This is topic 14 yr old acting talking like a toddler - Found Answer in forum Medical Questions at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/93832

Posted by Jasmin (Member # 19959) on :
 
My son has tourette's syndrome, so weird behaviour isn't abnormal around here. What I thought was just another TS related tic seems to be taking over him. He talks like a toddler, and he's almost 14. He'll repeat things like an excited three year old... "I'm happy! I got a new game! I'm very happy, it's new! It's not broken!" And he'll tell me the same things over and over. It's similar to a tic in that way, but it's affecting the way he communicates with me more and more each day. If he wants to know what is for dinner, he'll ask me with wide eyes and a toddlers vocabulary - just like someone would do if they were imitating a toddler. My younger son says he sounds so innocent like a little kid and it makes him feel sorry for his brother.

I talked to my doctor about this, and he didn't really have any answers. Just said that the war isn't over and we've seen some breakthroughs but no home runs yet. I'm going to make an appointment with another doctor tomorrow. I'm getting scared.

Has anyone else seen or heard of anything like this?

[ 05-03-2010, 11:36 AM: Message edited by: Jasmin ]
 
Posted by kidsgotlyme (Member # 23691) on :
 
Has your son been tested for lyme?? My daughter was diagnosed with tourette's when she was four.

She had all kinds of neuro problems. She had OCD, ODD, intrusive thoughts, vocal tics, motor tics, ADHD symptoms. It was awful.

She also had very painful knees since she was very small.

She is now 14 and was diagnosed with lyme last Sept. We now suspect that all of those symptoms were from lyme.

It makes me sick to think of all of the torment she and my husband and I have been through because of a wrong diagnosis.

Hope you find the answers you need..
 
Posted by Jasmin (Member # 19959) on :
 
Yes, he was tested for lyme. It seems we have been traveling the same path. He was diagnosed with lyme less than a year ago as well. One of his earliest symptoms was painful knees. I think he has congenital lyme.
 
Posted by BoxerMom (Member # 25251) on :
 
http://www.webpediatrics.com/pandas.html

Here's a link to start researching PANDAS. Don't let the autoimmune part freak you out. It's possible that symptoms resolve with adequate treatment for the infection.
 
Posted by METALLlC BLUE (Member # 6628) on :
 
Typical symptoms and a typical diagnosis of a child with Cogenital Lyme Disease. Dr. Jones is the way to go.

I'm surprised Autism wasn't thrown in there just for kicks.

With proper treatment most children see significant progress.
 
Posted by elizzza811 (Member # 24713) on :
 
Is Tourette's similar to autism?

Autism may be Linked to Electromagnetic Radiation Levels In Mother's Bedroom During Pregnancy:
http://electromagnetichealth.org/media-stories/

Report Claims Link Between Autism and Mobile Phones:
http://www.cellular-news.com/story/23300.php

Research by Tamara Mareia, CCN and George Carlo, M.D., on correlation between autism, cell phones, and wireless computers:
http://www.internalbalance.com/CELL%20PHONE%20USE%20AND%20AUTISM%20RESEARCH.htm

WiFi and EM Radiation - The Rest of the Autism Story:
http://www.naturalnews.com/022573_autism_mercury_heavy_metals.html

How Cell Phones May Cause Autism:
http://articles.mercola.com/sites/articles/archive/2007/11/27/how-cell-phones-may-cause-autism.aspx

Olmsted on Autism: 1 in 10,000 Amish
http://www.ageofautism.com/2009/04/olmsted-on-autism-1-in-10000-amish.html

U.S. doctor links radio waves from cell phone towers to cancer, Azheimer's, senility, dementia, Parkinson's and Autism:
http://www.avaate.org/article.php3?id_article=1140
 
Posted by Jasmin (Member # 19959) on :
 
Thanks. I started a thread here - http://www.latitudes.org/forums/index.php?showtopic=7965&st=0&gopid=65014&#entry65014 -

and PANDAS and PITAND came up. I am going to look into it today.

Tourette's may or may not be part of the autism spectrum...

I live on the same block as a cell phone tower. I

can't afford special paints or sleeping nets at

the time. I think Dr.K's addressed the EM

pollution at a Lyme induced autism conference. Interesting.
 
Posted by JT's Mom (Member # 24553) on :
 
I find this thread very interesting. My son started having motor tics at age 4... 6 months after he had 2 tick bites. He has had several motor tics come and go since then (he's now almost 6) with one that remains constant (every 1-2 minutes). He was just diagnosed with Lyme 2 months ago. He basically presents as having Tourette's, though we have never received an official diagnosis.

Jasmin - I am curious if you have seen any improvement in your son's tics since he has been on antibiotics for almost a year now?
 
Posted by Jasmin (Member # 19959) on :
 
Unfortunately not. [Frown] We have seen an improvement in other symptoms though.
 
Posted by grandmother (Member # 19908) on :
 
Time to go on aggressive IV with HBOT?

[group hug]
 
Posted by Jasmin (Member # 19959) on :
 
I don't have the funds for that. [Frown] I just hope this goes away. I would take the noisiest tics every day for the rest of his life it just meant I had my son back. [Frown]
 
Posted by Carol in PA (Member # 5338) on :
 
You may be able to reduce the tics with magnesium.

Facial and Eye Tics in Children:
The Links to Magnesium Deficiency
http://www.ctds.info/tics.html

Carol
 
Posted by Jasmin (Member # 19959) on :
 
I wanted to share an important link -
http://webpediatrics.com/pandas.html

The PANDAS is strep induced, but the PITANDS is not limited to strep.

I think my son has Lyme induced PITANDS.

quote:
Suggested diagnostic criteria for PANDAS:
Absolute criteria

Sudden onset (applicable to patients >5 years of age).

Major criteria

Separation anxiety (type 1* or type 2**)

OCD symptoms present

Adventitious movements

Anorexia

Minor criteria group A (psychiatric symptoms)

Coprolalia

Sleep disorders (insomnia, night terrors, refusal to sleep alone in the room)

Behavioral regression other than separation anxiety ("baby-talk", temper tantrums, behaviors unbecoming of actual chronological age)

Hyperactivity, inattentiveness, inability to concentrate

Aggressiveness

Significant deterioration in learning abilities (particularly in mathematics)

Hallucinations

Minor criteria group B (physical symptoms)

"Puppet-like" spoken and body language; "hyper-alert" look or demeanor

Presence of wide pupils particularly during the acute stages of disease

Tics (motor, vocal, complex)

Urinary frequency and/or bed wetting and/or daytime accidents

Demonstrable short-memory loss

Fine motor skills deterioration including dysgraphia

Increased sensory responses (to smell, sound, light, touch)

They are treating these kids with IVIG. I'm going to start a thread on it.

What is also frightening is that they're treating the same children with STEROIDS! Looks like the

PANDAS doctors and the Lyme doctors need to have a chat.

Anyway... I share this for parents that might have the same symptoms with their kids.

I don't know why, but it is comforting for me to have a name to go with the group of symptoms.

My son has continued to get much worse. Please pray.
 
Posted by Jasmin (Member # 19959) on :
 
http://www.voiceamerica.com/voiceamerica/vepisode.aspx?aid=43934

A friend also sent me this.
 


Powered by UBB.classic™ 6.7.3