I just received my labs from my primary. It states that I am negative for Lyme, but it also shows that my antinuclear antibody test came back positive. I know that this could mean an autoimmune disease, but I'm wondering if anyone has heard of this happening and it being Lyme.
Also, is there a connection between all of these things and a low vitamin d?
[ 04-19-2010, 09:00 PM: Message edited by: kbrown2 ]
Posted by Pinelady (Member # 18524) on :
Yes. Many have ANA to some degree. Did they address the titer and identify it.
I have noticed most have smooth muscle, speckled.
If you did not challenge before the test or test with a tick specific lab such as Igenex, I would not give up with symptoms.
MANY labs cannot find it. You can find a LLMD to help you do this as it is a clinical diagnosis and he can treat for a while and then test.
Or you can get your MD to give you doxy for a month and then go off for 2 weeks and draw and ship to Igenex. It is whatever you decide.
Posted by Pinelady (Member # 18524) on :
It is a good idea to always get copies of all test results.
Many have found that they did have specific bands that were ignored by their doc.
because they followed the wrong guidelines. Any bands in Lyme should not be dismissed.
Posted by kbrown2 (Member # 25169) on :
Thank you for your quick response. I was treated for Lyme and a co infection a few years ago by a lyme doctor and I never officially tested positive for it.
My ANA is homogeneous I have a doctor's appointment this week, but I know she wants me to go to a rheumatologist. I just want as much info possible before she starts sending me to other doctors.
Posted by Pinelady (Member # 18524) on :
If you have had it that long your D will most likely be low. You may have a low sed rate and the rest of the blood may look great. Lyme can be intercellular, but if you look at protein it may be on the low side. Which would not make sense. If I were you I would get a appt. with a LLMD if you have not already. Most Rheumies do not recognize Lyme for what it really is.
quote: " Of patients with antibiotic refractory arthritis
none in whom followup data were available
developed chronic arthritis, joint deformities, or recurrence of infection, supporting current treatment guidelines."
Unless you can find a rare one- http://www.ncbi.nlm.nih.gov/pubmed/20375899 The spirochete also modulates its surface protein profile upon infection and induces anti-inflammatory cytokines, favoring survival of the pathogen. So they may sit there and spew out their cytokines, Make it hard to find on the tests, and sing their song, "Can't Touch This".