After two months, I talked my neurologist into doing a Lyme blood test and it came back with a marginal result. He ordered a different type of blood test today which is a little more accurate for my region. I have been very healthy my 42 years so far but have a feeling it is Lyme related.
My symptoms started November 1st with a mild headache and three weeks later, I started having slight tingling in my hands and feet and palpatations. Today, the tingling and some numbness is with my head, back, arms, and legs. I have trouble concentrating, feel tired, and have trouble sleeping. I also feel shaky inside if that makes sense and have sporadic neck pain.
I asked the Neurologist in November to please start running additional tests but he wanted to treat it as headache symptoms and prescribe Topamax and Neurontin. He said the tingling was a side effect of the headache.
I went to see another Neuro in December as a second opinion and he prescribed Indocin. When I asked him about the tingling, he did not have an explanation.
My PCP, who I thought was a pretty stand up guy to this point, would not see me and said to stick to the specialists.
I also saw an orthopedic specialist for a possible pinched nerve and a cervical MRI looked fine. It is not MS because an MRI of the brain in November looked normal.
Here is what is frustrating. I asked the neurologist today if we can get a head start on an antibiotic treatment until the additional blood work comes back next week. He said no and I explained to him my symptoms are getting worse each week. He said to make a appointment with a disease specialist and they will start the process later next week. Is this normal that a neuro will not prescribe antibiotics?
I was the one who pushed for the Lyme test and am frustrated because of the delays. I trusted these doctors who procrastinated with a "try this pill attitude."
I just started looking at these forums today and there is a wealth of information and applaud the people who live with this daily. I am just worried how I can work and support my family going forward.
Thanks
Posted by Dekrator48 (Member # 18239) on :
Hi, Welcome!
Sorry you are getting the run around....but typical.
If it were me, knowing what I know now, I would post for a LLMD in PA on the Seeking a Doctor board, and get an appt with one ASAP.
Better to get a real eval by an expert who actually knows how to recognize and diagnose lyme.
Lyme is a clinical diagnosis based on history and symptoms, not a lab test.