Anyone here try LDN? I started it this week but it's making me feel worse which I know can happen in the first few weeks. Just wondered if anyone else had success with it.
Posted by MariaA (Member # 9128) on :
Hi- Do some searches here for the whole name of the drug (if you just search for "LDN" it probably doesn't find all the threads, the forum software search doesn't like very short words for some reason).
It's not a miracle drug for everyone but it seems to help some people. Dr S of the book The Lyme Disease solution wrote very highly of it. I take it, it seems to make candida easier to control in my particular case, which I attribute to it correcting some immune system dysfunction that is otherwise a contributor to candida.
Posted by PossibleLyme (Member # 24062) on :
Thank you. I did a search and found some other threads. It seems to get mixed reviews. I am taking it for an autoimmune disease but hoped it would help with Lyme too.
Posted by MariaA (Member # 9128) on :
well, it might make your treatment of Lyme work better, basically. This could also manifest as more intense 'herxheimer' reactions, too, as your immune system might be more functional when on LDN. I don't think anyone sees major improvements DUE to LDN, but I think it could help if used along with other therapies.
Posted by psr1 (Member # 22957) on :
Hey PossibleLyme: how is it making you feel worse? Your Lyme symptoms are exacerbated, or you're experiencing other things?
Posted by PossibleLyme (Member # 24062) on :
MariaA - thank you for your responses.
psr1 - My GERD is a lot worse since I started it. My Lyme symptoms are also exacerbated especially the twitching and numbness. So nothing new but I feel a lot worse than before I started taking it.
Posted by psr1 (Member # 22957) on :
PL: I was working up to a full dose for about 2 weeks, now taking 3mg. Then started taking Bicillin & am having a herx but am also thinking the herx might be intesified by the LDN? No stomach symptoms, but definitely an increase of twitchiness & weird tickling along the spine (which morphs into pain) During the first two weeks I did experience more difficulty falling asleep.
Posted by mrpotto (Member # 15123) on :
I took it and felt it didn't do anything for me. I had no side effects from it though.
Posted by twingirl (Member # 13172) on :
I believe it started helping me at about week 3. I'm still taking it.
Posted by Keebler (Member # 12673) on :
- I have a friend who just started this so I was curious.
About 1/2 way down the link below, it is explained that adverse effects happen more for those who consume gluten. One doctor advises being gluten-free and casein-free before starting this -
To see past threads here at LymeNet, just search "Naltrexone" in the subject line and you'll find 44 threads. You might also search: "LDN" - and there are also major web sites just on this.
I am on week 4 of LDN. I started at 1.5 mg and just started 3 mg last night. My LLMD wants me to start slow. I will be on 3mg for a month and then up to 4.5. Someone on another board told me it took 4 months to feel anything.
I had only a few nights of insomnia and only a few vivid dreams. I slept good last night and had a good dream. It was my first night at 3mg. I have a sence of well being. I no longer feel depressed. I feel alive. Joint pain is going down very, very slowly. I also started Serracor-NK, and I think this is helping with my inflamation. I have been getting the night sweats again since starting LDN. Anyone else have this with LDN?
I am on Bixin, Augmetin and Flagel-every other day.
I have had lyme since 1997 and treatment since 2005. I have RA brought on by lyme.