Do any of you know anything about q-fever? My q fever titers went from phase 2 to phase 1 (which is the worst) even during treatment, and I'm a bit freaked out.
Thanks!
Posted by kadee (Member # 21199) on :
How high are your titers?
Mine also went from phase 2 to 1 lately, but they are in low range (0,2 <0,9) So my LLMD said, nothing to worry about, which I don't really believe. Posted by txgirl09 (Member # 21612) on :
my phase 2 titers went to negative, and now my phase 1 is showing IGG 1:64.
were you on treatment when yours went from phase 2 to 1?
Posted by txgirl09 (Member # 21612) on :
anyone else have experience or know anything about q-fever? i've been researching it, and it looks scary! especially if its in the "chronic" phase.
Posted by canefan17 (Member # 22149) on :
bump
Posted by Pinelady (Member # 18524) on :
In the presence of Lyme I don't know if the testing would be that specific. Might look in that direction.
Posted by abbriggs (Member # 21809) on :
I just got a positive Q-fever test. Phase one 1:128. Was told that I probably need to see and Infectious Disease Specialist by my LLMD.
Posted by LightAtTheEnd (Member # 24065) on :
Now I'm wondering which infectious diseases ID doctors do acknowledge and treat. There must be some.
Posted by seibertneurolyme (Member # 6416) on :
Curious as to what lab tests for this?
Bea Seibert
Posted by abbriggs (Member # 21809) on :
My lab work was done through Labcorp. Not sure why he decided to check for it.
Posted by txgirl09 (Member # 21612) on :
Most LLMDs check for q-fever. I know that both LabCorp and Quest labs test for q-fever.
I believe most ID doctors acknowlege q-fever, but finding one who has experience treating one is a different story.
Posted by map1131 (Member # 2022) on :
Well, I'm sure all it would need is a one-two week abx treatment and then you will be all better. Isn't that the line you get from most IDs?
LLMD sending you to a ID? Now that's different. I hope someone with some experience in testing positive for q-fever comes along. Maybe there is some cross reactive with something?
I had asked my doc to test for q-fever when we did a long list of possible bacteria and viral infections just last year.
I don't remember why I had added that to my list. I'll go back and read some in my file. There had to be reasoning in my logic??? Post more tomorrow.
Pam
Posted by abbriggs (Member # 21809) on :
Pam,
I think the only good thing about having Q-fever is that the CDC actually says that you need anywhere from 2-4 years of antibiotics to treat it.
It sounds like the same antibiotics are used to treat lyme. So I am thinking that both can be treated at the same time and insurance would have to pay for it.
Hopefully killing two birds with one stone.
Mandi
Posted by map1131 (Member # 2022) on :
Okay, I just went through my 10 yr file on this crap.
I found my notes where I listed everything I wanted my PCP to test for and I had wrote down Rickettsia. PCP wrote Rickettsia and Labcorp did Q-fever. I believe they are one and the same. Same family?
I have the petcheia (sp) rash and have had it for 10 yrs. It was very apparent in 99 when it began and today only when a new group of petcheia pop up bright red. I have them total body and they are red/brown.
Rickettsia research mentions this rash, so I wanted to rule it out. I really believed it was due to bartonella. Sx scream bart also. So that's my #1 fight today.
Well the CDC saying 2-4 years of abx is a good thing. Wow, that little test positive might be your blessing?
Pam
Posted by gwb (Member # 7273) on :
quote:Originally posted by abbriggs: I just got a positive Q-fever test. Phase one 1:128. Was told that I probably need to see and Infectious Disease Specialist by my LLMD.
Did Dr. W give you a referral to a IDS? I already asked you on another thread but I'll ask here too in case you missed it, what abx does he have you on now?
Yes, Dr. W. gave me a referral. I am going to a Dr. in Austin. Ceftin & Cipro are the abx.
I grew up in a rural area. Started riding horses before I could walk. My grand parents have 500 acres that we lived on.
We used to have this one cow that would walk right in the house if you left the door open.
Posted by txgirl09 (Member # 21612) on :
Your q-fever titers are relatively low, and mine were as well. Its difficult to determine if symptoms are really from the q-fever or from lyme.
Posted by abbriggs (Member # 21809) on :
Yes, but from what I understand and what i have been told is: about 2 weeks after contracting Q-fever your levels are very high and in stage 2. Then your levels come down and if your levels stay relatively low in stage one, then it is chronic Q-fever, the type you don't want.
Patients who have had acute Q fever may develop the chronic form as soon as 1 year or as long as 20 years after initial infection.
The incubation period for Q fever varies depending on the number of organisms that initially infect the patient. Infection with greater numbers of organisms will result in shorter incubation periods. Most patients become ill within 2-3 weeks after exposure. Those who recover fully from infection may possess lifelong immunity against re-infection.
Antibodies to phase I antigens of C. burnetii generally require longer to appear and indicate continued exposure to the bacteria. Thus, high levels of antibody to phase I in later specimens in combination with constant or falling levels of phase II antibodies and other signs of inflammatory disease suggest chronic Q fever. Antibodies to phase I and II antigens have been known to persist for months or years after initial infection.
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