This is sort of a poll. I haven't tried that many things and already my LLMD has TRIED to say we're exhausting the possibilities. So I'd like to have ideas about what else to try if my next new thing fails.
my first protocol was: cefdinir / zithro / minocin
2nd:doxy only
3rd will be: rifampin / zithro / flagyl
[ 02-25-2010, 10:46 PM: Message edited by: sickpuppy ]
Posted by Kastroo (Member # 22825) on :
1st: doxy, cipro, tindamax (no reactions until tindamax puls introduced - thought that's how death is like...)
2nd: doxy, cipro, rifampin, tindamax (no reactions on the pulse)
3rd: doxy, zithro, rifampin, tindamax - starting next week
Posted by seibertneurolyme (Member # 6416) on :
Sick puppy and Kastroo -- Actually none of the combos either of you are on will do much for babs. All the combos listed are primarily for lyme and bart.
Zithromax may work a little on babs but not without another babs med.
Bea Seibert
Posted by tick battler (Member # 21113) on :
sick - I agree with seibert - you are not treating babs with those combos, and you might not be hitting bart with the first two either!
Here are two good ones:
Bactrim, Mepron, Zith or Rifampin Mepron, zith.
You can substitute biaxin for zith in either of these.
tickbattler
Posted by tiffagoo (Member # 23750) on :
I am on the same treatment plan as they listed above. And I was diagnosed with Lyme and a co infection of babesia. My LLMD had me on Mepron but I had a SEVERE allergic reaction to it. What are some other possibilities to treat babesia?
Posted by sickpuppy (Member # 23846) on :
Mmmmm. Troubling.
Anyone else??
Posted by Tickn (Member # 11590) on :
We are attempting to hit all three: clindamycin,Levaquin, welchol,valtrex artemisinin,flaygel,and doxy along with all of my supplements. They pack a punch but iam getting much better!
Posted by seekhelp (Member # 15067) on :
Who put you on that massive cocktail of drugs? Posted by Tickn (Member # 11590) on :
I am very fortunate to have an excellent group of doctors (llmd, id, gastro, cardio, ect.) who monitor my progress.
I was dxd several years ago and I have been on the majority of abxs commonly used to fight this disease and co-infections.
I have made significant improvement but it was hell getting here.
This combination (we pulse several of the abxs) seems to be very effective while allowing me to lead a somewhat normal life now, although still distant from where I wish to be.
I have continued hope and motivation as my progress and health improve.
Those who have been here for while understand the ebb and flow of this disease and the unlikely ability to erradicate it from our bodies with the limited medical knowledge and drugs available at this time.
"Kick the s**t out of it and continue to suppress it"
My story is similar to others here.
Three years ago I basically sat in the corner drooled and had almost given up, yet something inside forced me to contnue to fight and find out what had reduced my life to that of eggplant.
As I wrote previously, I am very fortunate that one of my main stream doctors asked if I had ever been bit by a tick and from there the ball started rolling.
I have the highest respect for the llmds I have been in contact with and I strongly believe one will never begin to heal unless a llmd is in charge of your care.
I apologize for rambling but I am very passionate about lyme disease and the inability of main stream medical physicans to properly dx and treat this disease and their cookbook approach to medical care.
New Ideas and research are needed in order to provide clarity in the diagnostic and treatment approach to this disease and co-infections.
The majority of my main stream specialists who have followed my case now provide a "symptom checklist" a patient must fill out prior to an examination.
They have found a number of their patients actually have lyme disease, so hopefully the tide is slowly changing in our favor.
I have lived through the fear, pain and the emotional ups and downs this disease brings to bear.
For those who are tired, depressed, or feel like giving up, please continue the fight, for it does eventually become easier one day at a time.
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