This is topic Tindamax users?? Child- Update in forum Medical Questions at LymeNet Flash.


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Posted by Jane2904 (Member # 15917) on :
 
I understand that Tindamax can be tough. I have been reading past posts.

Our daughter just started Tindamax on Sunday 1x a day @ 125mg to start, then repeated on Monday.Only taking two days per week.

Wednesday and Thursday, had headache, some light headness and nausea.

Today still feels lightheaded and some head pain. I am looking for some input from Tindamax users.

I always start her meds. at low dose and work our way up.

Anyone else experience symptoms even at low dose. etc.

How did you feel when you began Tindamax, etc?

Thanks in advance for any input. This board is always so helpful and truly appreciate your reply.

She also began Bactrim about two weeks ago. So far only taking one tablet daily.

Today, Saturday, she is complaining of being dizzy very often. Also has mentioned some eye blurriness. Increased anxiety this past week too.

Would Tindamax cause these symptoms five days after last dose. I have a call into the Dr.

At this point not sure if it is the Tindamax she took last dose Monday, 7/5 or the Bactrim( started two weeks ago). Urh!!!

[ 07-10-2010, 07:37 PM: Message edited by: Jane2904 ]
 
Posted by nspiker (Member # 22824) on :
 
I haven't had any negative effects from tindamax. It game me some improvement. Hope she does as well. It's so hard to have kids going through all this...
 
Posted by mmcmann (Member # 21872) on :
 
I pulsed Tindamax for approx 6 months for 1 week every month and every time that is exactly how I felt.

I had to step back on dosage at one point bc the head pressure was so bad.

I am sorry your daughter is going through this. Best of luck to you.
 
Posted by Tracy9 (Member # 7521) on :
 
My kids both take it on weekends. Neither one has mentioned feeling any differently. But then they never notice much of anything! Or mention it....so I'm not a good judge. But there were no outward, obvious changes when they started it.
 
Posted by jkmom (Member # 14004) on :
 
My daughter started Tindimax last Friday. She will take it for a week, then off for 2 weeks.

She hasn't mentioned any changes. I have noticed she seems happier and a little more active.

There was one day that I thought she was complaining about her head more than usual and her OCD flared up a little.

When I took Tindimax, I was lightheaded, my arm tingled, and my leg vibrated. I had never had those symptoms before. I also had more headaches than usual.
 
Posted by Deb133 (Member # 18544) on :
 
Jane,
I havent talked with you in a quite a while. My daughter pulses Tindamax 3x a week and she has had no side effects or herxing at all.

She has tolerated all her abx very well throughout this 20 month journey so far.

She is actually doing very well..best since her relapse in Sept..the only thing I can attribute it to is Artemisinin capsules which she started about 2 months ago.

Deb G
 
Posted by Jane2904 (Member # 15917) on :
 
Thanks for all the response.

Anyone else have a tough start on Tindamax?

Glad to read that many have had positive results.

mmcmann-sorry it has caused problems. Hope you are doing better.

Deb- So glad to read your daughter is doing better. [Smile]
 
Posted by Lauralyme (Member # 15021) on :
 
My experience on Tindimax was rough. I started on a high dose and tapered off to a lower dosage. I was on it for a month total.

However the hardship was worth it as I improved greatly afterwards.
 
Posted by Stacyb (Member # 13084) on :
 
Jane---

I PM'd you a reply [Smile]
 
Posted by aMomWithHope (Member # 19255) on :
 
Hey Jane,

How's your daughter handling the Tindamax and Bactrim?

Mine uses Tindamax 500 mg twice a day twice a week and hasn't experienced anything noticeable--no herxing nor improvement--not even sure it is really doing anything, which can also be frustrating.

I hope she experiences some relief soon!
 
Posted by Jane2904 (Member # 15917) on :
 
Hi Everyone,
Thanks for all the replies.

Laura, glad you had improvement.

Mom, Hope you notice improvements soon.


I Have a call into the Dr. I think she may be herxing from the Bactrim too.
 
Posted by kimmie (Member # 25547) on :
 
I was afraid of my first dose of tindamax. Took it VERy carefully. The only herx I had was increased headache. It readily crosses the BBB. ALso, it has a much longer half life than flagyl so it does stay in the system longer.

HOpe that helps.
 


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