I'm really scared now! My legs have been getting progressively weaker and I was hoping that it was "all in my head". However, when I woke up this morning, I thought I felt pretty good until I stood up and tried to walk. My legs were so weak (particularly left one) that I honestly was afraid they were going to give out on me!!! My hip / butt / lower back feels the same way. I am on Doxy for 10 days ... this is Day 4. What do you think?
Posted by TN Kim (Member # 26729) on :
No replies? PLEASE!!!
Posted by Sophie1234 (Member # 26412) on :
Hi, Ok, all I can do is tell you that this happens to me. Leg muscle weakness/spasticity is one of my biggest symptoms. Try and rest them, but also use them, if you can.
Call your dr and let them know what is going on; it's a long weekend. I will be praying for you.
Posted by Keebler (Member # 12673) on :
- It's just part of lyme. Happens to most patients. It will get better with treatment. -
Posted by jwall (Member # 22999) on :
this happened/happens to me as well. It was one of my first symptoms and I ended up in the ER because I thought I was having a stroke. One of my legs felt weaker too.
I still have very weak legs, my right feels weaker, but doc says left is weaker when he tests. Anyhow, some days I feel strong and others I feel very shaky and weak and uncoordinated. arms are the same. It comes/goes, but overall generalized weakness for sure.
Posted by TN Kim (Member # 26729) on :
Thank you all for responding. It's nice to be reassured that I'm not crazy! I know these symptoms are real no matter how hard I try to convince myself otherwise.
Posted by Jumper (Member # 22978) on :
Leg weakness and pain have been the biggest issue with me since I was dx'd two years ago. It is for me as it is for jwall - it comes and goes. I used to be afraid I would be in a wheel chair one morning - now I think, "this too will pass". Hang in there, get treatment and get well.
Posted by littlebit27 (Member # 24477) on :
Yes, I have this as well. I told my husband before my DX but after my huge avalanche of symptoms that my legs felt like they didn't want to work, they felt like jell-o.
Posted by arkiehinny (Member # 26546) on :
I've had the same symptoms Kim, though not so pronounced. Just recognize it for what it is - a symptom. Keep moving, girl! Make yourself move, even if you have to hold onto things. Refuse to lay down & be defeated, refuse to allow the symptoms to scare you. You know your body better than anyone else. If you feel like something is really wrong, life threatening, you'll know what to do. This makes my own symptoms seem like nothing. I have truly been fortunate to have only been touched by a few discomforts. Compared to everyone else, mine seem mild. I'm now 8 weeks since infection. I think maybe, possibly the reason my symptoms aren't the very worst is because, possibly, I eat lots of antioxidants (berries), take many supplements, try to excercise 3 times per week. I don't know if this means anything or not. I feel like I shouldn't complain at all compared to what most of you are going through...it makes me thankful that I'm hanging on like I am. Kim, don't give up!
Posted by dmc (Member # 5102) on :
last pages are lists of symptom Lyme & tick diseases can cause...h
How TBDs (Tick Borne Diseases) can effect each system of the body, such as neurological, endocrine, optical, digestive etc.
It will reassure you that you are not crazy.
Posted by TN Kim (Member # 26729) on :
Thank you all so much! This morning was really bad ... I could barely walk ... I was staggering and overstepping my feet and my husband saw it all this time. He helped me back upstairs to my bed. Thank GOD that hubby is home this coming week for vacation ... I just feel bad that he has to worry about me during his time off! Posted by Keebler (Member # 12673) on :
- He does not have to worry about you. I really hate it when people do, I'm sure you do to. It really helps to turn that into action - find out what can help.
This really is just part of what lyme entails. It's not likely to change overnight so being proactive in how you arrange your days will help. Rest when you feel the need. Consider safety measures for getting around, just as you would were you to have a sprained ankle.
For now, magnesium may be your best help in that area for many reasons. Ginger capsules, too. I know you don't have your LLMD appointment for 4 weeks or so, but be sure to read through the links in your collection regarding self-care and support measures.
Good luck. -
Posted by calmom (Member # 24054) on :
Tn Kim,
This was also one of my first really weird and scary symptoms - and I did not know I had Lyme for another 15 months. It would come and go, but one time there was almost a month of it.
What helped me was trying to do whatever I could, not to the point of stress, but a little bit. If I was to weak to stand then leg lifts, if I could stand I would try for little bits at a time. I got a super beginners yoga DVD and just did what I could the way I could. On the days my legs were better I walked -just as far as I felt safe - sometimes down the drive and back, but gradually the distance increased. One key to walking I think is to do it with a friend/or great music - something that will keep you uplifted and not focused entirely on your legs.
Please know it is a symptom of LD and will get better - I am not done with my own treatment, but usually walk about 3 miles a day.
Peace, CalMom
Posted by TN Kim (Member # 26729) on :
Thank you, CalMom! That is exactly what I did yesterday .... walk up and down my driveway ... and figured my neighbors thought I have lost my mind! Posted by randibear (Member # 11290) on :
i know this is going to be tough, but you have to walk. or at least get going.
i forced myself to walk a mile every day. i could barely make it the first 25 feet and some days i practically cried doing it. but i dragged my butt out of bed early (cause in texas it gets hot so early) and i drove over to that park and went by myself.
i didn't need to hear all his complaining and it was peaceful with ducks and the lake for me.
some days i stopped at least 4-5 times to get my breath and sometimes i got in the car shaking. i thought i was going to pass out.
but i gradually worked up to where i didn't have to stop, my face didn't get red, and i could make it around in about 20 minutes.
and it strengthened my legs and it really helped a lot.
Posted by erikjh1972 (Member # 20964) on :
yup, i went through it as well. early in treatment and it sucks, you have to push through though. good luck!
Posted by TN Kim (Member # 26729) on :
Thank you for your responses. I truly appreciate them all!
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