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Posted by springshowers (Member # 19863) on :
 
I have broken through and no longer am I that person who could not treat this disease.

I used to not be able to handle treatments of abx without herxing severely. I used to not be able to take even supplements or do treatment protocols that were meant for this disease.

I was not able to do detox modalities without feeling sicker too.

I was bedridden a lot and for years and years I was STUCK>

Is this you?

I want to talk about this and say to everyone that this CAN Change. Your body can change. The situation CAN Change!!!

I have changed.
I am now able to treat. My organs are strong and working. My load is down of neurotoxins and lastly bugs.

I am now finally able to treat myself or be treated and feel a positive response.


I think there are many like me out there that are not even able to treat this disease because we are stuck in that Mode I described.

I think it is key that we find what works for us that does 3 things.
1. Brings down Nuerotoxin Load
2. Builds up organs and gets them moving, healthy and working.
3. Bring down load of bugs (last on the list of priorities esp if number one and 2 are not happening)

Those are the 3 things that were key for me.

I actually finally reached out for professional help and was able to do all three at once. But I was given a lot of attention and support.

After 6 Months of this I am a new person

If you are one of those people I described this is a HUGE Deal. And getting there is a huge step and a big challenge.

I read through the threads and always can figure out who is in this group and it makes me frustrated because I can hear the frustration in peoples posts asking how others can tolerate this or that treatment.

Well This Thread is Made for all of those in that same position and maybe through dialog we can help one another get out of that stuck place.

IF others can post what Worked for them if they are OUT Of that stuck place that would be helpful.

[ 02-27-2013, 08:34 PM: Message edited by: springshowers ]
 

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Posted by springshowers (Member # 19863) on :
 
For me like I said I went to a clinic and got a ton of supportive IV treatments as well as supplements and detox modalities that were on site. I am now enrolled in a new clinic doing more of the same and also continuing to Treat.

I had lost patience doing it at home alone was not making much progress. I needed help and I reached out to get professional help. By the time the big light bulb went on ( I knew I had to detox but I did not know or admit how bad off I really was in that area ) I had so many years of being stuck and working so hard and was beaten down and tired. I just wanted help and support and did not have energy to figure out what to do or how to do it on my own at that point.


For me that was how I did it. I had all that help. Many do not and will not. But if I had not had that help I would have done it a home but it would have taken longer most likely.

I want to start a list of things that helped me and some are done at home and some are not. It took for me doing more than just a home because I was very bad off and getting worse.

So things that I think help a lot

At Home
1. Detox Baths - as many as you can a day gently
2. Detox Enemas
3. Detox Rife Frequencies
4. Internal items such as clay
5. Prescribed things like welchol or cholestrymine
6. Bounding on rebounder
7. Dry brushing of skin
8. Enough Water (1 oz per 1/2 of your body weight)
9. Walk or do something active if possible
10.Organ support supplements


At Doctors Clinic
1. Laser Lymph Drainage Detox
2. Ozone Sauna
3. Ionic Foot Baths
4. IV Glutithione
5. IV Ozone Blood Treatments
6. Myers Cocktails
7. Vitamin C IV
8. Reiki
9. Energy Healing
10. LED / Photon
11. Accupuncture

You have to experiment and find what works best for you. If you herx a lot then you will have to take breaks inbetween and consider the detox as your treatment. It is a treatment. Once things start moving you will feel it. Your body comes alive and many symptoms improve. The herxes will be less and shorter etc. You will have a more normal GI system and you might even be able to feel those organs moving.. I feel them tingling and feel their energy coming alive..

What I would say is that if you would switch your mind off of the "killing" of the bug. And put it on Detox and Getting Rid of toxins and loads and MOVING of those things out of the body using your organs and body parts that should do this.. then you are making a big change.....

This is just a short start of ideas and Please if others would add in ideas that they have and what helped you.

I want to help others get unstuck and or at least identify that this may be you.

We are so anxious to treat and kill the bugs that we may not be seeing that we may be adding to our loads of toxins and if our systems are shut down we are just adding to the problem instead of helping it.

This is all just my opinion and I am not telling anyone what to do. IT also has been my experience so I wanted to share it. In now way am I telling you to do this or that it is what needs to be done for sure.

For some maybe this is not your situation either.

But either way we all know detox is helpful and for some of us very necessary.

For me it was 100 percent necessary and I still made it a priority every single day just to keep up my progress I made. I do not have to do as much or work as hard as before but I have to do something every day and pay attention to it as the top of my list of things to do ..
 

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Posted by Imaginit (Member # 20399) on :
 
Thank you so much for starting this thread Spring. I am right where you were several years ago. I have been on abx for about 8 months and suffered terribly while on them. I have now been off of them for five weeks and just detoxing.

I am feeling better but can now see that many of the times I thought I was herxing, I was simply filled with neurotoxins and reacting to that.

I am also waiting for my KPU test to come back.

My body still feels toxic, but I am using Welchol daily, the ginger bath from Dr. J., Infared Sauna, clean diet and am about to try the foot bath from Dr. J.

I have an appt with my naturapath who is an LLND on Friday to determine what to do next. I am leaning towards detoxing for six months and using Dr. J.'s protocol

At lease off abx, I can function and I have been able to work some AND my attitude and brain is so much more positive.

I am of the persuasion that we shouldn't have to herx to get well--that has never made sense to me--it goes against my belief working with the universe in a gentle way to get well. Call me naive or what you will--I know I will get naysayers out there--I know the science--I've read everything too--but for me--I need to work with my body, not throw it under the train.

And as long as I will be called blasphemous--not from you, but others, I don't believe abx is the end all be all to getting well. It can be done differently. And I applaud all those who have done that--Gary who went to the Hansa Center and the AI thread people, and you with IPT. Thank you for being the trailblazers.
 

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Posted by sparkle7 (Member # 10397) on :
 
I think herxing may be an indication that you are hitting something. The tests are so inaccurate - we need something to know if we are doing the right treatment. I don't think it should be a continuous thing, though.

In my case, LEDs were making me worse. They don't always help everyone. I think they can be harmful with babesia or parasites.

My favorite detox formula is Dr. Schulze's #2 Intestinal Formula.

IV hydrogen peroxide did not help me. I also tried some vitamin IVs & Immunoglobulin shots & they didn't do much.

Thanks for posting!
 

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Posted by seibertneurolyme (Member # 6416) on :
 
Spring,

I have said for a long time that I feel nutritional support is just about as important as killing agents whether they are antibiotics or herbs or whatever.

For hubby -- As I have also mentioned many times -- whenever he stops his supplements he almost always crashes very quickly. For many years I had no idea why -- then he did the genetic detox profile from Great Smokies -- now Genova Diagnostics.

He has a methylation defect -- he is missing 1 of 2 genes needed for proper methylation -- so obviously it could be worse than it is. The supplements hubby needs to take to correct this are SAM-e and B12 and B6 and B complex and folic or folinic acid. He also takes betaine hydrochloride to help with absorption from food. It took a lot of experiementation over the years to get the right doses of these supplements.

Next is glutathione -- hubby took IV glutathione for probably 4 years I think at over $100 - $200 per month after insurance paid their part. His current LLMD who is a nutritionist suggested the Xymogen brand of alpha lipoic acid (ALA Max). It costs $49 per month from the doc, but it works. He also takes selenium which is another glutathione precursor -- very cheap -- 200 mg per day. I remember one doc who is into kinesiology jokingly told hubby he might as well drink glutathione he was so deficient in it.

Will come back to this thread as there are several other things I want to add.

Bea Seibert
 

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Posted by springshowers (Member # 19863) on :
 
Hi there. Thanks for posting.

You have seemed to find your post Imaginit. Sounds great and let us know how it all goes.

Sparkle. When we use the word herx we use it loosely. And I think that a real herx is rare in Lyme Disease. Even though you may think it is from hitting or killing a bug it still is a response of that killing and the neurotoxins it is creating.

So if you already have a build up you will add to it and feel it more so.

I think that those how do not have build up of toxins treat and feel no herx and just feel better and better. Not only are they able to detox well but they do not have build up because of that. Therefore no feeling worse.

