Anyone else? When does it go away? Which treatment seemed to make the most improvement? Which infection do you feel caused the most heart issues?
Had been having pvc's and random rapid beats for a month now, currently on a 30 day event monitor. But Sunday I started with tightness and pain in my chest which was distressing enough to prompt a visit to the ER and turned into an admittance and stress test on Monday.
The stress test was normal but I follow up with the cardiologist on Thursday of next week to talk about an echo.
As with my last blood draw, my potassium at the hospital was again low. I know this can affect rhythm but didn't think this could explain the tightness and discomfort.
I of course had to explain my lengthy list of abx and other medications which was not fun as usual. Was told once again to stop seeing this doctor who was prescribing all these antibiotics and go see an infections disease doctor. Then read the riot act about how I will become resistant to all these antibiotics and then where will I be and don't you know my hospitalist had all the same symptoms I did and once he started taking B12 injections he was fine. Have I had mine checked? I could continue my rant here but I'll stop. I'm just frustrated with the hospital, with the doctors and with this dumb disease.
Hoping someone will have some insights on the heart issues. At least I know I don't have any blockages which I guess is helpful.
Thoughts/Comments appreciated.
Aimee
Posted by Keebler (Member # 12673) on :
- What does your LLMD say about all this? I'd look to him/her for answers as lyme changes everything.
Also ask for "emergency" training. Things you can either do yourself in rough patches &/or education guides to distinguish whether an E.R. visit will help.
Also, best to avoid sharing your LLMD's name with doctors who are so uneducated. Often, LLMDs get reported during such instances. And, while the LLMDs usually do nothing wrong, an uneducated person making any kind of report can cause havoc - and worse - for a LLMD.
So, the more we can learn to take care of ourselves in emergencies, the better. The more we can stay away from other doctors, the better. Within reason, of course. But, you'd be surprised just how many heart symptoms can be relived with magnesium. There is a lot we can do on our own.
Take a First Aid Class with the Red Cross. Get an emergency homeopathic kit - and have a naturopathic doctor (ND) or acupuncturist (L.Ac.) teach you a few things. Maybe get a group of friends together to pay for a personalized class.
Topic: To everyone with cardiac symptoms please read! -
Posted by Aimee (Member # 20946) on :
Keebler,
Thanks for the links and info. Will try and find some time to watch the video.
Of course I didn't share my LLMD's name with that crazy ER doc! I am well aware of the damage that could do. I just tire of defending my illness as legitimate. I know they likely will never get it, but you never know who or what will tip the scales and change their minds so I continue to try.
I have actually talked to my LLMD about my heart issues, he has said these things are commonly seen in Lyme patients and recommended getting another echo but didn't feel it was cardiovascular disease. I was trying to wait till my required annual physical to have my primary make the referral for the echo but my symptoms were concerning enough to warrant the trip to the ER.
I wish there was a ND here that I could see to compliment my treatment but we are in a small small town and there are none. Those of you who have this resource available are blessed!
Hoping others will have some additional comments and thoughts. Hearing similar stories is always comforting!
Posted by Keebler (Member # 12673) on :
- Aimee,
My heart goes out to you. Due to energy constraints, I'm pretty task oriented with "try this - or that." Sending some hugs your way. -
Posted by GiGi (Member # 259) on :
I haven't had time to read it all, but make sure that wisdom teeth are dealt with, whether still in the mouth or not. Heart issues often start in that area of the mouth.
Search here - I have been posting on that subject for many years. Do some research on Christopher Hussar, DDS DO etc. He is t h e expert in that area.
Look at some of my posts here - wisdom teeth - will bring them up. Check the dental - organ chart.
Take care.
Posted by Fordace (Member # 14874) on :
make sure your taking ample amounts of magnesium everyday to start with Aimee,
I could get most of my tachycardia and rapid sessions to go away if I pounded supplements.
Now that I am on the IV (week 7), all my heart symptoms are gone !@!
So, maybe it is that time, please take care..Rich
Posted by kday (Member # 22234) on :
I have been through everything you have.
21 day event monitor (Showing tachycardia, palpitations, PVCs, PACs, SVTs)
Several echos. All normal.
Oh, and low potassium is a problem for me as well. I drink coconut water every day for potassium and since it's a very good electrolyte enhancing beverage. I personally find it refreshing to drink. According to doctors, it has never been "dangerously" low. Normally just a few points. Lyme robs your potassium as well as your magnesium.
Diagnosis: Chest pain of unknown cause. I think the bacteria is just stressing your heart.
If I were to make a guess, I would guess they won't find anything structurally or electrically wrong with your heart. With all the chest pain I had, and since heart problems run in our family, it was hard to believe.
Posted by Rumigirl (Member # 15091) on :
Did anyone check your thyroid levels? If not, that should be done. Sometimes, if either your somewhat hyperthyroid, or, if you are hypo and taking meds for it, you can suddenly go hyper from needing less thyroid meds.
This has happened to me several times. And the sxs were truly scary, painful, and going on a long time. Ended up in ER.
It's probably all from Lyme & co. But get your thyroid levels checked throughly by someone who knows the proper way to do this (ideally an LLMD).
Posted by Aimee (Member # 20946) on :
Thanks Rumigirl, I have recently had my thyroid levels checked and they are very much within normal limits. I appreciate the suggestion!
I am coming to believe it was all part of a really nasty herx as I have flared with alot of symptoms over the last 5 days. I am hopeful that everything will subside in the next few days and then I'll know.
Doesn't make it any less frightening but at least it would be a reasonable explanation.
Thanks again to all who posted, I appreciate it!
Posted by kidsgotlyme (Member # 23691) on :
My daughter had to go to the ER a couple of weeks ago for this same thing.
Once she started taking more magnesium, she has gotten a lot better. We use a chelated formula.
I've read that it is better absorbed in this form.
Christie
Posted by Beachinit (Member # 21040) on :
I have had extra heart beats since 1995. Atrial Wenkebach then ( a recurring pattern of PAC's), now pac or pvc I think some of each by the beat pattern (compensatory pause if PVC). I had cardiac cath back then for chest pain I was having. The cath was perfectly normal. I did not have Lyme disease then as far as I know. Mine seem to come in afternoon or evening, especially after a meal when sitting down relaxing. No dizziness, no chest pain at all and I work out 3X/wk including 15-20 minutes on a treadmill. So while bothersome they are benign I think, and yes I have some oranges, veggies, magnesium and that may be a help.
Beachinit.
Posted by psr1 (Member # 22957) on :
I have been on Bicillin for just about a month and have developed a consistent heart rate of 128. I do occasionally feel a bit out of breath when I exert myself, but have no air hunger - don't feel out of breath or anything - most of the time don't notice it. I see on the Bicillin side effects that it can cause tachycardia: has anybody had this experience: or is it just herx? Any input appreciated