I have a script for it but the pharmacist is questioning the dosage saying its awfully high.
My LLMD is no longer available to verify.
It's also VERY expensive!
Posted by Florence1 (Member # 22960) on :
i just started taking it......1000mcg once a week.......cost me $3 for a months worth with my insurance........no improvement yet but its early days.................
Posted by momintexas (Member # 23391) on :
My script says 25mg / 1 cc 1 cc IM Q day 30cc
They told me it would be $430 for 30 days worth and that does not include the needles!!
Posted by Keebler (Member # 12673) on :
- It's listed here: -----------
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:
Nutritional Supplements in Disseminated Lyme Disease
J.J. Burrascano, Jr., MD (2008) - Four pages -
Posted by WildCondor (Member # 434) on :
It helped me tremendously with energy and stamina, also cognition and sleep. It really helps!!!
25 mg/1cc is the usual dose. Should be taken before 9 am so it doesnt keep you up at night. It will turn your urine pink/red, totally normal. It is usually taken daily or every other day for at least 6 months. Fallon Wellness Pharmacy has it for $99 per 30 pre-filled synringes + needles, and they ship all over. Hopewell Pharmacy..same thing! Posted by jkmom (Member # 14004) on :
I love the methyl B12 shots. I started taking my daughter's when she said the local pharmacy's batch stung. I liked them so much I asked my LLMD for them.
Her prescription was written for her to take them 3x weekly. I asked for mine to be written the same way, really wanting the same tiny needle she had.
He (same LLMD as yours) wrote it for 3 days weekly but gave me the same dose as you. My daughter's is for .1 cc.
Ours are good for 3 months, so you could probably stretch yours out, by not taking them every day.
Posted by sk8ter (Member # 8671) on :
If you have the MTHFR gene you cannot take the cyanocobalamin or the methylB12. You will need to use the hydroxycobalamin. Some of us will have very severe reactions to the other types because of this gene mutation.
Posted by karenl (Member # 17753) on :
I am on the hydroxycobalamin and doing well but did not tolerate the methyl B12.
Thanks sk8ter for explaining, do you know more about the MTHFR? Obviously I have it.
Posted by wtl (Member # 19883) on :
Wildcondor - that makes sense that to take it before 9am for the day. But if one also takes antibiotic during breakfast, how do you arrange the time? Do you give the shot 2 hours earlier?
Posted by kday (Member # 22234) on :
quote:Originally posted by sk8ter: If you have the MTHFR gene you cannot take the cyanocobalamin or the methylB12. You will need to use the hydroxycobalamin. Some of us will have very severe reactions to the other types because of this gene mutation.
Source?
I heard the reactions are because of detox, and glutathione temporarily dipping.
I know Yasko now prefers hydroxy, but is there a reliable source that says those with MTHFR shouldn't be taking the methylated form of B12.
I never been tested for MTHFR, but the first few weeks of MB12 were a little tough. Now they have opened up blocked pathways and I feel so much better and don't need all those detox supplements.
I thought hydroxy was good for COMT mutations.
Posted by desertlily (Member # 13894) on :
I have tested positive for the MTHFR gene mutation and am on methylcobalamin 2cc three times a week. I haven't had any problems, in fact it has been very beneficial in helping with energy.
What type of reactions have people had to the methylcobalimin with the MTHFR gene mutation?
Posted by karenl (Member # 17753) on :
I was getting very fatigued instead of feelig better. It definitely was the same feeling as a big detox herx - just totally unable to get up.
Posted by desertlily (Member # 13894) on :
karenl - Earlier I saw that you were asking about info about MTHFR. I won't go into all the details here (you can easily google it) but basically if you have the MTHFR gene mutation, two things happen... 1)your body can't deal with homocysteine well and it builds up in your bloodstream, AND
2)it has a hard time taking the folic acid you eat or take as a supplement and converting it to the active form that your body can actually use.
They have "medications" (actually they're just supplements that you have to get a prescription for) that are the active form of the folic acid, so that you bypass the problem of the faulty enzyme produced by the gene defect. They are Deplin, Metanx (which also has some methylcobalmin in it, I believe - it's the one I take) and Cerafolin. Metanx is also marketed as being able to help with peripheral neuropathy, and Deplin was supposed to also help with depression (for people already on antidepressants).
Anyway, FWIW, that's what I have learned about it, hope that is helpful.
Posted by karenl (Member # 17753) on :
Thanks Susan, I will ask my doctor about the meds.My homocystein in blood is not elevated.But I have trouble with folic acid. Karen
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