Hi folks. Took my first pill today. Looking for optimism.
Anyone have some to share?
Mary
Posted by Imaginit (Member # 20399) on :
I do. I know I may be in the minority, but I think LDN has boosted my immune system (had a bit of a cold for the first time in over 10 years this winter); I sleep better; I have not had any candida issues even though I eat sugar.
I can't tell you anything else specific--I just feel like it's helping build my immune system. Been on it for over 7 months with no problems except for trouble sleeping in the beginning but worked through that. Am on 4.5 mg.
Posted by MariaA (Member # 9128) on :
it's good stuff. might make herxes worse if you're on other stuff, though that's just my impression and guess.
I found that it really helped me control candida, even though I was on a lot of antibiotics at the time- I think because of immune response to things being better while on LDN.
Do a search- there is a lot of info here with lots of tips on taking it in the morning instead of at night, dosages, etc.
Posted by lymewreck36 (Member # 4395) on :
anyone else?
Thanks you guys. I did feel some positive things with the first pill.
Mary
Posted by LymedOut (Member # 22351) on :
Can you take LDN if you have Auto Immune problems?
Posted by keltyl (Member # 14050) on :
I tried it last year and had sleep problems so I quit.
My LD has been bugging me to start again so I did about 2 weeks ago. Am having major sleep problems but going to try sticking it out and see if it improves.
Posted by f13girl (Member # 23844) on :
LymedOut- Autoimmune is EXACTLY what LDN is supposed to help. Many have found it halts their MS progression and some also get the added benefit of symptom relief. google LDN--think the main site is ldn.org and read-- also helps for crohns (Penn state study )...
LDNers say it works best if you have candida under control and adhere to a gluten free/casein free diet.
Posted by lymewreck36 (Member # 4395) on :
O.K. I didn't even bother to take this at night because of the reports of sleep problems. I take mine in the morning, and am sleeping fine at night. No problemo taking it during the day.
So far,,,,I AM BACK TO TAKING PLAQUENIL! I had had to quit taking plaquenil because it caused drug induced lupus....some of you might remember that about me from last summer.
Swollen lymph nodes every time I tried to take plaquenil after that.
Yesterday I took my first LDN pill, and my plaquenil, and no swollen lymph nodes.
I am actually scared to death because if this just stops working at some point, the LDN, I'm going to loose my mind.
Mary
Posted by keltyl (Member # 14050) on :
Last year I tried taking mine during the day. I had some kind of side effects, but for the life of me can't remember what it was.
I'm just hoping the sleep issue resolves itself after awhile.
Posted by DeniseNM (Member # 11182) on :
I just started LDN two nights ago. I'm taking one 1 mg capsule and only having 1/2 of it. I will very slowly work my way up to 3-4 mg nightly.
I have noticed that I am waking up a few more times from 3 am on or so, but am usually able to get back to sleep. I do take Lunesta, too, so maybe that is keeping any insomnia in check.
Both yesterday and today I feel less foggy-headed than usual, and actually feel pretty good.
I'm very hopeful that this will help, as I have been diagnosed with "MS." My neuro wouldn't put me on it, even though he knows about it, but my Lyme doc was happy to prescribe it.
I'd love for this thread to continue so we can compare notes!
Posted by f13girl (Member # 23844) on :
So far sleeping better than before starting LDN. (in a crash right now was only getting a couple of hours of sleep with medication). Since starting LDN I'm getting about 2-3 hours more sleep /night.......and my neuro symptoms are better. I hope the trend continues and gets me back to where I was before the crash. I was on LDN year before last and thought it was not doing anything. In hindsight I was stable even through a very stressful period... so maybe it was.... did not get rid of all my neuro symptoms-but was stable while on it. I should have kept a journal at that time but did not. I'm hoping it will keep neuro symptoms in check/stop progession and dampen the AI reaction to treatment. I know that's a big bill! We will see.
Posted by dmc (Member # 5102) on :