Is a regular llmd going to refer you to one who specializes in neuro issues? (they're significant, and one predates lyme)
Or is he going to keep the patient?
I have a very experienced and knowledgeable llmd, but I wonder if I need a "neuro llmd".
Is there such a thing?
Posted by dmc (Member # 5102) on :
Yes, there are llneuros (few) but depending on what you feel you need. Do discuss with your LLMD.
My first LLMD refered to a LLNeuro when it was deemed necessary for a particular treatment.
Posted by carly (Member # 14810) on :
That's the thing, kinda. He has mentioned it, but hasn't actually made the referral yet.
Now he is looking to treat with IV.
Maybe he's looking for improvement? Maybe he's looking to see just what results will be.
Maybe I am just very impatient and want to know exactly how this will unfold.
Maybe I should just trust his treatment plan to unfold and follow his recommendation at the time he makes it.
Posted by lyme in Putnam (Member # 11561) on :
Going to a regular neuro next week to go over mri,but she's going to make light of the results. Lyme is in there, but a lyme neuro could be more specific. I went over mri with my llmd.
Posted by Tracy9 (Member # 7521) on :
I changed over to an LL neurologist, and I love him. He diagnosed me with small fiber neuropathy, which I think a lot of us with Lyme have and don't know it. No one other than a neurologist would have picked up on it.
There is one in CT near the NY line who is excellent, thorough, and takes some insurances. I drive 2 hours to see him and I love him. He treats my Lyme, co infections, small fiber neuropathy, thyroid issues, uses supplements, does all kinds of tests, and more.
I loved my former Lyme doc but he did not even begin to have the wealth of knowledge a neurologist does. I am now on IVIG and never would have known I have a degenerative autoimmune disease had I not gotten to a neurologist.
That's my pitch.
Posted by sickpuppy (Member # 23846) on :
I know of some lyme neuros. PM me if you want their contact info.
Posted by carly (Member # 14810) on :
Thanks Tracy for your input. That's exactly where my head is right now.
I love my llmd, I do think he's very knowledgeable, but he's not a neurologist.
Posted by Tallahasseeborrelia (Member # 13828) on :
Can someone pm me a lyme literate neuro in the Tallahassee or surrounding area?