I think that is is wrong to think herxes are good. IF you use them for an indicator and they are something like a twinge of pain in a joint or a tired afternoon then that is ok and not harmful and a good tool.

If you end up in bed for a week after trying a new supplement that is not good. WE got to keep it perspective and also think about what is going on inside of us. I know there is not exact science but I have heard from many doctors whom I respond out there in the lyme world who say it is all nuerotoxins that are giving us those feelings and affects. IF so then what I am saying makes sense.

So I think it is very well a good expectation to treat and to KNOW You are using the Right thing because You are FEELING BETTER and not from a HERX>

See the complete 180 There??
 

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Posted by sparkle7 (Member # 10397) on :
 
Bea - Do you recall how much the DetoxiGenomic Profile was?

Do you think it was accurate? Do you think these things can be corrected?

PS - There's alot of info here -
http://www.canarys-eye-view.org/
 

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Posted by massman (Member # 18116) on :
 
Whoa......spring - gotta watch this advice. You are sounding a lot like me.......

And I have apparently been a bad boy for recommending detoxing + improving specific organ health. BEFORE the kill kill kill obsession.

And I love this quote from Imaginit: "I need to work with my body, not throw it under the train."

Here in the US so many expect quick results, as repetitive BigPharma has sold - oooops I mean told - us.
 

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Posted by springshowers (Member # 19863) on :
 
Well Massman

I think it is good advice and not only good advice I do not see how you can make progress if you keep adding to your load and when the load that is already there is not even dumping out.

SO looks like the unload button is broken.
GOt to fix that button first.
Then hit it and let whats inside the truck dump out into the trash dump.

Then clean out the truck and get it ready for more now that it is working you can go around and gather up more trash and you can also even go around and sweep the trash up into pills so that it is off the street and put it into your truck.

And make sure to keep dumping the truck at the trash dump before it gets too full and overflows.


Button = Organs and Immune system
Truck = Movement
Trash = Toxins
Dump = Waste - out of body gone
Overflow = Pain and Sickness
 

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Posted by seibertneurolyme (Member # 6416) on :
 
Sparkle,

Hubby did the Great Smokies genetic detox test back in 2002 when the company first introduced it and it was a special price -- only $200 I think -- pretty sure the cost is about double that now.

There are several different companies which do these type of tests. But the old Great Smokies lab (now called Genova Diagnostics) is the only one hubby has used. Pretty sure others on LymeNet have used other labs.

What we liked about the Genova test is that they only test for things which can be corrected by nutritional supplementation or diet or avoiding certain meds etc. In other words things you can actually do something about.

I remember checking prices for the Amy Yasko genetic tests once -- think I have that name right. Very expensive.

Also -- since this is a genetic test insurance will not pay anything on it as far as I know.

Bea Seibert
 

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Posted by seibertneurolyme (Member # 6416) on :
 
Sparkle,

Another useful test from Genova that hardly anyone talks about anymore is the functional Detox Profile -- this is not a genetic test but a test of how well the body is detoxing. It measures Phase I and Phase II liver function and several of the different pathways.

Also includes info on lipid peroxides (fats being destroyed by free radicals -- an indirect measure of brain inflammation) and glutathione production I think.

This test used to cost around $200 I think -- hubby has had this one done 3 or 4 times over the years. And insurance will pay some on this one. As Spring has mentioned you could simply have one of the detox pathways that is not functioning properly -- usually caused by nutritional deficiencies.

Bea Seibert
 

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Posted by Wolfed Out (Member # 23727) on :
 
This is a great thread, spring! Thanks for starting this. I love what you're bringing round here.

So, for the past couple months, I started with supplements, a great diet, and exercise and lifting weights 3x a week. Well, to be fair, I never let Lyme stop me from doing that stuff, even though I had to PUSH myself into the Gym -- the place I love to be.

I started my ABX regimen roughly 4 weeks ago, and things are starting to ramp up as I add more to the protocol.

I'm still really concerned about detoxing and making sure this goes as smooth as possible. I have been eating whole lemons, drinking 6-10 bottles of water daily, taking milk thistle supplements, fish oil, glucosamine, and all the vitamins I need.

I need to take it to the next step.

I hear Epsom salt baths are great for detoxing. Problem is I tried one a few years back, and after 15 minutes I had a headache and was sick for days!

I want to try it again. Do you have a recommendation for a starter bath? Maybe using 1/2 cup of Epsom salt in the tub? Only staying for a few minutes? How should I approach this.

And if you were in my position, what other detoxing method what you try next?

Thanks, spring!

Love,

Wolf
 

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Posted by canefan17 (Member # 22149) on :
 
Killing bugs HELPS support organs as well.

Pretty tough to support an infiltrated organ.


All 3 are important in no particular order.

Typically when you see an LLMD all 3 are addressed at the same time! And it only makes sense.
 

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Posted by springshowers (Member # 19863) on :
 
HI Wolfed.. Thanks for adding to the thread and your compliment. Nice to hear!!

Ok I read through your thread and right off the bat this is something my doctor told me and it was to Never Use Epsom Salt.

I know many do and this has not been told to everyone by their doctors but mine did. Also No Magnesium Supplements. He believes that it feeds the bugs and you feel worse.

Since you felt worse I would first skip that Epsom Salts all together. If your starting baths I would first start with just plain water and soak for a nice long time in hot but not too hot water. I would also dry brush your whole body starting from the outside working your way in prior to the bath. Important to do it dry.

Then see how you react just that. If you do ok then I would add just sea salt. Hymalayian or some sort of natural sea salt. IT will have natural minerals but not enough to be an issues like epsom obviously.

Then other things you can add are various things and recently some posted about adding fresh ginger in some sort of seep bag.

You can also add things like peroxide or vinegar etc. Some things are more likely to absorb and actually kill off some of the bugs and give you a herx and some are more gentle and more used to pull out toxins in the body and give relief.

I would go for the detox methods first... and be as gentle as you can and then later if you like do some more aggressive ones. IF you do a search on baths or detox baths there are many kinds posted her and online overall.

I really enjoy and have to have at least one of baths each day. If you can stay in 30 to 45 minutes and also close the doors and heat up the room too..

I happen to not have a sauna but looking for one. If you have one at your gym I would recommend that too. I have done some at gyms and at clinics I got to by do not have one at home..

The other thing that is really good is a rebounder or tramp. If you just bounce up and down gently it will move the toxins so they get out....I only do that one time a week right now but it can actually be quite affective.

Since your in the gym maybe there is something there too that will give you that affect or an actually rebounder or tramp?

If you do just the baths or saunas or both.. Soaking is different than a sauna and I would do both. And the gentle bouncing those are great additions.

Your got a good amount of water. And rule Of thumb I use is to drink at least 1/2 body weight in oz of water..

Do you have a rife machine? If so there are ways to use that for detox support too..

I really have those ideas even though I think I am forgetting something.

Oh I wanted to add.. Caster Oil Packs. I just started to try them and they are supposed to work really well. I am putting one on my liver and gut area at night when I sleep. Be careful cuz it stains so make sure you really set it up so there are no leaks and wrap it around yourself with like an ace bandage. That can really pull out toxins and the gut just is an area that is where I like to target and the low back.

Each person seems to carry the toxins in various places and can usually tell by increased pain and stiffness or such.

I really am not a expert at any of this and just apply what I have learned from doctors and clinics and from reading and sharing here.

If you want to take the lemons to another level you can blend a whole lemon with a couple table spoons of olive oil and a little bit of water or juice such as cranberry.
Then strain it and drink it direct. It packs a nice punch and very good for during herxing or detoxing. It gets the juices from the whole lemon and adding in the oil helps a lot. I got that off Dr. Nicholsons page online.

Well anyway..Good Luck and let me know how it goes. Esp with those baths. I can bet that taking away the epsom will help you and make sure it does not feel too too hot and work your way up in temp and time as you go.

Blessing...

You sound like you have a great plan and your working hard at the things that important..

