I've been on oral antibiotics for 13 months and about to start 4 weeks of IV Ceftriaxone. Experiences and suggestions welcome.
Thanks!
[ 04-12-2010, 11:37 PM: Message edited by: ecr1 ]
Posted by azdaisy (Member # 25357) on :
well hello there! I did about 100 IM Ceftriaxone before I caved and got my PICC put in last September. From the first injection the ringing in my ears took off. which told me the bugs don't like it! So I LOVE it!! KILL THE BUGS!! I have been low and slow and incredibly weak, low stamina. this is NORMAL for IV ABX!! you must expect to be worse first. NO SUGAR NO FLOUR is crucial if you are at this step! Or beware the Thrush monster!!! besides bugs love sugar and I will be damned if Im going to feed them!!! I also take Metronidizole to open cysts so ABX can work better. and Questran or Cholestyrimine is also really necessary to help clean up the neurotoxins that this level of bug warfare brings!!! check out shoemaker's site http://www.chronicneurotoxins.com/ otherwise my brain turns to sludge- when I take brakes from it I get really foggy! like misspell my name.... Let everyone that is in your support circle that you will be needing more help for a while. I was really afraid of the PICC line and it's nothing compared to the injectables! really easy. Are your meds covered by insurance? if not I am happy to help you find out sources. Breathe and trust the process. Have you seen the under our skin movie? it helps to see other people and thier recovery processes. Best to you!!!
Posted by KS (Member # 12549) on :
IV ceftriaxone was a good drug for me...some of my symptoms (i.e. internal vibrations) completely disappeared. Unfortunately my liver enzymes climbed to almost 900 so be sure someone is monitoring you liver.
Anyway, it didn't cure me...I did another 18 months of a variety of oral antibiotics to get me well.
Posted by gatorade girl (Member # 24896) on :
Could someone please pm me resources bc my iv antibiotics are not being paid for by insurance ? I am on uv rocephin and is helping me.
Posted by ecr1 (Member # 18660) on :
Thank you for the notes!
azdaisy, my meds should be covered by insurance but if not, I will PM you. Thank you for your advice and offer to help. I am looking forward to doing some form of IV for even just a short while. I have responded well to oral abx over the past year but not completely better. So hoping the IV will make one final push to knock it all out. I have seen under our skin. I think it is a good documentary for sure.
KS, thanks for advice on watching liver carefully... I will do so.
More experiences welcome!!!
Posted by ecr1 (Member # 18660) on :
up
Posted by sammy (Member # 13952) on :
If insurance stops covering you IV meds, give Infuserve a call. They have fair prices (better than local pharmacies) and good customer service.