Most of you old-timers here know my story, so I won't spend a lot of time going through the details.
I have been sick off/on (unable to work) for the last 3.5 years.
After being given oral steroids undx Lyme had a field day and the rest is history.
I have been on multiple abx combos as well as used many alternative means available.
I was in remission for 1 of the last 4 years and relapsed due to not taking meds long enough and general carelessness once feeling better.
I am now back at 50% some days 60% and continue to progress.
Some words for you who have been at this a long time:
1- Keep going 2- Keep taking your meds (whatever route you have chosen that WORKS) once symptoms abate for at least 6 months (ie- anti-microbials, DETOX, metal tx, etc.) 3- Keep trying new things if what you are doing is not working. There are infinite possibilities. I have spent 100k plus in the last 4 years on treatments as a lot of you have and they have all led me in a different direction which in turn has taught me a lot. 4- Keep going
Here is what is working for ME currently:
(This is condensed, but is enough info to get the gist. It has been changed multiple times and I would say I am currently on the least amount of meds right now that I have been in the past)
Lyme is never just Lyme, as is such w/ and serious chronic condition; and it is my belief that it must be addressed on all levels for the best possible outcome.
Anti-Microbials-
Rifampin Biaxin Plaquenil *all daily
Anti-Fungals-
Fluconazole & Nizoril rotated in pulses as needed.
Detox-
Pekana drainage kit Pysllium whole husks Lots of good clean water Milk Thistle ACZ zeolite spray
Supportive supplements/meds-
Wilson's adrenal rebuilder E-Lyte liquid concentrated electrolyte water daily Minerals of life liquid concentrate daily Lifepak multi Magnesium Malate Nattokinase/Lumbokinase/Serrapeptase (rotated daily) LDN 3 mg Ambien 5 mg Ativan .50 mg Good quality probiotics (vsl, theralac, custom, etc)
Adjunctive therapies:
Walking 30 min daily Strength training every other day Swimming Stretching Taking care of my puppy (this has been helpful w/ my recent gains) Chiropractic adjustments 2x weekly
I am lacking in the heavy metal department which I will fine tune in the near future, as well as use some new meds (for me) such as Alinia, tetracycline, and possibly look into stem cell therapies and watch the reports coming in.
There is no single long term solution for most of us, but in this fashion it appears I am once again winning the battle.
Hope this helps.
Best
Derek
Posted by landerss (Member # 17732) on :
Thanks so much for the update, Derek - and lots of good advice. Happy to hear you are improving!!
Posted by unsure445 (Member # 15962) on :
Glad to hear you are on an upswing! Looks like a thorough regimen.
Are you off of Cowden for now?
Posted by djf2005 (Member # 11449) on :
Yes, off cowden herbs for the moment.
Most likely will incorporate again in the future but will wait until close to symptom free.
Posted by djf2005 (Member # 11449) on :
Also, I have recently been using Lauricidin which seems to be helping.
Posted by txgirl09 (Member # 21612) on :
Glad to hear you are improving, Derek. Thanks for sharing!
Posted by sixgoofykids (Member # 11141) on :
I'm glad to hear things are going well for you treatment-wise. Thanks for the update.
Posted by triathletelymie (Member # 26456) on :
It is always VERY encouraging to those of us still very ill, that folks are turning the corner and getting better! Thanks for sharing! Posted by Tracy9 (Member # 7521) on :
Derek, That looks amazing; but expensive! Mind if I ask about what those adjunctive supplements, etc are costing?
Great protocol.
Posted by djf2005 (Member # 11449) on :
Thanks guys.
The treatment is expensive, yes.
Approx 500$ monthly in total care for Lyme & Co. (Drs, supps, Rx meds, etc)
It does really add up, but I have better success addressing multiple issues at once rather than just taking abx.
Best
Derek
Posted by Haley (Member # 22008) on :
Thanks for the update.
It's great to hear progress. I am interested in the Pekana drainage kit. An ND told me about it.
What is it exactly? How long have you been doing this and how do you feel that it helps?
Posted by Hoosiers51 (Member # 15759) on :
Good for you....so glad to hear you're doing well! Posted by Consuelachacha (Member # 26538) on :
Derek;
So good to hear someone that is doing better.
So discouraging to hear how much it costs to get better. I just find this absolutely insane. There are THOUSANDS of us out here that desperately need help!!!! Why oh why do we have to suffer, some die, because we just do not have the funds to get GOOD help.
Thank God you were able to turn the corner.
Happy for you!!
Connie in St. Louis
Posted by CD57 (Member # 11749) on :
Derek, have you looked into mold as a possible contributing factor?
Posted by djf2005 (Member # 11449) on :
Con-
Pekana drainage kit is homeopathic and works on all the major detox organs..
It has helped me w/ general toxicity issues as well as be able to tolerate therapy.
CD-
Yes I have read mold warriors and looked into those issues. We moved about 6 months ago into a relatively new apt w/ little to no mold whereas our other place was infested. This has helped (just moving) as well as running air filters pretty much non-stop.
(Schaller has a decent suggestion on this: get 2 boxfans, buy a 20x20x1 3m ultra allergen air filter for each and place it on the back. I then have 2, 20' fans running w/ the best filters possible for about 40$ every 6 weeks. Seems to do the trick.)
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