What meds are you on? and is this the first time you have been treated.? Just starting 4 weeks ago?
 

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Posted by springshowers (Member # 19863) on :
 
Canefan

Yes this is true and good point.

But there are some people who actually Cant and then order does at that time make sense and is important.

I have been there and I know what it feels like> For others who have not felt what that is like can only speculate and its hard to visualize but it happens to many of us.

So treating "killing" has to be put on the back burner until space is cleared up for it and or the organs are stronger...

THere are many times when doing all 3 are not possible and or do not make sense..

I think those people who know how it feels know who I am talking to..

For others it does not makes sense because if your not in that position and are able to detox and such and able to make progress and not end up suffering tremendously and just have normal herxes etc.. Then by all means. Do all three

I am at the point I can do all three.

But I was not this way until this last year...

Anyway I started this thread a bit more for those who cant because I think they are not talked about and left to try to figure this out and try to do what others to and it just does not work.

I want to talk to them and tell them they are not alone!..

Your not alone!!
 

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Posted by Wolfed Out (Member # 23727) on :
 
Spring,

Thanks very much for the detailed reply! I will certainly research all the suggestions you posted and test out what is best for me.

What really intrigues me is the vinegar suggestion. See, I found out foods were causing problems for me, and solved the issue as being a mold intolerance. I had an allergy test done that came back positive for Penicillium and Alternaria Tenius molds allergies. So, I had to go on a mold elimination diet; which includes foods or drinks that are fermented and have potential to grow molds (i.e. alcohol, cheese, mushrooms, tomato sauce, vinegar and vinegar products like ketchup, barbecue sauce, etc...).

One night about 2 months ago, I decided to take a shot of vinegar to alleviate an indigestion problem I was having on the advice of one of my friends. When I woke up the next day, I felt like I was completely out of this world and had some intense peripheral problems.

Now, I'm wondering if I had some kind of herx reaction to the vinegar. In other words, did Lyme disease create some kind of positive allergy that would come up through testing in order to protect itself, or guard against me using it as a treatment.

If that isn't clear, if Cat's Claw is extremely effective at killing Lyme, would having an allergy test to Cat's Claw be positive if you suffered from Lyme Disease?

Just some thoughts I want to share. Would love to hear thoughts from anyone.

Peace,

Wolf
 

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Posted by map1131 (Member # 2022) on :
 
What a great idea. A continual thread on just detox support. I'm happy happy happy. Thanks Spring!!!!!!!!!!!

Many of us post about the importance of detoxing and not just throwing abx at this illness. But to be able to go to one thread and read read read.

Priceless!!!!

Pam
 

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Posted by Keebler (Member # 12673) on :
 
-
"if Cat's Claw is extremely effective at killing Lyme . . ."

It is not. It is support.
-
 

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Posted by ping (Member # 6974) on :
 

quote:

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Originally posted by springshowers:
I know many do and this has not been told to everyone by their doctors but mine did. Also No Magnesium Supplements. He believes that it feeds the bugs and you feel worse.

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quote:

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Originally posted by MorningSong:
I am starting coffee enemas for the first time in my life. Am using organic. I will use 1 a day to start, and have heard they are safe and excellent at detox.

Is there anything I should be careful about?

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Yeah, no cream and sugar.

Seriously, I've been thinking about doing it too, but I'm a big sissy. Let us know how it goes. Maybe if you have a good experience with it I'll have the courage to do it.
 

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Posted by mati (Member # 15233) on :
 
I'm so grateful for this thread after feeling that folk here felt that there was something strange about me when I have tried remedies and they have not worked.

I try things and get nowhere. I had some tests done which show that I am chock full of metals and toxins especially arsenic and lead.

I have been trying to get my food intolerances sorted out as I felt this was the first step and got to gluten dairy lectin sugar and anti-thyroid vegetables free diet but now think that I have developed a rice allergy. So now I wonder if I should do the rotation diet. Today I excluded rice and feel lousy. One thing about rice I found is that it is sometimes contaminated with arsenic. I was using rice protein and brown rice milk but that maybe why the allergy - too much of it.

I am finding it hard to keep going but hopefully I will respond to the rice exclusion. It was one of the main parts of my rapidly reducing diet. I will start on the baths though and drink more. I even had a bad reaction to the electrolite drink others use. It is stupid but I feel ashamed because nothing helps. Thanks again.

mati
 

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Posted by TerryK (Member # 8552) on :
 
ping, as far as the methylation cycle and TMG, I think it is used to bring down homocysteine levels which can be impacted by MTHFR C677T. It also supports the liver. Another name for it is anhydrous betaine so you might try searching for that too.

Terry
 

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Posted by ping (Member # 6974) on :
 
TerryK - Correct. You've just told me in a nutshell everything I know about TMG. Am searching alot, but don't want to join various other groups right now (maybe later when I get more time). Thanks again!
 

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Posted by sparkle7 (Member # 10397) on :
 
gwb - it's not that hard... just kind of weird at first but it is helpful. This website explains how to do it -

http://www.sawilsons.com/basicenema.htm

It wasn't a cure all for me but it was good to do after a parasite cleanse. I think someone brought this up (on this thread or another thread) but detoxing after a parasite cleanse is important, too.

TerryK - thanks for all the great info! Maybe you should write a book about it? All of that stuff is so complicated. It would be nice to see something written in layman's terms.

Sometimes it's too much to start researching all of that. I don't know where to begin.
 

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Posted by springshowers (Member # 19863) on :
 
Hello. Once you get doing the enemas you will feel the benefit and it sounds weird but you will even enjoy them. : ) !! Ha But really. IT is worth doing it. and just follow the directions. You can start out using just warm water and see how you do and then try other things.

This is great and Thank you all for adding to the thread. Yeah we all know we can search and dig for this info but it is great to gather it all into one place and be able to read through it back and forth and get it into one spot. So thank you all and keep it up.

ALso for those who keep posting saying they appreciate even being acknowledged and feeling like they were the odd ones out and things were not working that are working for others.. Your not alone and though there is a way out of it. IT might not feel like it but when you find the right combination and concentrate on finding that way to cleanse and detox and also support your immune system and organs etc.. You will know it and things will start flowing. Its like a light bulb going on. It is hard work no doubt.

I takes commitment and persistence and consistency. I found that when I was so very ill I wanted to just lay there and not move and I skipped the things I should do. I started to MAKE Myself get in that tub. I said to myself if I can lay in bed I can Lay in the tub. Even though that felt like a ton of work in itself I talked myself into it and did it at least two times a dsy. I measured out the water I needed to take in and I have 3 quart size bottles I fill up in the Am and those HAVE TO be gone by the next am. I always use water to take my meds and well that takes up half the water!!


If You take one goal at a time and write it down and then once you are in a rhythm ad another things. Do not try to do too many at once or you will not follow through. There s some psychology that plays into this and that mind set sometimes we have that says if I can not do it all the way or all of it then I just will not do it at all. Sometimes that can be what happens and we give up.

Like when we try a diet we say I will start tomorrow because today I did not do it so I just will not even try today. Do not let that stop you from doing what you can each day. It will add up faster than you think and do much more good than you think.

I am now working in taking walks and my rebounder tramp. I want to take one every day for at least 10 minutes and 5 of the rebounder. And right now I am only doing it about 2x a week. If I am trying I do not get down on myself. Some are old habits coming back where I say I just do not "feel" good. I am so lucky to not be laying in bed like I used to and crawl to the tub crying so I should remind myself of those things too.

Anyway that is my little pep talk and reminder of the games our mind play and as well as being ok with the small steps we can take and taking them! For me this is the order and how I built up to my current protocol.


From HERE DOWN is WHERE I AM AND HOW I Got There!

My Protocol in order and it took me about 6 months to really get serious and work up to this in this order one by one or sometimes two. It looks like a lot but I did it one step at a time and did not add anything until I felt ready to.

