Head and facial tingling have been the primary symptoms of mine (for the last 5 years). For those who have had these symptoms and have gotten rid of them, can you pinpoint any particular part of your treamtment or protocol that seemed to help the most in this area?
I have bart and I'm not sure if these symptoms are lyme or bart.
Thoughts?
Posted by lymebytes (Member # 11830) on :
Only thing that helped with these symptoms for me was Amoxicillin/Biaxin.
Wish you the best.
Posted by Sick Tick (Member # 23003) on :
That is my last remaining symptom. I am told by a neurologist and an ID that my nerve cells are damaged and that they will take a very long time to heal-several months after treatment is completed.
Sure hope they are right....I do have days where the symptoms are nearly gone, and other days where they are increased....apparently that is expected as well.
Posted by mrpotto (Member # 15123) on :
Sick tick - you sound like me. However, my symptoms spawn into something else if untreated with abx. The head and face tingling becomes more severe, more headachy plus anxiety and feeling of being detached and spacey.
I'd love to get it to where its just head and face tingling without it morphing into more horrid symptoms. I could live with a little face and head tingling but not the other stuff.
Are you still taking abx? Which ones? Have Bart or do you and your LLMD think its lyme related?
Thanks!
PM me if you want more details from me.
Chris
Posted by Sick Tick (Member # 23003) on :
I am so sorry that I am just now seeing this!
I am fortunate that I was treated extremely early in my illness, thanks to a co-infection with RMSF that gave me a raging fever, They tested for Lyme just to cover everything, and lo and behold, positive. So, I was on Doxycycline within days of infection. Then, it progressewd to the neuro stuff, and I was on IV Rocephin for a month. But still having the tingling on and off. No abx times 5 months now though.
I was never tested for Babs and Bart.
How are you doing?
Posted by canefan17 (Member # 22149) on :
I get the tingling as well.
I did notice that while on Ceftin/Doxy/Plaquenil it would go away.
I'm thinking it's a co-infection
Maybe Bart or babs
Oh well... just keep on treating.
Posted by xoxoxox (Member # 18778) on :
mrpotto You are describing something exactly the same as what I've been experiencing!
Face & head that's tingling/prickly/spacey feeling...the anxiety finally left early last year though.
Unfortunately, I have no insight as to whether it's from Lyme or Bart and have no idea what may help it as it's still here for me. I'd definitely be interested in hearing the thoughts of others. At least know that someone else shares similar symptoms. Do you have the tingling sensation elsewhere - like legs, hands, etc? I do suspect Bart but that's just a feeling.
For the last 8 weeks, I've been treated with IV Rocephin and Tindamax orally. Once the die off cleared after a 6-week stint on Ceftin early last year, there seemed to be significant improvement for a while.
Posted by maps (Member # 19758) on :
Thank you for bringing up this topic, i did not want to mention to my doctor for fear of being crazy.
I also get full body tingline continues clammy feelin, nice to know i am not alone
Posted by canefan17 (Member # 22149) on :
maps,
haha
At this point nothing will shock your LLMD... trust me. They've seen it all.
It's an auto-immune... tingling is very common.
Posted by Haley (Member # 22008) on :
Yes, I have this but along with it I have major brain problems. I can't think straight. This is my biggest concern. I flew to san fran yesterday to see an LLMD. He thinks that it may be Bart. I have tested positive for Bart.
Posted by Toppers (Member # 20083) on :
Wow I forgot about this symptom--Biaxin cleared it up. Scalp and face on fire all the time, I think it's bart.
The lips are burning/tingling on Rifampin now I believe it's bart related then.
Posted by joysie (Member # 11063) on :
I have had alot of facial symptoms. They include flabby, sticky-feeling eyelids, facial twitches, numbness, tingling and cold sensations on my face and scalp. I also feel buzzing from my temples towards the corner of my eyes.
Other symptoms such as an excess of saliva, lumpy throat, true anxiety are often elevated at the same time.I often feel spacier and a little out of it when these symptoms are flaring.
I have pos babesia, some neuro-specific pos lyme bands and clinical of bart, which I believe this is.I also have the Clongen mystery motile bacteria.
I am currently on malarone, clindamycin,factive and tindamax. I am in my 4th week of tindamax and have had more face issues in the last week than I have had in a long time.
If I look back over my notes, bart treatment in general but specifically Rifampin and Factive have decreased this stuff the most. Kris
Posted by sutherngrl (Member # 16270) on :
I use to have numbness of my nose, lips and the tip of my tongue. A very weird feeling.
I have also had many other symptoms that centered around the face and head. Lots of eye issues, burning, dry, red eyes, blurring vision, feeling like my throat is closing up, and so on.
Many of these symptoms have improved after 20 months of treatment. My eyes still bother me, and I still have throat issues.