I just heard about someone who was diagnosed with this.
His aunt said the treatments they tried were of avail, and they don't know what to do.
Is GBS one of the things that mimics Lyme? I thought it was, but can't remember.
I did send along a message asking if he has been tested for Lyme or other TBI's.
Oh, this man was also in Iraq at one point.
Sorry for the jumpiness of thispost, it's been one of those days.
Posted by laurajeanne (Member # 23825) on :
I have just read about this syndrome. There is also a desert storm syndrome too - Does he have the vision problems?
BUMPING THIS!
Posted by Tincup (Member # 5829) on :
Yes.. GB can be diagnosed when it is really Lyme.
I had a family member misdiagnosed with it shortly after she had a child ... and after spending 2 weeks camping in Florida parks near her home.
She suffered terribly for 10 years before she died, leaving behind her husband and her son.
Turns out she had Lyme all along ... positive tests in her records too... but the IDiots all claimed they were false positives.
And of course the IDiots also told here there is NO such thing as LYME in Florida!
Posted by Lymetoo (Member # 743) on :
Make sure they get a REAL Western Blot... from a GOOD lab!
Posted by Caseyk (Member # 23404) on :
My friends son got the chronic form of GBS from Lyme. He has to do IVIG every 3 weeks otherwise he will basically become paralyzed. He is also on antibiotics for the lyme