisms, in your case, if you're describing bart pain too?
Posted by kareamber (Member # 20110) on :
I haven't been tested for Coinfections yet. My Dr said the abx I'm on would get Bart too if I had it. I will test for Babs soon.
Posted by gothbubbles (Member # 20280) on :
Neurontin didn't do crap for my migraines, my movement disorder, or my nerve pain.
Just one opinion here, but I hope it helps.
If neurontin doesn't help, don't take it.
I also took lyrica which made me feel euphoric but didn't do anything for my nerve pain.
I also got really depressed (lyrica crash?) and i wasn't taking very much.
In my pain history I have migraine headaches (occasionally with aura) which is one-sided and causes light sensitivity,
nerve pain (hands, feet, sometimes face) which feels like pricklies or burning,
muscle pain which feels like you got beat up or ran 10 miles,
and my bone pain which I think is because I have osteopenia--recently diagnosed--and I'm only 28.
The osteopenia is linked to low sun exposure and inadequate consumption of vitamin d.
My d level was a 9.
A patient is considered severely deficient at 15, and should have numbers over 30, but ideally should be 50ish.
I don't take any medication that does not directly help me, now that I am lyme positive.
I just got diagnosed dec 2nd, but I've had symptoms since 1991, and I've been very very sick since 2000 (misdiagnosed with Chronic Fatigue Syndrome)
I hope you consider quick, warm showers or baths to help your muscles.
It helps to have a plan to stay warm afterward, or you'll only be more in pain lol.