Diet - Did a full elimination diet where I ate nothing that came up on my allergy testing and ate nothing white or processed at all. I restested and even more indepth 3 months later and showed NO Allergies at all to foods. I have kept that diet up about 75 percent and have added some things back in that are veggies and fruits etc. Still no whites and no dairy and no grains besides brown rice. Whole real live foods from the ground. If I buy it and I can not see where it came from the earth I do not get it. So nothing processed. This was a huge big step in cleansing when I thought it was about my allergies.

Baths 30 min- Daily 1 to 2 times

Water - 1 oz per 1/2 body weight in lbs

Lemon Water and lemon oil drinks 1 whole lemon each - 1 to 2 times a day

Coffee 1 cupe - 1 x a day organic and with something like Miralax. I had to do this daily to keep my bowels moving. I have balsy of the gut and it was very important and still is to keep things Moving. For me fiber did not do it and no stimulants work because of how slow it is and I would cramp up up above or at my stomach. SO this is the combo that worked for me. Find what works for you if you have this issue and as gently as possible. It is very important to detox as if you do not the things in your gut will and can absorb back into your system again..

Body Scrubs 5 min- Before each bath

Bentonite Clay 2 tbls worked up to - 2x a day pulsing about 1 week a month now

Enemas - Rotate coffee with gentle salt water - 2x a week and I do not think more that that is good for me

Welchol/Cholestrymine - 1 to 2 times a day away from all other supplements pulsing at another
week away from clay week. 6 tablets of Welchol or 1 scoop of Cholestrymine. I have both so want to use them up. Not planning on getting another after these are done though and feel I can do without these two if I use clay as time goes on.

Rife - Detox frequencies at the least 3x a week working up to every other day.

Ionic Foot Baths 30 to 45 min - 1x to 2x a week. Working on going up to every other day and plan on that for 3 months before reducing back again.
Buying my own bath and got it in yesterday

Walks 10min - 2x a week working up to daily

Rebounder Tramp 5 min - 1 x a week and working my way up and trying to do this along with walks since I am in that mode.

Thats it for me right now.

I do add in B complex vitamins and such after reading about the blockages that some have and what they are taking for it but have not been tested or read up enough about it to be able to talk about it. Thanks for all the info here though.

I want to add in some of the things on Dr K's document that are things like cilantro and chorella and those sorts of things (maybe) I am doing pretty good now and do not want to add too much.. Also gut cleanses and doing parasite cleansing as I do those only maybe 2 x a year actually. I use herbals supplements and a good few weeks of Salt C too. I am sure I am forgetting something and though now that I typed that it seems like a lot. I am proud of myself now that I look back and see myself so stuck and see what I have been doing now and those are all on my own. Many are doctors orders or recommendations during my last years IV and current IV treatments I also do that have also helped me Very Very Much. That is what I mentioned before that I got professional help. THe clinics I have been going to have added in modalities that I could not and did not have at home. Those really helped me get out of the stuck stage. IT was painful and horrible at the time. Esp the things like lymph drainage using things like laser treatments were very strong and got my lymphs to let go and move. I hated them at the time.

After a few months I could do them and feel better instead of worse!! That is where you want to be!

That is the indicator that you have MADE it across the line and to the other side and out of Stuck Mode!! It can be done.! It takes something and different for everyone so I am not saying do what I did or am doing. It i just to give you ideas and see how I progressed to it and maybe that idea will help you get there too. I really want to emphasis that because there is nothing that works across the board for everyone and you have to find those things for yourself with trial and error. I will say though that most all that I tried I kept on board in some way but found the right dosing and frequency and some more than others or even some just a oouple times a year.

In the following months to come I may change it down to reduce some and increase others. I hope to increase exercise and may reduce some of the others as I do so. Its all just feeling it out as you go. I am just pretty excited to be feeling so much clearer and like my body is working. I am not cured or done with lyme disease but when I treat for it I feel like my body is able to handle that treatment. For me that is huge in itself and why I started this conversation.

I am here to cheer you all on and support you in any way I can.! Blessings and I care about all of you!!

Sorry this got so long!
 

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Posted by gwb (Member # 7273) on :
 
sparkle, thanks for the link. Looks real helpful.

I agree with you about all this stuff being so complicated. People talking about "pathways" or to quote Terry K, " as far as the methylation cycle and TMG, I think it is used to bring down homocysteine levels which can be impacted by MTHFR C677T"

What does that mean? I'd need to call Marnie here to interpret this--no wait a minute, she'd make it even more difficult to understand.

Too many people here speak in tongues. I'm not blaming them. That's why I keep coming here so I can keep learning and figuring out how to beat this disease

Gary
 

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Posted by Keebler (Member # 12673) on :
 
-
When someone posts terms that need more definition, often, by just searching that term at Google, you can find more detail when they are not around to answer. It would be impossible to provide all the detail here.

However, a Google search for MTHFR C677T - brings up many links.

TMG is trimethylglycine.
-
 

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Posted by thejoje (Member # 19976) on :
 
For you folks who eat 1-2 lemons or their juice per day:

How do you avoid tooth enamal erosion? Whenever I have any lemon juice, even in a glass of water, I can feel the juice go right to the rough spots on my teeth where there is little enamal.

Is this just my problem?
 

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Posted by thejoje (Member # 19976) on :
 
For you folks who eat 1-2 lemons or their juice per day:

How do you avoid tooth enamal erosion? Whenever I have any lemon juice, even in a glass of water, I can feel the juice go right to the rough spots on my teeth where there is little enamal.

Is this just my problem?
 

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Posted by springshowers (Member # 19863) on :
 
I brush my teeth right afterward.. 100 percent for sure and I forgot to mention that..

Make sure you do not drink it before bed and forget to brush those teeth..
 

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Posted by Wolfed Out (Member # 23727) on :
 
I just bought a whole body cleanse (internal cleansing system by Enzymatic) last night. I'm not sure how to go about starting this.

I'm taking a lot of supplements and ABX right now, and don't want to lower the efficacy of my treatment. How should I go about starting this cleansing?

Kit includes:

Week 1:
Laxative Formula - 3 tablets at night
Super Milk Thistle - 1 UltraCap at night
Fiber Fusion - 4 UltraCaps in the morning and 4 at night

Week 2:
Laxative Formula - 2 tablets at night
Super Milk Thistle - 1 UltraCap in the morning and 2 at night
Fiber Fusion - 4 UltraCaps in the morning and 4 at night

Well, now that I look at it the instructions are pretty clear. Do I need to be worried about any treatment disruption...I guess that's what I'm looking for.

Wolf
 

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Posted by TerryK (Member # 8552) on :
 
Thanks Keebler for answering. I had to go out yesterday and wasn't around much the rest of the day.

gwb - sorry if I posted terms that were not defined. MTHFR C667T is part of the methylation testing that is done by Dr. Yasko and other doctors. More explanation follows:

Here is the definition of MTHFR which I found by doing a search on google.

"Methylenetetrahydrofolate reductase (MTHFR) is an enzyme that in humans is encoded by the MTHFR gene."

I found this file which explains a lot of what Dr. Yasko methylation testing covers.
http://tinyurl.com/376hvn

Here is the explanation for MTHFR C667T
"MTHFr C667T helps to convert homocysteine to methionine in the methylation pathway. This enzyme pathway has global effects for immune function, muscle metabolism, neurochemical production and regulation, and detoxification."

Here is a chapter from Dr. Yasko's book "Genetic Bypass" (she has a newer book out now though)
http://tinyurl.com/ylzzuu5

gwb - What does "pathway" mean?

In general terms it means a path to get from one place to another. In medical terms it usually means looking at one specific thing (like an MTHFR enzyme) and following all of it's processes from start to finish such that you know what it is doing, what it affects and what the end result of it's actions are). You would consider all the things that are affected along the way to be in the pathway. I'm afraid I've explained it rather clumisly but I hope it helps.

One doesn't need to understand the nitty gritty of the methylation cycle in order to see if the treatment might help. Many people who don't want or can't get the genetic testing try the simplified protocol. It has been posted here at lymenet in a link provided in a previous post above but it is also listed in the files section of the yasko yahoo group.
http://health.groups.yahoo.com/group/CFS_Yasko/messages

Yes, some of the information is complicated. It is the nature of the information. I'm not trying to provide a full education on the various protocols/issues - others have already done that via books, articles, videos, discussion groups etc.. My hope is to point out areas that one can look at further in order to help themselves.

