For those of you with serious cognitive problems (memory loss, no concentration, slowed thinking process) did oral antibiotics work for you?
Or did you have to go on IV antibiotics?
If so, how long were you on IV until your neuro-lyme/cognitive problems went away?
Posted by bcb1200 (Member # 25745) on :
I had cognitive issues, although not nearly as bad as some. I"m still in treatment but have only done oral abx. My neuro issues are mainly gone today!
Posted by Leelee (Member # 19112) on :
Oral abx did a lot for my cognitive problems, but after I went on IV Rocephin they cleared up completely.
I was on IV for three months, but noticed the improvement within a couple of weeks.
Posted by Consuelachacha (Member # 26538) on :
Hi Knight33;
Unfortunately I have not yet received care from an LLMD yet.
I have major cognitive issues. Memory loss, no concentration, slowed thinking process.
The only thing I do right now is try to rest as much as I can. I try to not put myself in stressful situations. This seems to really set them off.
I think it is Magnesium that was suggested to me. I also take Tumeric and Vitamin C.
I hope this helps.
Connie in STL
Posted by onbam (Member # 23758) on :
Mepron/Zith worked for me.
Posted by steven (Member # 13101) on :
no, orals didnt help much for my neuro stuff, only iv.
Posted by daniel (Member # 22201) on :
i think that orals can work as good as IVs in your brain.. you just have to find out which dosage u need to get enough high blood levels. i was 14 months on several oral ABx and they helped all.. but my psych stuff etc starting to disappear with mepron/zith/arte
Posted by mmcmann (Member # 21872) on :
Orals did not work for me (9 months). I am about to start IV therapy.
Posted by triathletelymie (Member # 26456) on :
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Posted by triathletelymie (Member # 26456) on :
up
Posted by sixgoofykids (Member # 11141) on :
Orals. I had my first break when I treated bartonella and parasites at the same time (so I don't know which did the trick). We were discussing that I would be getting IV if this treatment didn't work.
I am well today.
Posted by lyme987 (Member # 22148) on :
Orals did nothing for me. 4 months of IV rocefin and flagyl plus lots of orals. Most of it cleared after that.
I also have every co-infection so my treatment has taken me years. I'm on year 3 and I have a hickman catheter now. All cognitive sypmtoms have gone and I think I'm almost there.
Good luck!
Posted by BoxerMom (Member # 25251) on :
I'm all neuro symptoms. Resolved with a few months of oral Mino/Mepron/Malarone/Tindamax.
Posted by maybesparrow (Member # 27170) on :
99% of my symptoms were neuro/psych -- i've been on orals since february. was nearly 90% better, then started treating the babesia and have slid back a bit, but the fog is slowly lifting.
Posted by farraday (Member # 21494) on :
I have major neuro problems, including speech and swallowing difficulty. Oral abx have not usually worked for me.
A few years ago I was hospitalized for septicemia and given IV vancomycin and naphcillin daily for 6 weeks. Everyone was so surprised that I was so much better after many years being totally bedridden and thoroughly confused. My husband said that I kept asking people what "9/11" meant. No one thought to test for lyme.
I gradually relapsed, my slow speech returned along with major cognitive dysfunction. I was finally tested last year and have been having success with Bicillin shots twice a week and 1000 mg daily of oral Biaxin.
My speech was the first symptom to improve...at least it was quite noticeable. I see a top notch LLMD and he advises slow and steady meds over a longer period of time...at least a year and maybe longer. We are trying to avoid IV abx because of the risk of infection and the difficulty of getting the meds. But I will go with it if it becomes necessary.
These neuro symptoms are hell...it is like someone reaching down your throat and pulling your whole self out and leaving you with only a shell. I live one day at a time, love my family to pieces and thank God for my LLMD!
Posted by triathletelymie (Member # 26456) on :
up
Posted by triathletelymie (Member # 26456) on :
Up
Posted by Haley (Member # 22008) on :
Wow Farraday. I like that description. Like someone is pulling your whole self out. That is exactly what it feels like. I keep telling my doc. No it's not brain fog "it's worse."
I have done both oral and IV. They both can be effective. I think Mepron has been the most helpful for my brain stuff but it comes back when I go off of the medicine.
Posted by lymeboy (Member # 24769) on :
I had a Rocephin IV for 3 months. I was taking some supps, but at the time of my IV, I was not under the care of a LLMD, rather an ID doc who was a bit better than most. The IV did not do much for me. Perhaps it was because of the lack of a cyst buster, or ANY other co med. I had some odd symptoms, and I definitely felt some really strong neuro herxes, but after almost 12 weeks, my balance was still off, and I was still depressed, confused, and out of it.
IM Bicillin seems to have been the strongest thing I've had yet. I'm about to change to a new protocol, as per my LLMD.
Many people have said great things about an IV, and I would be willing to try it again, with a cyst buster. But a Rocephin IV alone did not do much for me.
Posted by timaca (Member # 6911) on :
Antivirals have also helped me significantly. Valcyte, acyclovir and oxymatrine (a chinese herb for battling enterovirus).
Best, Timaca
Posted by Shahbah (Member # 28735) on :
I think if ab do not work, then you have to go on detox (Cf neurotoxins and cognitve impairement...)
Posted by lymeboy (Member # 24769) on :