When I first came to Lymenet, I was so disoriented and lost, but yet so many came to hold my hand through this process.
I still have a long way to go, but I just had my port removed a month ago and think I can go the rest of the way on orals.
Now that I am feeling better, I am getting actively involved in the advocating side. NH is trying to pass a law much like CT did so we can protect our doctors.
We need Lyme testimonies or warm bodies or both to make them realize it isn't just a few people being hit with this horrid disease.
Any help would be beneficial to start this ball rolling for all patients and the doctors that are running scared to treat us.
Cathy, I am from NH but feel that my testimony would not be worth much with CDC negative tests. I do hope it goes through though.
Posted by MariaA (Member # 9128) on :
WOW, I'm so happy to hear that you're doing so much better now. You've come so far in the past year!
Posted by tdtid (Member # 10276) on :
This is NOT about being CDC positive. It's to protect our doctor's in this state so they can treat clinically with long term antibiotics if they see fit.
Too many are running scared and we need all the help we can get.
MariaA, So good to see you again. Yes, it was a LONG bumpy road. I did have my port removed about a month ago after 16 months of IV. It was rough, but we all know how that goes.
Still a way to go, but compared to where I started, this is a huge jump.