Those who want to understand must take one area at a time and go slowly and have patience. You won't understand it from one post on lymenet. Those who don't want/need to fully understand can try the various protocols that have been developed and see if they help. If you have an LLMD or other doctor who is helping you, run it by them and see what they think.

Just a comment - Marnie gets blasted on a regular basis for trying to put her thoughts out to this group because not everyone can understand her posts. I just scroll by some of her posts because it would be very time consuming to look everything up to try to understand them all. Some of her posts have helped me put some things together which I have been able to use to help myself and others. I try to graciously accept what is offered and I ask questions when needed.

I have learned over the years that I must take responsibility for my own recovery which means spending the time and energy to research and try to understand things that might help.

Spring - yes, it's nice to have it all in one thread. We have many threads in the archives that attempt to put the information about one subject together for convenience. Some of those threads are listed in the newbie links and some are not. If no one searches for that information, the wheel will continue to be re-invented. There are lots of valuable posts in the archives that will not be duplicated in this thread because some of the posters are no longer here and others have posted it before many times and don't want to spend their time and energy posting it again.

Terry
I'm not a doctor

[ 03-24-2010, 05:08 PM: Message edited by: TerryK ]
 

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Posted by ping (Member # 6974) on :
 
TerryK - Thanks so much for your assist!
 

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Posted by massman (Member # 18116) on :
 
Gary said "Too many people here speak in tongues"




 

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Posted by Keebler (Member # 12673) on :
 
-
"Too many people here speak in tongues" ?

If there is a new word or term, and if the poster just has not been able to detail that fully - that is what Google is for - look it up.

To post takes enormous energy and when there is something to look up in a post, that is the least one can do after being given so much great information - all for free.

A lot of answers are posted but don't skip over the maps, too. Take it a step further if you want to know more.

Or just skip over it. Come back later when you have more energy. Those who post here are tired, too. Their hands hurt, too. Sometimes, they can post only a key but you might have to open the door.

Work with them rather than criticize for it not all being spelled out in every little detail.

Google and PubMed are at your fingertips, too. And, where articles are suggested that more fully explain, there's a reason. Not everything can be fully addressed in a post, nor should it be expected.

For instance, it was just so easy it was to take a term new to me "MTHFR C677T" and just hop over to Google. And, Presto - tons of great links. Just follow the breadcrumbs and you'll get back home.
-

[ 03-24-2010, 07:29 PM: Message edited by: Keebler ]
 

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Posted by springshowers (Member # 19863) on :
 
HI WOlfed

That looks to be a general cleanse of sorts for the guts and liver etc.

I do not see anything in it or any reason to think it would disrupt or affect your treatment in any way that is negative.

If anything you may start to notice your meds effectiveness is improved.

Good Luck with doing that ... it looks pretty gentle too
 

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Posted by thejoje (Member # 19976) on :
 
Wolfed,
My doc put my daughter and I on this last November. We used it right along with our other supps and meds.

One note on the fiber fusion tho, I believe it contains some form of oat bran, so beware if you are a celiac!
 

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Posted by gwb (Member # 7273) on :
 
Hey folks, my comments were mostly made in fun and jest. True, I don't understand a lot of this stuff, but like I said in my post above, "I'm not blaming them (anyone). That's why I keep coming here so I can keep learning and figuring out how to beat this disease".

I can obviously do a google search if I want to learn more about this for sure. But I do think that if someone is going to bring up new things like this, it wouldn't hurt to explain it to the best of their ability and/or provide links to websites that will make topics like this more understandable for those of us who's brains are half the size of a pea (like me).

Gary
 

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Posted by Keebler (Member # 12673) on :
 
-
Maybe they ARE doing the best they can. Some key information is sure a lot better than none.
-
 

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Posted by massman (Member # 18116) on :
 
A simple short explanation is not needed to generate further interest ?

I don't have the time to google everything or check out the 19 million hits from the googie search. Most days.
 

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Posted by springshowers (Member # 19863) on :
 
Hey Back to detox ideas..

Lets not contaminate a great thread and if you do not mind could you start a new thread for this other topic. Makes it hard to follow what the detoxers are trying to ask and follow up on.

Thanks Much appreciated.
 

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Posted by springshowers (Member # 19863) on :
 
So today I was able to during my IPT treatment to get what they call and Lymph drainage foot massage.

Wow was it ever nice.!!

The go through and along each of the bones from toes up and massage out any knots and open up those channels. I had an infared dome over me during the whole thing too..

It was relaxing and nice. Has anyone had one of those anywhere.

Every little bit added up helps.!
 

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Posted by Keebler (Member # 12673) on :
 
-
massman,

You said you don't have time to stroll over to Google. If you don't have time to further study the material, then just don't.

Posts here are a gift from someone and it's not nice to say you just don't like the color or the way the package was wrapped. You don't buy a book and return it with instructions for the author to change the voice or the tense. Same here.

What is presented is likely the best work - and hard work - of someone who cares enough to try to make a difference.

Accept. Enjoy it, or expand upon what was presented for you so that you can gain a more refined understanding or learn even more from it. Or don't. But it's just rude to be critical of someone's hard work.

You have no idea just how hard they may have worked to pull together some of this stuff in as professional manner as they can - usually also offering you handy links with even more detail.

It's polite to say "Thank You."
-
 

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Posted by massman (Member # 18116) on :
 
OK Keebs I ask for something short + get nailed to the wall for it. A sentence or two is too much ?

I often thank people.
 

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Posted by springshowers (Member # 19863) on :
 
So . Detox ideas..

Anyone got any other great ideas that might help others.

I know we hear a lot of the same things over and over and I bet there are new things out there that are useful..


Thanks for any new ideas..
 

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Posted by Wolfed Out (Member # 23727) on :
 
Thanks guys! I appreciate the assurance.

I took my first doses tonight, and I expect some nice...ummm...movements.

I'll update this thread with how I feel about the product and process after I've completed the course.
 

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Posted by TerryK (Member # 8552) on :
 
Well said keebler.

[ 04-08-2010, 03:26 AM: Message edited by: TerryK ]
 

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Posted by gwb (Member # 7273) on :
 
Seems my comments were offensive to a couple of people. I apologize for that. Meant no harm and was just trying to be a bit humorous. That didn't work out so well. Again, to those who were hurt or offended, my apologies.

Gary
 

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Posted by mati (Member # 15233) on :
 
Have taken the plunge and just started what i think will be the ultimate detox - a raw vegan diet. The immediate result is very encouraging, mainly through giving up grains I think but my pain levels have shot down. This is the best improvement I have ever seen and in just 2 days.
 

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Posted by map1131 (Member # 2022) on :
 
I've experienced 6 yrs worth of stuff. I will come back and add my whole list later.

But the biggest and most effective thing I believe I did is: Lymph Drainage with a well trained massage person that had treated chronically ill patients for years.

Lymph drainage was done once a week for 2-3 months. Then we went to every 2 weeks schedule for a few months and then I went once a month for about 3 yrs.

During that time if I felt I needed a massage to work on painful areas then we would work those areas.

One shouldn't complain about the cost of doing things like this. There was no doctor or drug or supp that could do this for me.

I'll never forget how Gigi would respond to others about the cost of doing things to get well. She said one should do whatever they had to do to get better. Beg, borrow, sell.

One must do what one must do. Now, you might be able to have the same effect with buying a rebounder. But at that time in my illness I was too ill to jump on a rebounder.

The majority of what we need to get better here is not covered by our insurance companies. Out of pocket is just the way it is.

Pam
 

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Posted by suz9601 (Member # 6968) on :
 
How does the epsom salt detox a person? Does it just open the pores more? I am not sure how it detoxes. Thanks for any info.
 

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Posted by Keebler (Member # 12673) on :
 
-
Nothing really "detoxes" us, in and of itself. We give our body certain things - or do certain things that supports the intricate detox process. It's just like nutrition. We don't build bones but we give our body what it needs to do that.

