My friend is very sick with Lyme, Chronic Epstein Barr, Herpes 6 and Small Fiber Neuropathy.
He just had another spec scan yesterday and he and his girlfriend is freaking out-- and think that the Encephalopathy is NOT related to the Lyme.
He has had undiagnosed Lyme for 16 years and JUST started IV Rochephin 60 days ago.
Any one else have these issues or any feedback.
I think it is just from the Lyme and the reaction to the IV meds.
Posted by blinkie (Member # 14470) on :
I think it is too and co-infections as well.
Posted by lymetwister (Member # 19590) on :
If MRI is negative for masses and lesions, then you can bet the bank it's the Lyme infection.
My SPECT was positive and I feel it as in brain damage. LLMD says it is 100% reversible.
Posted by Keebler (Member # 12673) on :
- First, after 5 minutes of "freaking out" gently suggest to your friends to save their energy. It's very common with lyme. In fact, I'd bet no lyme patient with neuro-lyme gets way without it.
And, it can also suggest liver dysfunction, so liver support needs to be excellent. Details below explaining a bit more about what it means but the bottom line is that lyme treatment should help.
It can still take a full year or more for the brain to normalize, even after successful treatment. Patience is key.
VARIOUS infections can cause Encephalopathy.
Encephalopathy is very common for lyme. Other tick-borne infections can cause it, too, but it can be lyme, itself. And, it can be a chronic, just as most other symptoms - however, with adequate treatment, it can subside over time.
Encephalopathy can also be from liver damage, which may or may not involve serious brain infections.
Lyme encephalopathy is eloquently detailed here. It's amazing to read about symptoms that have plagued me for years - not even knowing ANYONE else had the same stuff -- and, here, he seems to really know all about it: -----
Encephalopathy literally means disorder or disease of the brain.[1]
In modern usage, encephalopathy does not refer to a single disease, but rather to a syndrome of global brain dysfunction; this syndrome can be caused by many different illnesses. . . .
. . . There are many types of encephalopathy. Some examples include: (see list) . . . .
Causes:
Encephalopathy alters brain function and/or structure. It may be caused by an infectious agent (bacteria, virus, or prion),
metabolic or mitochondrial dysfunction, brain tumor or increased intracranial pressure, exposure to toxins
(including solvents, excess animal protein, drugs, alcohol, paints, industrial chemicals, and certain metals),
radiation, trauma, poor nutrition, or lack of oxygen or blood flow to the brain. . . .
. . . Depending on the type and severity of encephalopathy, common neurological symptoms are loss of cognitive function, subtle personality changes, inability to concentrate, lethargy, and depressed consciousness.
Other neurological signs may include . . .
=======================
You will find many links with a search at Google: "Lyme encephalopathy"
CFS (Chronic Fatigue Syndrome) is called Myalgic Encephalopathy (M.E.) in the U.K. and in Canada.
CFS is also refered to as Myalgic encephalomyelitis -- An older name for chronic fatigue syndrome; encephalomyelitis refers to inflammation of the brain and spinal cord. -
Posted by hcconn22 (Member # 5263) on :