I have had severe leg pain since being diagnosed 7 1/2 years ago. It's honestly one of my most annoying symptoms as I never know when it's coming on and I never know how long it's going to last. (Typically my pain medication will alleviate it a lot though.) It's mostly on the left side although there have been a few occassions where the right leg hurt.
The only time I can exactly pinpoint when it's going to hurt is from a few days before it's going to rain up until the day it actually starts to rain (typically the pain actually lessens when the rain is actually happening). No weather.com needed in my house! lol
The pain is bone deep and doesn't really seem to be radiating out of a joint and I've been told that it doesn't appear that I have arthritis in my knee (no MRIs of leg or anything like that, just by the doctor looking).
Does anyone else know what could cause this?
Posted by TnFlowerChild (Member # 24717) on :
Sheri, I wish I knew! My left leg has hurt for over 2 years now with little relief. MRI of my knee says all is fine and I must be
It is at my hip and always in my calf and often in the knee. The soles of my feet (both) have been burning.
Is that one of the co's???? Any suggestions for relief... anyone???
FlowerChild
Posted by littlebit27 (Member # 24477) on :
I would love to know too, I have the same pain. And it's funny you said about the rain because the last couple of days it's been hurting really badly and it's raining today, but my leg isn't hurting as bad now. That IS weird!
My pain is also always in my calf and behind the knee but it's not joint pain, but usually my right side only.
Posted by lymebytes (Member # 11830) on :
I also have had severe leg pain, muscles, tendons, joints and nerves.
My LLMd said it sounds like Bart or Babs. I eliminated Bart and it has lessened some. I have not done Babesia treatment.
I am starting to believe that babesia tx would eliminate what is left of the leg pain because (oddly) Artemisinin gets rid of it entirely. Babesia becomes resistant to Art rather quickly when used alone and I have noticed after a few weeks on Art - leg pain can return.
I have seen at many forums over the years that leg pain is usually Babesia-related.
But to confuse matters more, when my son had LD at age 7 his leg pain nearly put him in a wheelchair - he didn't have any co-infections and recovered completely w/IV for lyme treatment.
Posted by kellephant (Member # 24885) on :
deep bone pain in my legs is my worst symptom... i can't stand it! i don't know what to tell you, except that i sympathize! my pain is so bad i used to think i had bone cancer :/
Posted by slcd (Member # 5708) on :
As crazy at it sounds I've had that same thought cross my mind! I know I don't but when I try to explain to people that it's this bone deep pressure built up in my leg they look at me like I'm insane!
Posted by Bugg (Member # 8095) on :
Vitamin D and magnesium (Mag Tab SR) helped my deep bone/throbbing leg pain...It's still there but it's manageable now....When it flares, I increase my dose of Vitamin D.....I take the magnesium THROUGHOUT the day....
FYI-For what it's worth, I was treated for all co-infections including babesia for many months and still had the leg pain; in fact, stamina/pain in my legs has been one of my biggest issues....
So sorry you're suffering...It's maddening and so debilitating.....Wish I had the magic cure for all of us....
Posted by kellephant (Member # 24885) on :
sheri, nobody knows what i am talking about either! it's understandable though, because before i started experiencing this pain i didn't know what it felt like and wouldn't have been able to comprehend it. when i first started complaining my doctors just wanted to test me for arthritis, but i'm like "it's my actual bones, not my joints!" and they'd act like i was crazy Posted by cantgiveupyet (Member # 8165) on :
does anyone have tight leg muscles...that get worse with walking, sitting or standing? it is so odd that my upper body is not this tight but the lower half is. It is very debilitating and the only explanation I have been given for it is SI joint dysfunction...
Posted by littlebit27 (Member # 24477) on :
Trying to explain pain symptoms of Lyme to anyone without lyme is worthless. They won't understand. I try to explain and people say oh I understand but they can't possibly understand this pain.
The other symptom I have that people look at me like I'm crazy when I explain is skin sensitivity. I feel like I have bruises all over my body...everywhere. But when I say my skin hurts people look at me like I'm crazy, lol.
Posted by slcd (Member # 5708) on :
OMG! I get the skin sensitivity too! Yesterday I had a slight itch and scratched my arm lightly and it felt like a freaking cat had clawed my arm!
Does anyone else notice that the cold (whether natural or a fan blowing or anything) makes their pain worse?
Posted by LightAtTheEnd (Member # 24065) on :
I get pain in my right leg, mostly centered on my hip, but also sometimes including one or many muscles. Sometimes it is the whole back of my leg, or sometimes my hamstrings get really tight. Occasionally I have some pain in my knee that seems to radiate from the hip when the hip is bad.
I get really stiff sitting in my chair at work. When I get up after sitting for an hour or more, sometimes I am so stiff I can hardly stand, and I have trouble walking at first, until I loosen up in a minute.
Sometimes I get the same pains in my shoulders and upper arm muscles. Sometimes I just feel like all my muscles are sore, including my abs, like I have overused them the day before.
My Lyme pains and other symptoms do not seem to correlate with the weather, but they usually line up with PMS. I have an old injury with arthritis in a joint on my left side, and it does get worse before it rains. Oddly, Lyme has left that joint completely alone; I would have thought it would attack my weak points, but not so.
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