This is topic selecting an LLND in forum Medical Questions at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/94334

Posted by eightybarb (Member # 24968) on :
 
How to choose an LLND if your LLMD did not refer.
 
Posted by eightybarb (Member # 24968) on :
 
^^
 
Posted by Pam08 (Member # 19203) on :
 
Good question!! I am finding this difficult as well.

I asked around in support groups for LLND's in my area and haven't been successful. Even people in my local online group all gave me someone different. There wasn't one that stuck out. And most hadn't been seeing them for very long so it is too soon to even see how effect any of them are.

Then I find ones by googling that say they can treat lyme disease but just because they say that doesn't mean they are any good at treating it. You can't just take their word.

So yeah...I am having a hard time as well. Word of mouth would be preferred but I can't seem to find one that is recommended by more than one person.
 
Posted by Hoosiers51 (Member # 15759) on :
 
I go by cost. I feel some ND's are all about the money, and some just genuinely want to help people, and are willing to work within your budget. The ones that don't listen when you say you can't afford this or that, I'd avoid.

That's not to say all the costly ones are all about money, but it seems like some ND's will do tons of tests before they treat you ($$$$), while others will just find easier or more efficient ways. Some things obviously will need to be tested, like hormones.

Knowledgable about Lyme is not a requirement, in my mind. I usually am just looking for someone to support my body through all this, so understanding Lyme is not essential, because my LLMD treats me for that.

If your insurance covers chiropractic care, you might be able to find someone that is covered by insurance for some things. I had a good ND that did muscle testing that my insurance was covering the office visits. Nice!

For Lyme, I just depend upon what I read on Lymenet and things like Buhner's book Healing Lyme, other Lyme books.

A lot of the info is out there, you just gotta know where to look. I wouldn't look to an ND for Lyme treatment unless an LLMD recommended them. It is just too complicated of a disease for the basic ND to be an expert in. But there's not reason they shouldn't be able to support your body as it fights.
 
Posted by Keebler (Member # 12673) on :
 
-
First look to the national registers for licensed NDs. Then, ask for a 5-minute conversation so you can learn a bit more about their education. Let them do the talking. Listen.

Usually a very short phone conversation is gratis.

You can also ask what fee (if any) there would be for a 15-20 minute phone call so you can better assess if this would be a good fit.

Surely, it is never enough to go on their saying "yes, I treat lyme" I've done that and it was a mistake. I've had many different NDs and only one really knew.

If you can find an ILADS-educated LL ND, that is best. Even then, you will need to learn more about their style and philosophy. What books do they recommend? Who are the top LL authors in their estimation?

Who taught them about lyme and about other tick-borne infections?

How do they treat? If they say they let the body get stronger and then it will handle infection on its own, run . . . run . . . run.

Lyme changes everything about a person's body. If they don't know about lyme, they don't know enough to treat you -- even if just for support for your LLMD's protocol.

I have a full post on this topic somewhere in my computer. But the leaf blowers are coming down the parking lot and I must evaporate for a while.

I'll come back later and see if I can add to this.
-
 
Posted by Hoosiers51 (Member # 15759) on :
 
Other things you could consider are seeing an LLMD that uses herbals as well as antibiotics.....or finding an LLND that other people's LLMD's have recommended to them.

You just wanna make sure *someone's* LLMD has recommended this person, unless you aren't looking to have the ND treat your Lyme.

I think we could better help you if you gave us more detail into what you are looking for.

Are you looking for someone to replace an LLMD, so you don't have to use antibiotics? If that's the case, there are only a handful of people in the country that would actually be able to treat your Lyme without antibiotics....so I hope you are willing to travel, depending on where you live.

A lot of people do things like Buhner, Cowden, etc....which you don't necessarily need someone helping you with. All that info can be found in books or online.

Please tell us more about what you are looking to do.
 
Posted by TerryK (Member # 8552) on :
 
You've gotten some good advice but first I would register here and see if there is an LLND that is ILADS trained.
http://www.lymediseaseassociation.org/referral/

Terry
 
Posted by Keebler (Member # 12673) on :
 
-
To compare and contrast the work of authors regarding some of the most common complementary methods. Each author is ILADS-educated.
-----------------------

http://www.lymepa.org/html/dr__j__burrascano_september_20_0.html

Burrascano's Powerpoint SLIDE presentation 9-20-08

------------

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

------------
As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----------------------
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages

===========================

Chapter 1 from the book "Insights Into Lyme Disease Treatment"

http://www.lymebook.com/steven-harris

--------------

http://www.amazon.com/Insights-Into-Lyme-Disease-Treatment/dp/0982513801/ref=sr_1_1?ie=UTF8&s=books&qid=1272566632&sr=1-1

Insights Into Lyme Disease Treatment: 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies

Connie Strasheim (Author), Maureen Mcshane M.D. (Foreword), Thirteen Lyme-Literate Doctors (Contributor)