How epson salts work is that magnesium is absorbed through the skin and taken up by cells that then go to work for our liver - and colon - to work better.

The links for how the liver works explains more about this. Those links are 2/3 of the way down page one of this thread.

In addition to the magnesium, the warmth of the bath helps circulation - and relaxation - and that also helps our body with the on-going, never ending and process of cleansing.

Yes, the pores of our skin are also opened by the warm bath, we sweat out some toxins and that is also helpful so that the liver does not have to do it all.

Be sure to always rinse off after a bath with epson salts. Either leave the shower hose down so you can reach it or have a shatterproof pitcher near the tub.
-
 

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Posted by suz9601 (Member # 6968) on :
 
thanks so much keebler for the info. I appreciate it.
 

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Posted by Wolfed Out (Member # 23727) on :
 
mati,

Thanks for posting that comment.

I can't stress ENOUGH how much changing my diet has improved my overall improvement and well-being.

I know many people already take good care in what they eat, but for those who don't, this is one of the best things you can do to find some immediate relief from your pain.

Cheers,

Wolf
 

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Posted by springshowers (Member # 19863) on :
 
Been hearing more about rebounders and Tramps.

I have been using mine more often lately. And my doctor asked me to be doing this too.
 

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Posted by rks (Member # 24316) on :
 
I started pulling oil about a year ago. I did it every morning faithfully for about 8 months, then had to have some dental grafting and had to stop for about a month or so.

After the grafting healed, I started back again, but now only a few times a week.

I know that pulling oil has done two things because I can actually see the difference - 1.) My teeth are whiter. People have even commented on it. 2.) My gums are healthier, pinker, and have grown further up/down between my teeth where before they were not.

I am now in a hold position with my periodontist where before he has had a list of things he wants to do, but so far he's said nothing has gotten worse.

I also think it may have helped with some of the head issues and fatigue, but of course, I cannot prove it.

If anyone is interested in learning more, please read the below links:

http://www.oilpulling.com/

http://www.drbillyhealth.com/01122009/oil-pulling-101/

http://www.canlyme.com/forum/viewtopic.php?t=5552&sid=e93125915614d81a5849b1dffa44675f

and there is much more online.

Cheers!
 

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Posted by springshowers (Member # 19863) on :
 
SO I put my exercise ball in place of my desk chair and will be bouncing a lot more. Will see how it goes. It is good just to sit on even because you have to stead yourself and keeps the core working and strong.
I am so out of shape. I want to be able to do "some" working out.

The bouncing will help lymph drainage.

Reducing inflammation is another important thing
 

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Posted by dogmom2 (Member # 23822) on :
 
I tried the led detox treatment last week. Treating for sulfites, with the treatment and a burbur tincture. I haven't felt anything good or bad. I am supposed to do another treatment for other substances this week. Should I continue?, it is costing me $110 per session and I'm not working.

Thanks, diana
 

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Posted by LittleLymie19 (Member # 15610) on :
 

quote:

---

Originally posted by Wolfed Out:


I can't stress ENOUGH how much changing my diet has improved my overall improvement and well-being

---

Ditto. I couldn't stay out of the hospital until I changed my diet.
 

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Posted by lindaca (Member # 23871) on :
 
Question regarding herxes:

Are we really herxing, or are we just making the buggers mad so they send out more neurotoxins, similar to the way a skunk sprays anything that gets close to it? If all we are doing is making the buggers mad, then it could mean that the herx is overrated and that our treatment protocols are insufficient.

Either way, it would seem that detox is very important, but this could open the door for another way to judge the effectiveness of a treatment protocol.
 

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Posted by springshowers (Member # 19863) on :
 
For Detox doing Diet.

I started with
No Dairy
No White anything (potatoes pasta sugar etc)
No Grains except Brown Rice
Nothing processed or in a box.
Fish or Chicken 1x a week at most - No other meat
Organic whenever and as much as possible


6 rules !! and you would be surprised the HUGE difference!!
 

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Posted by LittleLymie19 (Member # 15610) on :
 
Good suggestions springshowers. I do well with:

No Gluten
No Dairy
No Soy
No Grains except for brown rice (Just like you springshowers)
No Sugar
No animal protein ( I rely mostly on protein from powder, beans, and brown rice....aside from fish once or twice a month)
No Corn

I have insane food allergies ontop of it so my other limitations don't count. But I think a lot of lyme patients would do great on a diet like that (totally agree with springshowers on this one). The animal protein/meat thing is controversial though. I do think that most lyme patients do well with animal protein, but I personally don't.
 

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Posted by springshowers (Member # 19863) on :
 
Hey little !! We are alike arent we?

I use almond milk..
I did not type no soy but I agree with that and I thought no dairy is important enough.

Just like you I eat a lot of beans for protein. And protien powder too... Just like you and once or twice a month for some other form.. ..

Wow.. we sure are close..

!

I do best on this diet too and many allergies no longer test positive either...

But i stay on the diet because it feels best.

Will not lie and say I am not perfect and even every so often cheat on purpose to fill up that desire and urge for something I really crave or want... and I would rather do that than expect myself to be perfect beause I would end up wanting to just quit. My way I do not stop trying...

Thats just me.

Oh TONS OF Water !

Water water water water !
 

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Posted by mati (Member # 15233) on :
 
Thanks Wolfed Out

Here are a couple opf links about how bad wheat/gluten etc are - they are poisons to us

http://www.greenmedinfo.com/page/dark-side-wheat-new-perspectives-celiac-disease-wheat-intolerance-sayer-ji


http://dogtorj.tripod.com/id23.html

This last one is from a vet who really knows about nutrition.

I am really struggling with my diet since I found I was allergic to rice so am raw vegan apart from chicken every other day while I am seeing if it is good for me or not. If it is not then I am really stuck as there is little left and a high fat raw vegan diet is not good.

mati
 

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Posted by LittleLymie19 (Member # 15610) on :
 
Springshowers, we're so much alike! Good work on your diet

Except, I can't ever "cheat". Unfortunately, I have to even be careful of "cross contamination" as well. Even a crumb throws my GI tract for a loop, and if I "cheat", the heart symptoms and neurological symptoms really attack. So I'm okay with eating this way, if it makes me feel better and wards off symptoms!

I really encourage everyone to try going strict gluten free, if your doctor has recommended or approved it of course, and see how your body does. Even if you have a little gluten in there, you probably won't reap the benefits from the diet at all.
 

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Posted by TexasChaos (Member # 7465) on :
 
Thank you, springshowers, for this fabulous thread! And I am so thrilled to see Lymenet folks getting along for once...
 

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Posted by springshowers (Member # 19863) on :
 
Hey All. I got an ionic foot bath and have been using it and getting really good results.

I read that the array can be used for Foot, hand or body and read a few spots online that talk about how you can use the device in the bathtub.

I want try that next!
 

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Posted by greengirl (Member # 25316) on :
 
About the lymphatic drainage work: anyone have more symptoms (or herxing) afterward. There have been a couple times in the past year that I've gotten massage or cranial sacral and, almost immediately, I've gotten a huge awful cold/bronchitis, with awful pain.

Also, how do you brush your body?
 

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Posted by springshowers (Member # 19863) on :
 
Yes after lymphatic drainage you can herx of feel sick etc. If you do them ongoing you will feel that less and less.

To Brush you body you use a natural bristle brush and you do it Dry brush and dry body. You are supposed to brush toward your heart. So start at the feet and hands and then pull upward. I use little circles around the area I am working on and then end it with long full strokes to pull toward the heart. I do the feet and ankles and then the calves and thighs and then the hands and arms and then the torso and back. Include your head or at least neck too..
NOt too hard but you will see your skin turn a bit pinkish. That is good and that is enough. It goes pretty quick and takes me about 10 minutes only and I try to do it two times a day..

I have a lot of pain and this has been one of the things that seems to help or at least distract from the pain and gets blood flowing and detoxes the skin by opening up the pores. I take a bath typically after the am brushing and sometimes at night too but usually the 2nd brush I just do to without one after but still enjoy and feel the benefit.

