I'm still on the fence about next steps on abx treatment since my decent into neuro/MS symptom hell on just 1 week of flagyl/3 weeks diflucan(at end of November!).I've not comeout of it and still getting new and scary neuro symptoms. I know the drugs triggered this "attack" and I think it is much more than a herx.
I've emailed 1 person with MS who got much worse on abx protocol and could not endure it.
For those with MS or MS symptoms-have you gotten better? Did abx make you much worse with no improvement?
I wish there were more info on treatment outcomes for neurological/MS symptoms. There is the wheldon protocol but even data on that seems sketchy. I'm so sick now I don't feel like I could add abx into the mix and wonder for some of us is toxicity the issue?
Posted by KS (Member # 12549) on :
I can't speak to your MS-specific experiences but I can tell you that my experience on antibiotics was initially horrid. My herxheimer reaction was so severe I was hospitalized as my body was literally just shutting down. I was sicker my first 3 months on antibiotics than my worst days pre-antibiotics.
Somehow I got through those first few months (most challenging thing I could ever imagine going through) and things started to slowly but surely start getting better.
20 months of treatment and I'm functioning normally again. Still have some residual symptoms but totally tolerable and I've been off treatment over a year now.
My symptoms were all considered neuro.
Posted by f13girl (Member # 23844) on :
KS- can I speak with you? Tried to PM you but your mail box is full.
Posted by sk8ter (Member # 8671) on :
Please google The Liberation Treatment for MS. It is a treatment devised by Dr. Zamboni for stenosis in the jugular veins of most MS patients. Dr. Dake at Stanford is now in clinical trials.
The stenosis is caused by "who knows" so blood goes into the brain but cannot return thus depositing iron in the brain and leaving the white spots. People who have had this treatment...placements of stents in the jugulars...have stop all symptoms and have improved with no reaccurence of symptoms.
I will PM you the website with info. I still think the thick blood/stenosis in the veins are caused by viral/bacterial etiology thus damaging the veins.
Posted by Pinelady (Member # 18524) on :
Yes, Yes, Yes! Mine has gotten a lot better on
antibiotics. It is as you describe. Keep
electrolytes going in. Keep yeast away. And keep
probiotics on board to protect the bowels.
Posted by maps (Member # 19758) on :
I am a woman of many lesions
Nerologist confirmed it is not ms.
Today is not a good day for me to post (see some recent posts) but I would really like to discuss it with you. So maybe tomorrow.
Posted by dmc (Member # 5102) on :
I definately got better & since abx treatment 6 yrs...NO NEW LESIONS. Been off abxs since 4/09.
I.V. Tigrecyl was the ticket for me.
BTW 17yrs told MS before finding about Lyme & a LLMD.
Posted by IckyTicky (Member # 21466) on :
Yes....I had all the classic MS symptoms just before being dx with Lyme. My MS symptoms went away with oral abx treatment (I've been in treatment for 23 months) but after going off abx for a few months the L'hermittes sign and hyper-reflexia came back. Back to orals and feeling better.
Posted by Cockapoo1996 (Member # 14238) on :
Flagyl is proving very rough for me too. My LLMD just said to decrease some and increase slower this time.
I guess I am just too anxious to get those cysts this time!!
But way back when with tons of dizziness and tingling they told me I had MS. They were wrong.
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