But sadly I see the video has been deleted Posted by djf2005 (Member # 11449) on :
yeah thats kinda why we are looking for a new link... LOL
Posted by djf2005 (Member # 11449) on :
Yeah originally you could view the whole thing....over an hour of good solid info, for free.
Now we should pay for it? Never ceases to amaze me.
I wonder if they saw it posted here and realized too many were watching it for "free".
Sometimes I really do wonder how many Dr offices are patrolling LN....and whoever else for that matter. Makes you wonder.
Posted by seekhelp (Member # 15067) on :
This bothers me about LLMDs if in fact it's true. Hey DJF, it's only another $95 to buy it.
Lymenet is these doctors biggest referral source. Between Lymenet and Igenex, the LLMD industry has a steady in-flow of business. That's what all the articles indicate.
Posted by TerryK (Member # 8552) on :
Not sure but I *think* this is what you are looking for, priced at $15. It is for the May 2008 presentation. http://www.newhaven.edu/unh/lyme/
I don't think the Dr. makes any money on this. What I've seen is that the proceeds for almost all educational materials goes to further lyme disease education, activism and research.
seek - I don't know of any doctors who provide as much free information to the public as LLMD's. Even if they actually made money on educational materials, I would not think that they were greedy or bad doctors. But again, what I see 90% of the time is that the money from DVD's goes to support various lyme disease organizations, not in their own pockets.
Terry
Posted by djf2005 (Member # 11449) on :
That does not appear to be it, as the lecture that was previously listed was held at the lyme-autism connection. I could be wrong though.
I will most likely order it though, as 15$ is .0001% of what I have spent on my illness.
It was free, and now it's gone, and that's wrong.
IF in fact the $$ goes to research then I guess that makes it more justifiable, although what data do we have after all these years and who is doing the research?
We need to be asking ourselves as a community some hard questions in the coming future.
I've said it before, why does an illness like AIDS have so much funding, research, and treatment options when it is less prevalent then the REPORTED number of cases of lyme?
It's because they came together and made their voices heard. If we do not do this in a reasonable manner somehow, these boards will be the sum of our information exchange.
seek- you are most likely right about LN being the Dr.s biggest referral source, as we saw an "unnamed" Dr from Fl who really likes bartonella actually posting last week. LOL
Oh well. What can you do. Life goes on, and eventually we'll get better.
Posted by TerryK (Member # 8552) on :
Dj Maybe call or e-mail them to get more specifics about it and perhaps ask if they know where you can get the one you are looking for?
The reason we don't have funding for chronic lyme research is because the IDSA promotes that it does not exist. Most of the government funded research that has been done on chronic lyme has been done by the IDSA or their proponents and usually designed to promote their belief that it does not exist.
The Columbia Lyme Research center was funded by proponents of chronic lyme disease. No small feat. http://www.columbia-lyme.org/
Another good example of personal time that ILADS doctors spent recently was in preparation for the IDSA hearing. There are numerous times that our ILADS doctors spend time free of charge to further our cause. Many of them seem to have chronic lyme disease themselves. Not all of course but quite a few of them.
Yes Kathryn, that's it, but conveniently it's stopped 5 min into the talk and then you need to shell out a Benjamin Franklin if you want the other knowledge.
Posted by djf2005 (Member # 11449) on :
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