What would the 31 band be cross reacting with then? Would it be any bacteria or virus and how do they find it.?
Is this still lyme...and what stage?
Posted by nspiker (Member # 22824) on :
Hi Jocelyn,
The reason these tests are so difficult to understand, is because they are so inaccurate.
You are IGM positive, and IGG negative. Your 31 epitope being negative means that band 31 is cross reacting with other viruses. Also, band 41 is the band for the presence of flagella, or tail of a spirochete, virus, or parasite, and not just lyme.
There is no way to tell if you specifically have lyme, or if you have had it for a long time, based on these results. Your test is equivocal, especially due to your 31 epitope being negative. But, that's my humble, not medical opinion.
This test could go either way. If your symptoms are consistent with lyme/co-infections, than an llmd can treat. You are wise to have an appointment with an LLMD already in place.
On my Igenex tests, both IGG and IGM were negative, but 31 epitope was positive. It doesn't make sense, and you can drive yourself crazy trying to understand it.
If you want a more definitive answer, give Dr. H. at Igenex a call. He takes calls from patients on Mondays and Tuesdays, and will give you his assessment of your results. My opinion is, if your symptoms warrant treatment, an LLMD will treat based on your results.
Good luck, nancy
Posted by Pinelady (Member # 18524) on :
I would say with the 83-93 band, which is only found in Lyme it is Lyme.
Posted by chopper (Member # 24841) on :
Nspiker
Could you send me a private message with Dr. H at Igenex name an #. I would like to discuss my past Lyme test with that doctor. I have been struggling with what I believe is persistent/relapsing Lyme since 2002. Most of the doctors I see don't want to think it is Lyme, but they have no other good explaination for why I feel ill (well other than vague things like CFS,migraines, anxiety, depression, etc, you know many of you have been there).I was diagnosed with Lyme by tick bite and bullseye rash, an Elisa run over a year later was positive, but my Western Blot was CDC negative even though it had some positive bands (just not enough for CDC criteria), and a C6 Peptide for Lyme was highly positive. These test were run by a lab in Chantilly Virginia, I believe the name was Quest Diagnostics. Anyone hear of this Lab? Due to the CDC negative western blot, local infectious disease doctors and PCP's tell me I don't have Lyme nor are they convinced I ever had it (think their heads are stuck in the sand, as I had the tick bite, bullseye expanding rash and sick ever since. I do seem to improve when on antibitotics though, so go figure). They tell me to forget about LYme, are very rude to me and just dismiss my concerns with no other answers explaining why I feel ill off and on with bizarre things. Basically they tell me that if I am not going to drop discussing Lyme, I should get out of their office. My current PCP though is starting to be more open minded to Lyme though, and is even willing to work with the recommendations of another doctor knowlegeable of Lyme, but on his own is unsure what antibiotic to prescribe if any. My PCP is telling me he has more than one person complaining of the same things I am since being diagnosed with LYme. Any suggestions? I won't do IV antibiotics. Did it once for 4-6 weeks and it just interferes with my life to much. The risk did not seem to out weigh the benefits, plus I seem to feel better when on oral ABX, but have what I believe are relapses when I am taken off them for an extended time. My guess is the orals at very least send the lyme into remission, or lessen inflamation I experience when off them.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Pinelady: [QB] I would say with the 83-93 band, which is only found in Lyme it is Lyme.
Absolutely!
Chopper.. I couldn't read your entire post as it is all bunched up, but I saw your request for a phone number.
Could you send me a private message with Dr. H at Igenex name an #. I would like to discuss my past Lyme test with that doctor. I have been struggling with what I believe is persistent/relapsing Lyme since 2002.
Most of the doctors I see don't want to think it is Lyme, but they have no other good explaination for why I feel ill (well other than vague things like CFS,migraines, anxiety, depression, etc, you know many of you have been there).
I was diagnosed with Lyme by tick bite and bullseye rash, an Elisa run over a year later was positive, but my Western Blot was CDC negative even though it had some positive bands (just not enough for CDC criteria), and a C6 Peptide for Lyme was highly positive.
These test were run by a lab in Chantilly Virginia, I believe the name was Quest Diagnostics. Anyone hear of this Lab? Due to the CDC negative western blot, local infectious disease doctors and PCP's tell me I don't have Lyme nor are they convinced I ever had it (think their heads are stuck in the sand, as I had the tick bite, bullseye expanding rash and sick ever since.
I do seem to improve when on antibitotics though, so go figure). They tell me to forget about LYme, are very rude to me and just dismiss my concerns with no other answers explaining why I feel ill off and on with bizarre things.
Basically they tell me that if I am not going to drop discussing Lyme, I should get out of their office. My current PCP though is starting to be more open minded to Lyme though, and is even willing to work with the recommendations of another doctor knowlegeable of Lyme, but on his own is unsure what antibiotic to prescribe if any.
My PCP is telling me he has more than one person complaining of the same things I am since being diagnosed with LYme. Any suggestions? I won't do IV antibiotics.
Did it once for 4-6 weeks and it just interferes with my life to much. The risk did not seem to out weigh the benefits, plus I seem to feel better when on oral ABX, but have what I believe are relapses when I am taken off them for an extended time.
My guess is the orals at very least send the lyme into remission, or lessen inflamation I experience when off them. [/QB]
For more responses, post this in a new thread. Posted by Lymetoo (Member # 743) on :
Chopper... I've read your post now. My suggestion is to drop the docs who won't help a Lyme patient (you ARE one) and find an LLMD who WILL.
Go to Seeking a Doctor and someone will help you find a dr near you.
![[Smile]](smile.gif)