So I have gone to the max with doses of neurontin and elavil (had allergic reaction to tramadol) and I am still in almost intolerable pain. What else do people do? I cannot take codeine- related things: allergic to them as well as Fentanyl patches. Anybody else with this level of pain? What do I do?
Posted by Carol in PA (Member # 5338) on :
One thing to do is to try to reduce the level of inflammation.
Fish oil Magnesium Systemic enzymes Antioxidants
Sublingual B vitamins reduced nerve pain for me.
Carol
Posted by psr1 (Member # 22957) on :
I am doing all these things.
Posted by Gahagan (Member # 21194) on :
The use of antidepressants, like Ativan, in combination with pain meds, has been shown to increase the effectiveness of the pain medication in some patients.
Posted by Carol in PA (Member # 5338) on :
Okay, perhaps you need to increase the dosages?
Also, I've read that neurotoxins from the dead Lyme bacteria can cause symptoms. The liver needs the building blocks for glutathione production, in order to detox neurotoxins.
Dr. Jacob Teitelbaum has many suggestions to relieve pain in his book, Pain Free 1-2-3.
I am doing all these things.
Posted by psr1 (Member # 22957) on :
Clarification. I am taking anti oxidants, fish oil, NAC, ALA, Milk Thistle, sublingual B, Don't know why my post went up twice. I am at the maximum dose of Neurontin (3600 mg/day) and am taking Elavil (antidepressant) to enhance the Neurontin. It is all still not working. I will check out the pain links. My LLMD feels that this is a die-off that was triggered by an IV Glutathione injection 2 weeks ago. I keep hoping it will end soon, but in the meantime...
Posted by Carol in PA (Member # 5338) on :
Ohh....IV glutathione.
I'm not sure how that could trigger a die-off. The suppositories are on my list of things to try.
Carol
Posted by cactus (Member # 7347) on :
What type of pain is it?
I, too, am allergic to all codeine-related meds, even synthetic codeine, as well as morphine and dilaudid.
Makes pain management a challenge.
My pain was mostly nerve-related, and I tried both elavil and neurontin with no luck.
Actually felt better once I got off of both of those meds.
There are a few other meds like those you could try - I can't think of the names at the moment. I tried a few with no luck.
What did seem to help to a degree was Cymbalta.
Also, b-12 injections, over times, seemed to help.
Darvocet, ultracet... while not necessarily for nerve pain, were in my arsenal against pain (I had some specific pain that was not nerve-related, and these meds helped take the edge off of that).
Maybe if you say what type of pain it is, it will jog my memory as to what I've used in the past, since we have similar allergies.
Hoping you find relief soon.
Posted by psr1 (Member # 22957) on :
Mine is nerve pain in my spine
Posted by lpkayak (Member # 5230) on :
i swear the only thing that works for me is ibuprofen...almost 30yrs now)none of the other nsaids work
up to 800 4 times a day with food-be carefl
i somtimes add skelaxin or flexeril(can't drive) for back pain
i take them each 6 hrs apart but not together-sit up for an hour after taking and eat with them
Posted by JR (Member # 16898) on :
Find a pain-relief specialist. They will help you find something that works for you. There are other opiates available that most people who have a bad reaction to codeine seem to tolorate well, high end NSAIDs, muscle relaxants and others.
Posted by pab (Member # 904) on :
Lyrica is used for nerve pain.
Posted by merrygirl (Member # 12041) on :
I take oxycodone 3 times a day with fentanyl patches... I know you said you were allergic to the fentanyl. B12 shots help and so do hot baths
Posted by j_liz (Member # 20496) on :
For my pain I take Ultram ER 300 mg and the generic, tramadol, for breakthrough pain. I was still in pain, but only occasionally intolerable.
Another thing that definitely helps my pain is mag. shots. Hypnosis helped me, too.