We need useful data for the study of Lyme and how it affects patients?
We need your help! You CAN help by taking this survey!
This survey is sent by the National Capital Lyme and Tick-borne Disease Association to gather information for a new paper, ``The Human Dimension of Lyme Disease and Other Tick-Borne Diseases: A Patient's Perspective.'' The paper is for the Institute of Medicine's scientific workshop entitled, Lyme Disease and Other Tick-Borne Diseases: The State of the Science. The workshop is charged to represent the broad spectrum of scientific views on Lyme disease. It is expected to provide a forum for public participation and input from individuals with Lyme disease, as requested in congressional appropriations report language in House Committee Report 111-120 and Senate Committee Report 111-66.
Your participation is greatly valued and needed to add validity to the ``Human Dimensions'' paper. Earlier, we requested your personal story; now we are asking you to participate in this survey.
Your contribution to this database will add depth and validity to the descriptions that will be submitted on the patient experience in obtaining a diagnosis, seeking treatment, obtaining insurance coverage, and living with Lyme disease.
The survey is divided into 6 segments and consists of 4 types of questions: a ``matrix'' of opinion scaled questions, multiple choice questions where you select from a drop-down menu, multiple answer questions where you select all that apply, and an open ended question where you can describe your experience. The survey is anonymous.
The survey should take less than 15 minutes to complete. Due to a time limitation, we are asking that all surveys be returned by July 19th, 2010. If you have any problems or questions, please email Diane Wilcox at [email protected]. Your participation will make all the difference.
Click on the link below to take the survey. After you take the survey, please forward this message to other Lyme patients you know. If you are a medical professional, please consider sending this out to your patients.