Hope that helps some.

Oh And brush those under arms and around those lymph spots. In the front area too around where the neck meets your chest and where the knees bend behind knees. THose are good lymph spots to stimulate.
 

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Posted by springshowers (Member # 19863) on :
 
Anyone bought one of those Dome Infared Saunas that just go across your part of your body at a time?

I use them at my doctors office and like them but not sure if it is worth buying? They are about 900 dollars. I am not able to get a sauna that is a full one as I have to move out of my house and need something transportable for now.

I also saw just the belts and have used those and amazed how well they feel they work to heat up your core.
 

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Posted by Imaginit (Member # 20399) on :
 
Spring,
I have the portable one that you sit in and your head sticks out. About $200 at National Pool Wholesalers with free shipping. I LOVE it--it has been instrumental in keeping the pain down and detoxing.

It also is warrantied for a year so when my heater broke they immediately replaced it free of charge.

I don't have a lot of room in my house either and this works well.
 

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Posted by springshowers (Member # 19863) on :
 
Thanks that is great... I am a bit leary of the material used on those? What is it made of and have you had any smells or such?

I was looking at the these called Hot House

http://www.energywellnessproducts.com/
 

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Posted by Imaginit (Member # 20399) on :
 
Those look so interesting. And you said you've used them at your doctor's office and liked them?--I would go for it. It appears from what I read they do the exact same thing as a full size one.

Yes there are smells with the one I have but they go away after the first few times of using it.

I am somewhat chemically sensitive but I don't have a problem with it.

If you do get the half circle ones, let me know how it works for you. Is this wear you bought your foot detoxer?
 

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Posted by springshowers (Member # 19863) on :
 
What things do you all take internally for detox and toxin absorption

I know of
Wechol
Cholstrymine
Those two are prescriptions

Then
Activated Charcol

Can anyone help add to the list
THanks much
 

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Posted by lightparfait (Member # 22022) on :
 
For beginners, I recommend the "detox box" by Dr. Mark Hyman...can order online...a great guide for a great beginning cleanse to clear your body initially, to see what is remaining to tackle...helps with eliminating allergies and candida!

Those who do this for 6 weeks have life long positive health effects. For me...I have lost all my seasonal allergies and animal allergies after doing this over 4 years ago...

IT helped me have a clearer body before treating lyme...and helped me know what was lyme and what was allergies or candida, etc...when all symptoms seem to mesh together.

I also did this after taking abx..very helpful!

This is not the same as allergie -immun at all.

That clears deeper miasms and dysregulatins in the detox pathways...do not be confused...but it does help clear out loads of the debris we all carry around. very worthwhile for novices who cannot figure this all out on your own.

This is not a heavy metal detox...but a full body, blood, and intestinal cleansing detox.


Product Description for the Detox Box:

The Detox Box, created by holistic physician Mark Hyman, M.D., gives you everything you need to complete a safe, effective, and medically informed detoxification program at home. Designed for total cleansing to remove toxins and allergens, boost immunity, and restore energy levels, The Detox Box includes:

* A 64-page book explaining the science of detoxification, including specific instructions for 7-, 14-, and 21-day detoxification programs. A convenient record-keeping section helps you track your progress.

* Two assessment questionnaires help you gauge your levels of exposure and customize your program.

* Two CDs: Disc one explains how you can aid the body in detoxifying from pesticides, air pollution, and impurities in our water; Disc two leads you through three 20-minute yoga sequences designed to support the process.

* 70 flash cards make it easy to follow--and stick with--every step of the program, before, during, and after. Contains detailed information on diet, supplements, and inner cleansing practices. Includes preparation checklists, daily schedules, shopping lists, important tips on completing the program, and more.
 

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Posted by springshowers (Member # 19863) on :
 
THanks I always wondered about that Detox Box and if it was affective or not.

DO you know how it works?
 

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Posted by springshowers (Member # 19863) on :
 
UP

I wanted to add that my Rife machine always helped with Organ support and Detox and now that is all I use it for.

For me it is a staple in my detox modalities.

I also now have an ionic foot bath and it is very helpful too.
 

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Posted by springshowers (Member # 19863) on :
 
Karenl

I wanted to address your questions about the detox foot bath.

When I started using the machine I already had worked on Detox a lot and I did 30 and 45 minutes right off the bat. I even was able to use it up to 2 times a day for a few days in a row to help pull me out of some bad days. But I would NOT do that if you have not a clear feeling and indication of where you are in the detox of your body. I am to the place where I know how to clear stuff out when it builds up and know how it feels. Before that for the longest time I was not there and I would work so hard and still always feel bad.
Also you have to be careful though as you can get burns on your ankles where the water hits your skin. My machine is powerful and to adjust you have to reduce the salt you put in the water as opposed to reduce any power or reduce time. The power source is either on or off and there is no timeer. It is simple yet powerful machine. You can use 1 tsp on my machine and I am still at 1/2 and started out at 1/4 tsp.

So my advice is to start with 1/4 or less salt and see how that goes and slowly increase it. But do the full 30 minutes and even work up to 45.

I never herxed from it and always felt better immediately after and for hours or the whole day. On days I feel ok I do not use it but am going to start ot do it on a regular basis no mater how I feel to keep things moving.

Also. The first week i got it I did not feel much result and was a bit skeptical. But I kept at it and by the 2nd week and 3rd week it got better and better. Not sure why that is but thought I would mention it.
 

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Posted by farraday (Member # 21494) on :
 
Thanks so much for this great thread! I am reading it in spurts as I can. But here's a question for you:

How do you prepare food for yourself? What do you prepare? There are so many things you need to avoid that it is hard to tell what you should fix. I am in bed nearly all the time and depend on my husband for food. He buys and cooks it.

I start the day with a protein shake (Trader Joe's protein powder) made with plain yogurt, a few frozen strawberries, a little orange juice and ice and MMS powder)

For lunch I have a tuna sandwich on whole grain bread. Or some yogurt if I am nauseated.

For dinner we have a chicken, fish or meat, vegetables and rice or potatoes. We often share on orange or an apple for dessert.

And that's it. I am just not hungry, even though I used to be a restaurant critic! Funny, huh? I love to cook but cannot even make it downstairs to the kitchen.

When I got sick I suddenly gained lots of weight. My thyroid grew huge and had to be removed. I had always been rather slim...even after pregnancies and while eating in restaurants every night.

The only change in my added weight was after 6 weeks in the hospital with 2x daily IV's of vancomycin and naphcillin. I was unable to eat at all, except for protein shakes. I lost 70 pounds in 6 weeks! And I felt much better and could walk and get out of bed.

But then I gradually relapsed and discovered I had lyme disease and put the weight back on. I had to teach my husband how to cook, giving him instructions from my bed. But he is a big man, a Norwegian who loves red meat! I am slowly converting him.

I just don't know what to tell him to fix. I hate even thinking about food these days. I tell him to bring me very small amounts so I can get it down. And most food tastes awful to me. He is cooking very well, but doesn't know what to fix.

It doesn't seem to make sense to go through all the great detoxing ideas here if you are not eating properly. And how do you manage to eat new foods if you are already nauseated? How do you cook if you can barely walk??? If I had my way I would live on protein shakes!

Years ago I wrote a cookbook. Maybe you all could send me some ideas and I could write a new cookbook for lymies!

I would start it out by listing the contents of a well stocked pantry. I would list the things you can find at local farmers markets. But then what???
 

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Posted by gwb (Member # 7273) on :
 
In case anyone missed this on one of the other threads, I thought this would be an appropriate place to post this article since it's related to toxins:

http://findarticles.com/p/articles/mi_m0ISW/is_285/ai_n19170382/?tag=content;col1

For those of you who don't have issues with magnesium and want to do a detox bath, this is the one I've been using three times a week. This comes from Dr. Jernigan's book:

---Detox Bath: Put the thermometer in the water to make sure the temperature is around 98 degrees, NOT warmer. (You do not want HOT water as that can make you feel worse). **My comments; I've never used a thermometer and probably have had the water hotter than it should be at times. Not saying it's a good idea, but I'm still alive and kicking.

