I'm in the 3rd week of this new protocol. The first 2 days, I take, among other things, biacin and avelox.
A day nearly FREE from brainfog...OMG i had forgotten what it is like to have a normal brain! This has given me such a charge to keep going.
Also, nearly free from physical pain...well...just a wonderful "supergirl" kind of day
Posted by nefferdun (Member # 20157) on :
That is wonderful. I hope you continue to stay feeling so much better. I don't think I have heard of biacin. What is it for?
Posted by marypart (Member # 27012) on :
Do you mean Biaxin-- clarythromycin?
-Mary
Posted by Dekrator48 (Member # 18239) on :
Great news!!
Keep going and you will get to the finish line!!!
Posted by kidsgotlyme (Member # 23691) on :
How wonderful. I hope you have many more brain fog-free days!!
Posted by lyme in Putnam (Member # 11561) on :
Posted by supergirl (Member # 26936) on :
yes, biaxin I guess is the spelling THank you for the good wishes!!
Posted by supergirl (Member # 26936) on :
still getting better... it's the most incredible feeling... the various symptoms ...it feels like an "evaporation"... liek the physical pain is evaporating, the brain fog...fading away...OMG thank you jesus
Posted by Consuelachacha (Member # 26538) on :
Sooo happy for you!!! Nice to hear someone has something good going for them.
Posted by supergirl (Member # 26936) on :
I'm now on day 3 of the 3rd week. I have been crying on and off all day... because I am feeling better!
This morning, I woke up and had NO SORE FEET! and, my hands and feet were not swollen....I can't believe it.
I know now that I have been sick for a loong time and just wrote the symptoms off to other things. My brain is coming back and my body... I am feeling alive again... life is coming back and I would pay someone a million dollars for this return to life!
Thank you for all of the support...keep the faith and don't ever give up hope.
I have no idea if this protocol is the real thing...but, it gives me something to guide me..
Posted by Pinelady (Member # 18524) on :
Its wonderful when that happens---keep up the good fight.
Posted by nefferdun (Member # 20157) on :
That is so wonderful. Just biaxin and avelox? That is one to remember!
Posted by Faith9597 (Member # 23183) on :
WONDERFUL SUPERGIRL! KEEP THE FAITH!
Posted by Remember to Smile (Member # 25481) on :
quote:Originally posted by supergirl: ...I have been sick for a loong time and just wrote the symptoms off to other things. My brain is coming back and my body... I am feeling alive again... life is coming back and I would pay someone a million dollars for this return to life!
Thanks for sharing your good days with us. May you joyfully continue the climb (without air hunger!). Smile
Posted by supergirl (Member # 26936) on :
thank you so much everyone for your good wishes. I am so grateful to have these good days to guide me to full recovery.. and yes, hopefully without stupid brain fog and air hunger
Posted by Misfit (Member # 26270) on :
Wonderful! Im so jealous! Not really...im very happy for you. Heres hoping for continued success!
Posted by jarjar (Member # 8847) on :
I always like to keep notes on what works for some people what is your doseage of Biaxin and Avelox? Also keep us posted how you are doing in the future. Congrats for feeling better.
Posted by LightAtTheEnd (Member # 24065) on :
Congratulations on your good day!
Hang onto that feeling if bad days come back--if the good day happened once, it will happen again, and you'll get more good days each time.
Glad to hear you are doing so much better, and thanks for sharing your good news.
Posted by been (Member # 23127) on :
^
Posted by lightparfait (Member # 22022) on :
Supergirl...
A hint as you are now finally feeling great.
learn about binders here on lymenet...so you keep your supergirl powers! And continue to stay feeling great.
Binders will catch the die off that occurs with biaxin or other killing meds. Die off feels like lyme symptoms again. Can be confused with lyme symptoms...so you want to keep them all away! Candida/yeast and fungus develop from use of antibiotics which give brain fog symptoms!
A few to consider are cholestrymine(a script from a componding pharmacy so no fillers are in it)
OR chlorella (health food store), or apple pectin powder to add to your food...will catch some.
Charcoal is great...but will rob you of your minerals and vitamins if used regularly...
Need to mop up your debris then detox.
Best wishes
lp
Posted by nefferdun (Member # 20157) on :
Please report back if you think this has "cured" your bart. That is you get off treatment for bart and do not relapse. I am so tempted to try one of the fluroquinolones (sp?) again but probably shouldn't. Maybe next year when all else has failed - and I am getting to that point that I don't know what else to try.
Posted by been (Member # 23127) on :
I hope you're doing well since you're not responding and probably enjoying life again!
I'm going to treat bart again starting this weekend using Avelox and I hope I have the same success as you.
If you can please update us on your progress!
Posted by coffee71 (Member # 17467) on :
Great news!!!So happy for you!!! I know how it feels to have my brain back.
Posted by NMN (Member # 11007) on :
How did supergirl respond on other quinalones??? Anyone know?
Posted by NMN (Member # 11007) on :
So what about the prolonged QT interval issue here?? I posted on this today on another thread.
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