This is topic Elavil experiences? in forum Medical Questions at LymeNet Flash.


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Posted by Starfall1969 (Member # 17353) on :
 
Anyone have experience with Elavil?

LLMD prescribed it for me because I'm not sleeping well at all, and I filled the prescription.

However, last night I read the infp insert and the list of possible side effects and drug/herb/supplement interactions just scared the crap out of me, so I didn't take it.

I'm just so afraid of it either reacting to something I'm taking (Doxy, Rifampin, mangosteen, acai, vitamin D) or causing a reaction like I had with Xanax, Lexapro and Zoloft (severe anxiety, panic attack and the desire to go jump off the roof).

Has anyone had any experience, good or bad, with Elavil?
 
Posted by IckyTicky (Member # 21466) on :
 
Elavil made me want to sleep allll the time. It was prescribed for me for depression I guess, when I was a teenager and I lost my job because I could not wake up. I just wanted to sleep all day.
So...if you're taking it for SLEEP it might be a good thing. But I remember t also made my restless leg syndrome get a whole lot worse.
 
Posted by Starfall1969 (Member # 17353) on :
 
I also read in the insert that one of the serious side effects that should be reported is "enlarged breasts."

Lol, being as underdeveloped as I am, I thought, gee, that might be a good thing, but then I started wondering what in that medication would cause that.

Is there something in it that stimulates hormones? I'm just getting my hormones back in check, and I really don't want to screw them up again.
 
Posted by psr1 (Member # 22957) on :
 
I have been taking Elavil for several months: really a very small dose. It helps me to sleep well but I do not find it sedating during the day, and it has, for me, fewer side effects than SSRIs. It was prescribed by Dr H in NY for nerve pain: turns out Elavil in combo with Neurontin is very good for that. It has worked well for me.
 
Posted by IckyTicky (Member # 21466) on :
 
Gosh, I wouldn't take ANYTHING that could cause enlarged breasts if I didn't have to!

I don't know, I never read the pamplet about the drug when I was on it (stupid teenager).

If you're just getting your hormones back in check, talk to your dr about another alternative besides Elavil.
 
Posted by feelfit (Member # 12770) on :
 
It can also lower blood pressure. So if your BP is low, like mine, be careful. I took it one night and was lightheaded and holding the walls in the morning....slept well though.

Feelfit
 
Posted by Starfall1969 (Member # 17353) on :
 
Feelfit--

Thans for the warnning. My BP has been low historically, although the last few times it's been taken, it has been closer to normal.

What dosage did you take? My LLMD told me to start at 10mg.
 
Posted by Ahodge01 (Member # 23569) on :
 
Just my experience but worst drug I have ever taken!

Sent electric like shocks down my spine and arms, dried me out terribly and made me feel like I was in a dream... When I say it dried me out I mean everything! It hurt to make a bowel movement because I was so dry!
 
Posted by feelfit (Member # 12770) on :
 
i was at 10 mg.
 
Posted by Keebler (Member # 12673) on :
 
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My experience with Elavil? In the early and mid '90's - Horrible. Absolutely horrible. I tried several times, low dose but it always just clobbered me - huge hangover and much worse depression from it - I could not stop crying. I also passed out a lot during that time but lyme had not yet been dx so it could have been from lyme &/or elavil.

As for the increased daytime sleepiness, vertigo and depression from these sorts of drugs - it came dangerously close to my jumping ship several times. I was a "frequent flyer" for the suicide hotline but they were of little help and told me the meds should work and to stop calling.

They really need some lyme literate volunteers working those hotlines as their regular advice just can't come close to what a lyme patient needs.

Looking back to that time, I'm surprised I survived. For me, these kinds of drugs always made everything worse, not better. It could be because I also have 2 kinds of porphyria, unknown at that time and the added stress to the liver was just too much.

As I recall, it also caused dry mouth - and years later - I learned that the dry mouth can cause major infection problems in the mouth and gums, leading to heart issues.

I was not on long but, over years tried that and all its cousins and peers such as amlitryptoline (sp?), etc. I had the same reaction from each of them - probably due to liver stress.

Magnesium, fish oil, curcumin by day and corydalis by nighted help the most. Adrenal support, too, as insomnia is so tied to high cortisol and adrenal dysfunction. More about that here:

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http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

Topic: NATURAL SLEEP - Links to articles & supplements
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Posted by lymebytes (Member # 11830) on :
 
Each person is so different. My (adult)son did 5mg and he said he felt insane the next 24 hours.

I know a woman who swore it was the best medication she ever took.

All you can do really, is try it.
 
Posted by Starfall1969 (Member # 17353) on :
 
I guess I'll give it a shot tonight, but I'm really nervous about it....

I certainly hope I didn't fill another prescription that I won't be able to take.

Hubby will about flip if that happens.
 
Posted by psr1 (Member # 22957) on :
 
It really was a lifesaver for me: I have had no side effects & am fine during the day. I've had a bit of weight gain but that happened from the Neurontin
 
Posted by psr1 (Member # 22957) on :
 
It really was a lifesaver for me: I have had no side effects & am fine during the day. I've had a bit of weight gain but that happened from the Neurontin
 
Posted by kissygoose (Member # 21314) on :
 
I take it for neuropathy. For me it helped for a while and it does make me tired. I'm on a bit higher dose than you though. And honestly I'm on so many meds its hard for me to keep up with what does what and causes what. But I don't think I've had any major problems because of it.
 
Posted by ctlyme (Member # 9022) on :
 
Funny to have this posted.
My wife just started taking it.Afetr about 2 months of what appears to be a problem with her gallbaldder,although all test (several) have come backk fine, her doctor prescriber her this drug.

He said it will help as a muscle relaxing(anti-spasmadic)which could help with the pain.

After about 2 weeks on (starting at 10mg and ramping up to 20mg)she has reported great improvement.

She looked it up on the internet and found that they use it in Europe as a tretment for sphincter of the odi problems among other things

Her doctor called recently to see how she is doing and said it seems to work for people with her problem- they don't know why but it does.

She reports sleeping much better and feel more refreshed thru out the day.

No more reflux, belching pain etc.
 
Posted by Starfall1969 (Member # 17353) on :
 
Well, I had another quite bad expereince.

I took only a half pill--5mg--and within a half hour I was seriously on edge, screaming at the kids, and eventually went into a panic attack.

Once I fell asleep, I slept until 4am instead of 3am, but then still laid there awake for the longest time.

Now that I'm up this morning, I'm tired (that's nothing new), and my left side is weak, shaky, and the left side of my head feels numb.

I feel like I have more air hunger, and trying to figure out if my heart feels funny.

I think I'll be sticking with Benadryl to help me get to sleep, even if I have to get up and take it in the middle of the night.

The only good thing so far is that the nausea I've had for the past 5 days seems to have subsided. Doubt it's related though.
 


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