So a co-worker of mine collapsed two weeks ago and now, a team of 16 doctors (no infectious one) diagnosed him to have lupus, Addition's disease, low (or no) plalete, Crohn's disease, plus eye floater with strange shape of hands (he said), and a couple more other serious illnesses. No doctor is able to explain how he got all 6 or 7 serious diseases all at once, and in his words, they are doing a medical jornal on him. He stays at OSU hospital, where the doctors insist no infections involved in his case.
Well, you know, there is no Lyme in Ohio.
What should I say to him?
Posted by Pinelady (Member # 18524) on :
IGENEX?
Posted by lymie tony z (Member # 5130) on :
First of all it's Addison's disease...
Lupu, ALS, MS, Crohn's Disease, Ankylosing Spondylitis, etc and so on were all first
diagnosed by IDiot doctors from Ohio back when I first became ill...not to mention that
afterthe Igenix lab results came back positive/serum and urine....all of a sudden the
symptom of rashes left my doctor files and strangely were replaced with
"Attitudinal Problem"
and "Alcholic, substance abbuser and pain med drug seeker"
type entries were made in my doctors reports.
All along the edges were fax machine dates and times and phone numbers so my PCPoophead of a
duck could send out the "ALARM" to the eleven or so ducks that misdiagnosed me to
line up with him and check my records verrrry closely!
I was'nt interested in suing anyone at the time! I'm still not....
but, after I read the panel results I may whistle a different tune...
what the he!! I have nothing to lose after the bancruptcy anyway!....LOL!!!
What can they do....?
Shave my head, Put me on an LPH and send me to Viet Nam??? HAH! zman
Posted by sickpuppy (Member # 23846) on :
yes Igenex and an llmd.
Posted by sammy (Member # 13952) on :
So Sad. Our doctors (in OH) are clueless. They naively trust their infectious disease colleagues.
Posted by Robin123 (Member # 9197) on :
Hey, zman, good to see you here again!
Remember that not everyone tests positive who has Lyme. So I think he needs to see an LLMD for clinical workup and treatment.
Posted by sutherngrl (Member # 16270) on :
Needs to see a LLMD!
Sammy, those ducks are not naive! They ignore all the facts on purpose.
Posted by wtl (Member # 19883) on :
While everyone in the office is sending him flowers and cards, I might just send him a printing out of this thread, a copy of UOS, and IgeneX contact info.
I hate sticking my head into someone's business, but I guess this is too important to ignore.
Posted by sickpuppy (Member # 23846) on :
way too important to worry about minding your business!
Posted by Keebler (Member # 12673) on :
- He needs to be sure to AVOID STEROIDS. Also know that a LUMBAR PUNCTURE is not a good lyme test but probably the only one they will give him.
I hope you can talk with his family - share ILADS and IGENEX and get him out of the state if at all possible. Does he have any good friends or relatives in a lyme-literate state?
Would his insurance transfer or can he afford to pay out of pocket for a LLMD?
It's times like this when I see just what a travesty this can be for families in states where they are lyme ignorant. I live in another state where it is declared that "no lyme here." -
Posted by wtl (Member # 19883) on :
I went to the hospital with articles I gathered and UOS. I sat and watched the film with him, and for the first time told him that my wife is under treatment. But i realize that my wife is not a good case since she has so far not yet responded to the treatment to see any improvement. But I think both he and his new wife got the idea.
I also passed on to him our llmd contact info.
They seem to be open-minded but while we were watching the film, his hospital doctor came in. He didn't say much but when I left, he was giving me a lecture, something in the nature of consequences of influencing patients with inaccurate medical information. He reminded me again that there is no Lyme in the State.
I am going to checking on him again but as far as I know, he is still on IV steroids. I hope at least he is open-minded enough to call the doctor I gave the name to him.
This whole thing makes me feel somewhat sad, and responsible...feels like watching someone walking onto his sick bed right under my nose.
Posted by Parisa (Member # 10526) on :
When you send your co-worker info on Lyme, also pass on www.roadback.org It's a website devoted to the treatment of autoimmune conditions with antibiotics. The lupus falls right into that category.
My husband became seriously ill almost overnight and the doctors labeled him with autoimmune diagnoses. First it was scleroderma, then undifferentiated mixed connective tissue disease and then dermatomyositis. They can't pinpoint one disease because the symptoms all overlap.
Anyway treatment of his autoimmune condition with a Lyme protocol made it go away. Tell your coworker there is hope if he doesn't let these supposedly knowledgeable doctors kill him.
Posted by wtl (Member # 19883) on :