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Posted by street129 (Member # 23472) on :
 
got this from prohealth board.. i know alot of lyments are into their supplements so for anyone who want to read this

Nine Supplements to Avoid


While all supplements should be used carefully, some should not be used at all.

Here are nine supplements you shouldn't take.


Arnica
Arnica Montana

Claim: Relieves aches; an anti-inflammatory and immune enhancer

Why it's among supplements to avoid: Can cause miscarriages, allergic reactions, paralysis, heart palpitations, death

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Aconite
Aconitum napellus

Claim: Eases joint inflammation, gout, RA

Why it's among supplements to avoid: Is a fast-acting poison that affects the heart

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Adrenal, spleen, thymus extracts

Claim: Helps fatigue, and relives stress and inflammation

Why it's among supplements to avoid: Derived from animal organs. FDA warns organs could possibly be contaminated.

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Autumn crocus
Colchicum autumnale

Claim: Lessens gout attacks and eases general arthritis

Why it's among supplements to avoid: Is a potential poison. Taken only as a prescription drug (colchicine) under a doctor's supervision.

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5-HTP
5-hydroxytrytophan

Claim: Helps fibromyalgia, sleep disorders and depression

Why it's among supplements to avoid: Associated with esosinophilia myalgia, a serious illness that causes severe rashes, acute pain and other symptoms.

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GBL
Gamma-butyrolactone

Claim: Helps fibromyalgia, sleep problems, depression, claims to ``improve sexual and athletic performance and health''

Why it's among supplements to avoid: Has been linked to death, coma and seizures.

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L-tryptophan

Claim: Eases sleep disorders and depression

Why it's among supplements to avoid: It has been associated with esosinophilia myalgia syndrome (EMS), a serious illness that causes severe rashes, acute pain and other symptoms.

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Chaparral

Claim: Reduces inflammation

Why it's among supplements to avoid: May cause hepatitis and kidney and liver damage.

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Kombucha tea

Claim: Helps ``rheumatism'' and eases pain

Why it's among supplements to avoid: Has a high risk of contamination with anthrax and other bacteria.

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www.ArthritisToday.org
 
Posted by kidsgotlyme (Member # 23691) on :
 
It sounds to me like big pharma put this out. I know lots of people who drink kombucha tea and they are fine.
The point to drinking it is to get the good bacteria.

We have used arnica many times with no problems.

And my daughter has all kinds of allergies.

Sounds like some propaganda to me..
 
Posted by seibertneurolyme (Member # 6416) on :
 
5-HTP and l-tryptophan -- the risk is based on one batch of contaminated supplements from something like 20 years ago -- l-tryptophan is actually readily available in health food stores again for the last couple of years -- had only been available through compounding pharmacies for a number of years.

Hubby has taken both -- the problem with these supplements for Lymies is that although they are frequently low in serotonin in the presence of brain ninflammation the body converts these to the neurotoxin quinolinic acid through an alternative pathway. Per the Buhner book the solution is to take resveratrol (Japanese knotweed source) to block this conversion.

Bea Seibert
 
Posted by street129 (Member # 23472) on :
 
resveratrol, look very very sweet, cant touch that stuff, with my candia issues
 
Posted by djf2005 (Member # 11449) on :
 
that list is total junk just so you know
 
Posted by sixgoofykids (Member # 11141) on :
 
Looks to me like Big Pharma put this out, too. Do you have the source? I know you got it off another board, but what was their source? That would be interesting to know.

As far as contamination and Kombucha .... I make Kombucha at home. Just like I can look at a loaf of bread and know if it has a mold issue, I can look at my Kombucha and know if there's a mold issue. There was ONE batch somewhere at some time that had mold and Big Pharma won't let go of that fact!!

5 HTP/L Tryptophan are great products!!

Also, I've used Arnica Montanta for at least a decade. It's homeopathic, so I highly doubt the claims are true as it's a tiny, tiny dose. It works, too.

I've never used the animal organ products, but that makes no sense. That is also the argument about Armour thyroid, or one of them anyway. That's like saying you can't trust eating meat, so here, eat this chemical that has protein similar to meat, while someone else makes $$$ of the chemical imitation.

Be careful of Big Pharma propaganda. They have a lot to lose off natural remedies that work.
 
Posted by sixgoofykids (Member # 11141) on :
 
quote:
Originally posted by street129:
resveratrol, look very very sweet, cant touch that stuff, with my candia issues

I don't understand. It's an herbal supplement. Not sweet at all.
 
Posted by elley0531 (Member # 9434) on :
 
GRRRRRRRR

this is misinfortmation!

5-HTP is one of my fave supplements!

Are they telling people to avoid tylenol? I'm sure thats killed more people.
 
Posted by street129 (Member # 23472) on :
 
well i use 5-htp nightly,

just was putting it out there, i though on you six when i saw it

hey baCK OFF... [Mad] dont shoot the messenger...

[ 03-05-2010, 12:30 AM: Message edited by: street129 ]
 
Posted by Keebler (Member # 12673) on :
 
-
Arnica is a life-saver. Taken as a homepathic after seizures, this has prevented horrific brain swelling for me many times. If I forgot to take it, I had horrible migraines for a full week.

I've also seen arnica cream stop bad bruises in their tracks and it is very helpful as a topical pain relief. Amazing. Safe when used as directed and really hard to get this one wrong.

