It seems when I stand up and sometimes even just out of no where my blood pressure drops, I feel very faint and my heart starts racing.
It only started after my treatment! I have been on 2 diff medications and its the same thing.
Posted by aiden424 (Member # 7633) on :
I get severe bouts of POTS. I've had it since I got sick. I take atenolol which seems to help some.
When I have severe POTS symptoms all I can do is stay laying until it passes. It has gottten better since I've been treating lyme.
Kathy
Posted by massman (Member # 18116) on :
I get PANS !
Posted by TerryK (Member # 8552) on :
I wish I got PANS instead of POTS but unfortunately I have POTS as do many of us with lyme and co-infections.
Terry
Posted by Dania84 (Member # 26278) on :
Lol. I just find it very weird that I got them after treatment..My heart is really effected and thats my only symptom.
Thanks for the replies Posted by lymetwister (Member # 19590) on :
POTS is Lyme, no doubt. If it isn't Lyme then it's one of the Co's.
I had a variant of it. My BP didn't drop, but my HR would go from 60 to 160 from sitting to standing.
This was at it's worse before treatment. Much much better now. Still taking a beta blocker as I havn't got it all yet, but I can tell you that I have been treating Lyme and Bart only, so it has to be one of those.
Getting ready for Babs now....
Sad thing is that there is a Dysautonomia site called POTS Place, or something like that where the folks there all talk about their POTS, and they are all doing "bandaid" treatments such as salt, hydration, and some other things, but they don't know they have Lyme.
I tried to tell them a while back, but they all told me they were tested for Lyme and were negative. A few though did listen to me and came back thanking me as they tested pos.
I tried to tell them about the bad testing, etc., but they got tired of hearing me and I got booted.
I tried :-)
BTW, FYI, there is a Hopkins pediatrician treating POTS with Minocycline and getting results. I read an article on this a while back. I guess in a few centuries or so, the other Dr.'s will catch on.
Gary
Posted by Keebler (Member # 12673) on :
- All sorts of blood pressure stuff is discussed here:
Topic: To everyone with cardiac symptoms please read ! -
Posted by massman (Member # 18116) on :
Terry - in all the natural health care I have studied and performed, my focus has been on results results RESULTS ! And you gotta take ACTION to get RESULTS !
People do not want to try something new. I am the opposite - I do.
When I posted about greatly decreasing my Babs load in two weeks, did anybody show interest in learning more ? Close to nobody, if I remember correctly.
All that happened was bashing, saying NO WAY could it be close to be true ! Gotta take months ! Gotta take years ! I must be trying to sell something and on and on...
So that example tells me interest is poor. Another poster in that thread said about the same thing.
Why did you post this here ?
Posted by sapphire101 (Member # 6638) on :
Yes, I have it. It got better with treatment but had a bad bout with it just recently. I wasn't on any treatment at the time.
Sapphire
Posted by valeriedc (Member # 24950) on :
Massman,
I'm curious about your babs treatment. Can you post the link or tell me how to find it?
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