==================

http://www.klinghardtneurobiology.com/LymeProtocolOct09.pdf

A Treatment Guide: Lyme and other Chronic Infections

by Dietrich Klinghardt, MD, PhD

October 2009 - 87 pages

-----------

http://www.klinghardtneurobiology.com/popups/PC1.html

Online Radio Interview with Dr. Klinghardt

====================

Important information about treatments options and support measures, supplements and self-care:

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com

========================

http://tinyurl.com/5vnsjg

Book: Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections - by Stephen Harrod Buhner

website: http://planetthrive.com/2009/08/buhner-healing-lyme-program/

-----
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/86857

Topic: Buhner Healing Lyme Q & A links

================

http://tinyurl.com/5drx94

Lyme Disease and Modern Chinese Medicine - by Dr. QingCai Zhang, MD & Yale Zhang

web site: try www.sinomedresearch.org and use "clinic" and then "clinic" for the passwords or call Hepapro through www.hepapro.com

================

www.lyme-disease-research-database.com/lymenutritionfile1_files/Integrated-Approach-DAN.pdf

HEALING LYME DISEASE: An Integrated Approach to Curing Chronic Infection

Daniel A. Kinderlehrer, M.D. (2004)

============================

http://www.dancingviolets.com/media/pdf/LymeDisease.pdf

Chronic Lyme Disease and Co-infections: Clinical Overview (R. Snow)

======================

http://www.steveclarknd.com/LymeDisease.htm

Your Path to Wellness (Clark)

=====================

From Bea:

This is a very good overview of lyme and coinfections and includes some case examples and herbal formulas of a treating herbalist.

http://tinyurl.com/yh6w892

Note -- The document is 81 pages long so it may take a couple of minutes to load.

=========================

RIFE

http://www.lymebook.com/lyme-disease-rife-machines-bryan-rosner

Book: Lyme Disease and Rife Machines by Bryan Rosner

=======================

Not at all about lyme, but a good site for articles about supplements:

www.vrp.com

In their search bar, just pull down from products to articles for access to a fabulous library backed with solid research citations for every article.

=================

More specific to herbs and how they work in the body. GREAT BASIC BOOK just not about lyme (other than the page on Sarsaparilla):

The One Earth Herbal Sourcebook (Tillotson, et.al.)

http://oneearthherbs.squarespace.com/one-earth-herbal-sourcebook/

====================

You can also see medical abstracts for many supplements at PubMed:

http://www.ncbi.nlm.nih.gov/sites/entrez

=====================

www.itmonline.org

ITM - Chinese Medicine research site

======================

The Cowden protocol is not listed here other than in the "Insights . . . " chapter. That can be found through a Google search. Some LLMD and LL NDs incorporate that.
-
 
Posted by eightybarb (Member # 24968) on :
 
Thank you all.

Hoosiers,
No I did not want to stop abx. I am looking for one who is has knowledge in Lyme, can give supplements/herbs, offer detox, nutrition.

My insurence does cover for Chiro care if a Physician refers.How much do they charge?. I am open to Chrio also.

Thank you,
Barb
 
Posted by massman (Member # 18116) on :
 
Where is Germantown ? I may know some chiros in your area that may some about Lyme.
 
Posted by Keebler (Member # 12673) on :
 
-
For D.C. (chiropractors) or D.O. (doctors of osteopathy) you might check the site for UPLEDGER INSTITUTE and find one who does their style of gentle cranial-sacral therapy.

Whomever you see, be sure they never suddenly twist your neck.

Some D.Cs. and D.O.s have additional educated in nutrition and nutritional supplements. (vitamins; minerals). D.C.s and D.O.s can be very helpful with body work. Be sure to ask about their training, techniques, etc. as there is a wide variety of styles.

NDs will have four years of course work mostly in herbal medicine and physiology - with some emphasis on the nutritional supplements (vitamins).

L.Ac.s generally have a little less formal training in herbs than N.Ds. but still, a couple full years worth.
-
 
Posted by eightybarb (Member # 24968) on :
 
massman your mail box is full.

Germantown is in MD. I am willing to travel if you have some good ones in VA, DC and some cities in MD.

Thank you
Barb
 
Posted by eightybarb (Member # 24968) on :
 
quote:
Originally posted by Keebler:
-
For D.C. (chiropractors) or D.O. (doctors of osteopathy) you might check the site for UPLEDGER INSTITUTE and find one who does their style of gentle cranial-sacral therapy.

Whomever you see, be sure they never suddenly twist your neck.

Some D.Cs. and D.O.s have additional educated in nutrition and nutritional supplements. (vitamins; minerals). D.C.s and D.O.s can be very helpful with body work. Be sure to ask about their training, techniques, etc. as there is a wide variety of styles.

NDs will have four years of course work mostly in herbal medicine and physiology - with some emphasis on the nutritional supplements (vitamins).

L.Ac.s generally have a little less formal training in herbs than N.Ds. but still, a couple full years worth.
-

You are full of information Keebler thanyou so much.
 


Powered by UBB.classic™ 6.7.3