As the water is running, add 4 to 6 cups of Epsom Salts and entire bottle(s) of Hydrogen Peroxide (32 oz., food grade is 3%). Some use 2 bottles.

Before getting into the bath, you will need a Natural Fiber Brush and do a "dry skin brushing" to unclog your pores always brushing toward your heart, don't forget to brush the soles of your feet too!

The Epsom Salts help draw out the toxins and at the same time the magnesium absorbs into your bloodstream, most people do NOT have enough magnesium. The Hydrogen Peroxide adds oxygen into your bloodstream which lyme spirochetes hate. Try to stay in the bath a minimum of 20 to 30 minutes, the longer, the better.

Detox Baths are NOT a one time thing. One must do them daily or start off slow and eventually build up to them. One bath will not accomplish much. NOTE: Most people feel "worse" during the first week of detox baths and eventually feel better since it is a cumulative effect.

Epsom Salts and Hydrogen Peroxide: Recent research has shown that one when soaks in a bath of magnesium sulfate, both magnesium and the sulfate independently increase measurably in the blood and urine. Magnesium sulfate helps stabilize Hydrogen Peroxide so that the ultimate breakdown into H2O and free oxygen is more gradual and functional to the process of benefiting the body. This research documents the very real beneficial aspects of this bath therapy.

Actions of Bath Ingredients:

Hydrogen Peroxide: a simple non-toxic molecule of H2O2 that is beneficial in oxidizing (breaking down) toxins as well as killing anaerobic microbes. It will also detoxify pesticides and petroleum-based toxins and oxidize metals. Hydrogen Peroxide is also naturally produced by macrophages in the body to kill harmful bacteria.

The Epsom Salt Council reports this:

Magnesium is the second most abundant element in human cells and the fourth-most positivity charged ion in the body.

The National Academy of Sciences reports: Most Americans are magnesium deficient helping to account for our society's high rate of heart disease, stroke, osteoporosis, arthritis and joint pain, digestive maladies and stress-related illnesses.

Raising magnesium levels may improve heart and circulatory health, reducing irregular heartbeats, preventing hardening of the arteries, lowering blood pressure. Flush toxins and heavy metals from the cells, easing muscle pain and helping the body to eliminate harmful substances.

Ginger: functions to open up pores of the skin and increase the blood flow at the surface of the skin so that the oxygen from the hydrogen peroxide can do its work in detoxifying poisons and kill bacteria and fungi. The pores open wider so that the magnesium sulfate can be more readily absorbed. Ginger is invigorating and can stimulate perspiration for the elimination of toxins.---

I love taking detox baths and feel that they have benefitted me tremendously.

Gary
 

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Posted by springshowers (Member # 19863) on :
 
Hi All

Great Idea about the CookBook. THe ingredients are the first key anyway and after that you have to be creative and balance the foods. I find you have to have enough protein and that can be hard. The shakes are good but finding other things can be hard. I use organic free range chicken now and again and beans and vegetarian soy products sometimes. For me rotating products is good so you do not do too much soy or too much of any one thing.

I know its rough and I am not hungry alot of the time either. I try to do 3 meals of some sort and then I get sick to my stomach fast so I have to put it in the fridge and eat slowly smaller amounts when I can.

I have no answers really that are perfect and though I can relate to you.

THanks Gary for the bath recipies again. They are great and I can not do without my baths. They help a lot. Running out of ingredients though and I wondered if you have a source for Bulk Items that you might be able to share>??


THanks
Much
 

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Posted by lightparfait (Member # 22022) on :
 
NOtes from Dr. K on diet:

Proteins: A high protein diet is only good for healthy people....healthy people only get good results on mostly protein. Sick people do this thinking it is best...and get sicker or relapses and wonder why.

Protein acidifies your body and the bugs get "happy" in an acid environment. Therefore, people with lyme (bugs), do not do well on a high protein diet. Follow the lyme diet...which is low protein and lots of good vegetables, carbs.

Check you PH regularly, and adjust your diet when necessary to maintain a healthy balance.

Urine: healthy range (6.0 - 6.4)
less than 6.0 is acid
more than 6.4 is alkaline

Saliva : healthy range ( 6.5 - 6.9)
less than 6.5 is acid
 

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Posted by springshowers (Member # 19863) on :
 
Thanks Light

I have been following the Lyme diet and got some new test results that say I should add more protein.

I though will be very careful and not push it for sure. I do get very very little and maybe I need to just add a bit more. I was eating something that was protein only every few weeks to one time a month even.

I though this year added protein shakes and upped eating something like chicken one time a week.

That still is quite a bit limited I think? DO you agree? I guess I should have been more specific.

Everything is perspective .. and individual.
 

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Posted by springshowers (Member # 19863) on :
 
Reminder about Bentonite clay. Great Detoxer

My favorite oral detoxer and binder !!!
 

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Posted by springshowers (Member # 19863) on :
 
UP for people who started a new thread looking for specifics all in one spot.

We all gathered quite a range if ideas and methods here

HOpe it helps you
 

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Posted by littlebit27 (Member # 24477) on :
 
Thanks springs..
 

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Posted by springshowers (Member # 19863) on :
 
I have to add here.

Inclinded Bed Therapy IBT. It think it is helping with toxins and detox as it "Maybe" does not allow them to build up as you lay down fully horizontal. Or maybe it is other reasons for the system to keep working better? NOt sure

But its helping.

http://heal-me.com.au/ibt.html

What do you have to loose?
 

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Posted by springshowers (Member # 19863) on :
 
TO the List of Detox Ideas.

I have been seeing a Homeopathic doctor again as I have on and off and he gave me 3 remedies to use together to help detox.

I pulled out an old set from another doctor from a long time ago who did the same thing and gave me what he called a "Detox Kit" It comes in a box with 3 bottles in it and you do a certain numbers of drops a certain number of times a day.

Now I did not finish the first set years ago and I know it was because I was SOOOO Sick I did not notice a difference and I just got 1/2 way through the protocol.

I now do notice a difference and my doctor now has me on this therapy.

So I wanted to as this idea to all the other ideas here.!!

Blessings
 

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Posted by eightybarb (Member # 24968) on :
 

quote:

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Originally posted by lightparfait:
For beginners, I recommend the "detox box" by Dr. Mark Hyman...can order online...a great guide for a great beginning cleanse to clear your body initially, to see what is remaining to tackle...helps with eliminating allergies and candida!

Those who do this for 6 weeks have life long positive health effects. For me...I have lost all my seasonal allergies and animal allergies after doing this over 4 years ago...

IT helped me have a clearer body before treating lyme...and helped me know what was lyme and what was allergies or candida, etc...when all symptoms seem to mesh together.

I also did this after taking abx..very helpful!

This is not the same as allergie -immun at all.

That clears deeper miasms and dysregulatins in the detox pathways...do not be confused...but it does help clear out loads of the debris we all carry around. very worthwhile for novices who cannot figure this all out on your own.

This is not a heavy metal detox...but a full body, blood, and intestinal cleansing detox.


Product Description for the Detox Box:

The Detox Box, created by holistic physician Mark Hyman, M.D., gives you everything you need to complete a safe, effective, and medically informed detoxification program at home. Designed for total cleansing to remove toxins and allergens, boost immunity, and restore energy levels, The Detox Box includes:

* A 64-page book explaining the science of detoxification, including specific instructions for 7-, 14-, and 21-day detoxification programs. A convenient record-keeping section helps you track your progress.

* Two assessment questionnaires help you gauge your levels of exposure and customize your program.

* Two CDs: Disc one explains how you can aid the body in detoxifying from pesticides, air pollution, and impurities in our water; Disc two leads you through three 20-minute yoga sequences designed to support the process.

* 70 flash cards make it easy to follow--and stick with--every step of the program, before, during, and after. Contains detailed information on diet, supplements, and inner cleansing practices. Includes preparation checklists, daily schedules, shopping lists, important tips on completing the program, and more.

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