Her Involentary movements seem more pronounced also.
(My Take) Her brain is signaling either her
tounge or gums that she must repeatadly move her
mooth to remove "debris"..Her left arm then
raises up like she is sewing, streching,
exercising, whiplashing her hand sometimes like
shaking water off. Somtimes hand goes behind her
head and she extends it so far, I think she will
dislocate shoulder. She says she needs to to this
to gain leverage in order for her toungue to clear the debris.
Pam uses the computer, on the the jewelry sites
to continuously scroll, seeing all the different
colors to distract her, Knitting also helps.
Hence she says its volentary although I see her
doing it in her sleep, sometimes much more
violantly and agressively.
She also get extremely agitated if I ask her to
stop, or adress the issue in any way. Yesterday I
told the PA at the docs, and found that Pam had
never mentioned it to them. Its probably the most
pronounced sypmtom, but only when she's fatiqued,
"spaced out", or not focused on any one thing.
Parastesia? It began 4 years ago while on
"Mepron" in fact the third day she began. Doc
said never heard of mepron reaction, probably
some kind of lyme symptom, and continued mepron
for the month as the protocol required.
Has anybody heard or expieranced this. Pam is
looking for validation, as this was the "truama
symptom" that caused all her docs at the time to
say she was either delusional, hallucinating, or
had Parkinsons, all of course except her Lymes
doc, doc "H" at the time (NY).
I'm leaning towards neuro symptom, that will
clear when Roshepherin tx is done, and that its
more pronounced now as rosherine is agitating that
particular spiro.
Thank you for any therory or expierances. Bobby
** edited to change region to state **
[ 06-02-2010, 09:25 PM: Message edited by: sixgoofykids ]
Posted by sixgoofykids (Member # 11141) on :
Sorry, I don't really know .... maybe the constant mouth cleaning is OCD? What did the PA say?
Moving to medical questions
Posted by Carol in PA (Member # 5338) on :
Choreia (or chorea) is an abnormal involuntary movement disorder, one of a group of neurological disorders called dyskinesias.
The term hemichoreia refers to choreia of one side of the body, such as choreia of one arm and not both.
Choreia is characterized by brief, quasi-purposeful, irregular contractions that are not repetitive or rhythmic, but appear to flow from one muscle to the next.
Thanks for the insight. I will google and research, my first thought was Obsessive compulsive disorder, and also the dyskansia...I'm trying to tie together The obsessive thing really hits as her new relief is obsessvialy wathing the jvt station on the tv, during commercials while scrolling through the JTV web sight. So far she's not buying much...But it seems to be a harless release...Her shrink says no way, yet nothing she has prescribed has helped.
Further along, we'll know more about i.
Thanks Bobby
Posted by Keebler (Member # 12673) on :
- You mentioned having gone to a movie. That, alone, can be a tremendous stressor on the brain and the ear system. When I last could go to even a quiet movie, it would take me a week to recover from the previews, commercials and surprises that I'd not anticipated either to eyes or to ears. And the adrenals just got fried from all that.
Also, consider the wrong kind of (hydrogenated) fat - if you had movie popcorn. That can cause damage right away.
Any ASPARTAME or MSG in her diet? Check even cough drops and google for all those names they hide under.
I don't see how arm flailing could be OCD. Seems very neurological to me. My mother had similar patterns of chorea - wide swinging, uncontrollably from arms and neck - all from a virus in her brain. But, years before that appeared, she did the tongue swirling stuff with her mouth.
But, I can't read your whole post (my eyes just can't track it). I got something like she may be buying stuff on the web in a compulsive manner. If so, be sure the card she uses has a limit on it.
I think, more likely than OCD, is that the computer somehow allows her brain to focus or stabilize in some fashion. I like to look at art sites and find that distraction enjoyable (but I also know that the computer is not a real friend to my brain - but I'm so drawn by color, etc.).
Has she had her intracellular magnesium levels checked? The chorea could be dangerously low magnesium. Really.
And then, it could also high mercury or other heavy metals.
Gluten ? I know that seems like a long shot but there are many medical abstracts at PubMed illustrating neurological / brain damage from gluten (in undiagnosed celiac).
I deal with that so, it's just one thing that comes to mind.
As it turns out, my mother may not have had the ability to clear toxins. I have two kinds of genetic porphyria. So, while porphyria genes could have skipped a generation, it's highly likely that my mother had the same liver disorder as I do but that it went undiagnosed. (My father did not seem to have any of the symptoms but my mother did, it's just that no one thought of that).
You might consider that as toxins can damage the brain and the liver and cause all sorts of problems. There are things that help.