Had an echo 3 years ago - MVP with regurgitation. No symptoms other than some pvc's.
Since my lyme dx and onslaught of symptoms last year the pvc's have gotten worse and my heart has irregular beats and races occasionally. I also have some mild chest pain on the left side.
Saw the LLMD yesterday - he suggested a repeat echo but says he sees alot of similar heart symptoms coming from the lyme infection.
Anyone else have mvp or these same symptoms from lyme?
Currently wearing a 30 day event monitor to try and capture some of these episodes - I will see a cardiologist in May to follow up.
Any thoughts?
Posted by sutherngrl (Member # 16270) on :
Yes, MVP with frequent PACs, and occassional fast heart beat. I had MVP years before getting LD, but it has gotten worse since LD. I had an echo a couple of years ago and need to have another one soon.
Posted by Aimee (Member # 20946) on :
We seem to be similar in our issues sutherngrl. Interesting that your mvp has gotten worse since LD too. I am will be curious to see what my repeat echo shows. Thanks for the input.
Posted by migs (Member # 16496) on :
Last time I went off abx, my heart went crazy. I panicked and started eating Amoxicillin by the heaps. A few days later, I was still having an irregular rythm parts of the day, so I finally went to the hospital. I got a 12 lead ECG which was fine, but during my echo/ultrasound I had a few "ectopic beats"...meaning abnormal beats.
The explanation was that we don't have Lyme around here but it can be normal for some people or I "may have had some reaction to the tick".
I was told I am otherwise healthy, so as long as it doesn't cause me more serious symptoms, it is not a concern. However, if anything really changes or causes concern, to come back to the hospital.
It's been bugging me on and off for about 6 weeks now. I am feeling better in all symptoms the last few weeks, but my heart still hitting hard beats and running around 100 sometimes for no reason.
You're not alone.
Posted by karenl (Member # 17753) on :
It is very common with lyme. Could it also be from coxsackie or other bacteria?
Posted by terri3boys (Member # 12993) on :
Anyone have regurgitation in 3 valves like I do? I've got it the worst in the Mitral Valve, but also I'm showing mild regurgitation in the Aortic Valve and the Tricuspid Valve.
This is a "structural" problem, right? I do have an irregular hearbeat, tachycardia, atrial flutter and a couple of other issues. My pulse tends to run fast most of the time. My BP is all over the place............it used to be really low and now it runs high the majority of the time.
My heart does the "pounding" thing where it feels like it's coming out of my chest sometimes, and I also get chest pains occasionally. I also get pain in or between my shoulder blades occasionally.
Right now, my cardiologist is "watching" me and I've been on Toprol for several years. I don't know.........my nuclear stress test was normal, my EKG is a bit abnormal (depending on the moment they take it, it can be completely normal!)
We've got heart issues on both sides of the family and MAJOR stroke issues on my dad's side. I'm 50, almost 51, so I want to try and stay one step ahead of any potential problems.
Not sure I'm with the right cardiologist, but my other "specialists" are paying attention to my heart and how it relates to all of my other issues.
My God........it's 3:43am! I've got to go to bed, but I'm definitely getting a UTI tonight. It came on so suddenly and I'm in so much pain. Of course it's the weekend. I AM going to have to call one of my doctors in the morning ---- this is turning serious fast and I'm miserable.
Sorry to get so off topic, but I just feel like $h!t and I'm rambling.
Good night. Tomorrow will be a better day.
Take care, terri3boys
Posted by sutherngrl (Member # 16270) on :
Before Lyme I had regurgitation in just one valve, now I have it in two.
Posted by lyme in Putnam (Member # 11561) on :
Had mitral valve and regurg for years. After starting iv in 2003, they're gone. It's weird, had v-tac, svt...but no mitral valve and regurg. On a beta blocker toprol.
Posted by Aimee (Member # 20946) on :
Thanks for all the replies. I am anxious to see what the repeat echo shows - I think things are getting worse. My bp is so low already I doubt medication will be an option.
Thanks again.
Posted by Lymetoo (Member # 743) on :
YUP. I have MVP with mild regurgitation .. have had MVP since birth.
Now I have A-fib to go along with it.
Posted by cactus (Member # 7347) on :
I have MVP too - developed it within 2 years after being Lymed.
Kind of always thought it was one of the souvenirs the tick gave me. LLMD thinks the same.
During treatment (I'm no longer on abx, and doing well) I had a lot of heart issues when herxing.
Racing heart, palps, you name it.
All that has settled down now though, now that I am no longer treating and consistently doing very well (about 90%).
Posted by Marnie (Member # 773) on :
We also DO absorb nutrients (and drugs) thru our skin (and rid toxins that way too).
Restoring Mg levels IS important, but
more important is getting ATP levels back up...which is very very tricky.
Posted by Aimee (Member # 20946) on :
Did any of you experience mild chest discomfort/pain with your MVP in addition to the pvcs and racing? Feels more like a tightness. Just curious.
Posted by cactus (Member # 7347) on :
Yes to the chest discomfort. Tightness is a good way to describe it.
Hard to get a deep breath in, almost.
But I will say that this symptom really lessened once we got babesia under control, and I associate it more with babs than with MVP.
Posted by drew (Member # 25220) on :
Hi All,
I've had PVC's for years, AFIB as well. 3 episodes of AFIB since 2006. I also have MVP, but every cardiologist I've ever seen said its very mild, hardly noticeable. Bit by a tick in '05. Never diagnosed with Lyme (despite two conventional Lyme tests that came back "negative"). Finally got Igenix testing, showed a few Pos (one double pos) band and a few IND's (i've posted about my results under another post). You can read it here:
Anyway, I've had a host of symptoms since that tick bite (though to be fair, I had a few symptoms before it, but its been FAR worse since).
I have found supplements of Magnesium and Taurine to be essential to reduce the PVC's. I take about 800 MG's of Mag Citrate per day, plus about 2000Mg's of Taurine. Alot of people also supplement with Potassium (I haven't done that yet) to control AFIB or PVC's/PAC's. ESPECIALLY since adding Taurine I've noticed less PVC's. They aren't gone, but simply less.
I've have visited the following site for a wealth of info on AFIB+PVC's from others that have it. One thing is abundantly clear from it though, proper supplementation of the "essential trio" (Mag, Potassium and Taurine) is how people seem to limit Afib/PVC's. Here it is:
I also supplement with D-Ribose to up ATP and help energy wise. IT also reduces some of my chronic muscle/joint pain. Though truth be told, I think my body is used to the dose I've been taking (5-10grams per day) because I haven't had as much of a gain from it lately...not sure if my body is just used to the dose or what....
I also add a B-Complex, C, D to my regimen as many of my vitamin levels have been low in the past (I've learned this can be from Lyme).
I am going to see a good LLMD (never have before) to discuss further diagnosis. I've read here that even POS on one band can mean Lyme, I just want someone knowledgable to tell me yes or no to Lyme.
It would explain everything for me. The AFIB, fogginess, constant aches pains, intolerance to alcohol and other foods (garlic, gluten, etc).
Sorry for the long post, was trying to keep this about AFIB/PVC's, but I just got carried away...
Hope some of this info helps!
Drew
Posted by Aimee (Member # 20946) on :
Thanks Drew and Cactus - helpful info. I think some of the tightness is definitely related to Babs - still treating that and it is less frequent. But I think some if it is the MVP as well.
I'll have to run the supplements by my LLMD but they are really good suggestions. I'll be checking out all the links you posted Drew.