Whoever wrote this article has no or too-little education in this area.

Tryptophan can be hard for some with porphyria to metabolize but it cannot be branded as dangerous with the correct use by those who do well with it.

So many other comments were without full consideration. But, this is why it's good to follow doctor's order and find a good naturopathic doctor - or other doctor trained in this field.

It's also good to read tons of materials before making quick judgements about this or that as many media writers do. It's never as simple as they think. But, often, their agenda is to discredit and they pull some detail without looking at the full picture.
-

[ 03-04-2010, 06:33 PM: Message edited by: Keebler ]
 
Posted by cactus (Member # 7347) on :
 
It would be sad if a newbie here read that list and didn't read all the replies to learn that some of these are excellent supplements.

Someone might just blindly start avoiding some of these, and miss out on something that could benefit them.

I, too, have to question the source of this article.

Where did you find it, street?
 
Posted by massman (Member # 18116) on :
 
How about the 9863 drugs to avoid ? [Eek!]
[dizzy] [bonk] [Cool]
 
Posted by elley0531 (Member # 9434) on :
 
This is just so irritating. It would be nice if people did their research before taking anything-supplements or drugs.

But this list is blatant misinformation and now I'm all fired up. Anything can be dangerous if some people take it or take it improperly.
 
Posted by Keebler (Member # 12673) on :
 
-
Massman has an excellent point, well stated: "How about the 9863 drugs to avoid ?"

BTW, Taking 5-htp, with clonazepam may not be a good match. Street, when you listed the protocol your LLPA suggested, neither one was on that list. It would be good to be sure these are okay for you, given the other things you are taking. As both use the C P-450 liver detox pathway, I'd want some medical advice before combining them, especially in the middle of the day as both are sedating. Combined, they may knock you out.
-
 
Posted by Cold Feet (Member # 9882) on :
 
In 2008, the Arthritis Foundation earned $5.7 million in advertising revenue, mostly from big pharma.

Do the math. [bonk]
 
Posted by canefan17 (Member # 22149) on :
 
So the thread should be changed to...

-Nine Supplements You Might Want to consider-
 
Posted by sparkle7 (Member # 10397) on :
 
I heard on a Conservative radio show that something like 250,000 people died in one year (2009, I think) due to drug side effects, allergies, wrong drug taken, overdose, etc.

Zero died from supplements...

I just heard it on the radio one night about a month ago. I think it was the Michael Savage show. I like to listen to all kinds of opinions... (Sometimes he really cracks me up.) I tend to believe it's true, though.

M. Savage is a PhD & he did used to write books about natural healing - for what it's worth.
 
Posted by gwb (Member # 7273) on :
 
street, in the future when you post anything that you copied and pasted, would you please be so kind to list the source?

Thank you.

Here's where the information most likely came from:

http://www.arthritistoday.org/treatments/supplement-guide/supplements-to-avoid.php

Gary
 
Posted by lisamlj (Member # 24666) on :
 
I came to this sight as I don't understand this disease and what it is doing to my body. This is not making it any better...
 
Posted by Keebler (Member # 12673) on :
 
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Lisa,

Many threads here contain details about treating lyme. Some of those are written by lyme literate medical doctors (LLMDs) or other researchers in the field

Most of the posts here are more like conversation among people on related topics. As with any collection of personal posts, the scope varies as much as the view on any particular topic. Some agree; some don't - as with this particular list.

Anyone can post a topic and it's not until you actually go into the link to see the author that you will know more about authenticity, background and perspective.

Just stick with the ones that give you the information that helps. I hope you have a good doctor.

Good luck.
---------

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This book, by an ILADS member LLMD, holds great information about treatments options and support measures:

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com

-
 
Posted by street129 (Member # 23472) on :
 
gwb and evr$yone else>>>>the link to the source is in my post all along>>>how come no one saw it WOW
 
Posted by gwb (Member # 7273) on :
 
My apologies to you street. I overlooked it.

Gary
 
Posted by Alana (Member # 14077) on :
 
Those Prohealth Boards.

How many of us here have been former members???

Guessing a whole bunch of us.

We're FORMER MEMBERS for a good reason.
 
Posted by sparkle7 (Member # 10397) on :
 
As with anything, you just have to do the research & proceed with caution.

Not all "natural" supplements or herbs, etc. are beneficial for everyone.

Some people are allergic to nuts & can die from eating them. Do we take all nuts off of the market so no one can use them ? No...

Thank you for posting this so people can be aware.
 
Posted by Keebler (Member # 12673) on :
 
-
That same (Arthritis Today) site says Candida is not problem at all - they must not be paying anyone for researching before writing these days:

http://www.ArthritisToday.org/community/expert-q--a/fibromyalgia/fibromyalgia-yeast.php

" . . . The yeast-overgrowth theory is just one of many untested theories . . .

. . . For now, until a theory is confirmed, it is best to pursue tested treatments, including exercise, relaxation therapies and a variety of prescription medications. . . ."

Argghh ! Well, they are right, in a way, candida may not be the actual cause of fibromyalgia but it sure can be ONE cause of the body pain and brain fog (usually along with other chronic infections, though.) But to dismiss it an an unproven "theory" is such a huge error.

Keep people on the antidepressants rather than attend to a systemic yeast infection ?

Sad that so many will read this and think, because of its name, that they got that right.
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