I have been treated for babesia for the last three months and I am still feeling horribly exhausted.
My babesia test came back negative but my LLMD thought my symptoms called for babesia treatment.
Now it's been three months of Babesia treatment and since my fatigue is still so intense and doesn't seem to be responding to the babesia treatment, maybI am wondering if maybe I don't have Babesia?
At first I started with Malarone/Cipro/Bicillin, then Malarone/Zithro/Bicillin/Septra, then Malarone Zithro/ Bicillin/ no septra and now I am on Mepron/Zithromax. I need to tell my LLMD that I'm dropping Bicillin because it's just too expensive and I'm not feeling like I'm improving.
So, I guess my question is, how long does it take to begin to see result from Babesia treatment? Is there any definitive way to know if you have it? If I have lyme and babesia I would have picked it up probably in Napa Valley or in Santa Cruz. Anyone know about the strains of those areas?
Thank you!!! Sorry if I sound a little crazed. I am!
Posted by groovy2 (Member # 6304) on :
Hi--
3 things that are common symptoms of babs are-
Low body temperature - check temp several times through the day and average them together- temp will be between 97 to 93F --
Also Night sweats -- usually get worse about 2AM - sometimes it just causes heavy all day long-
Dark brown or red color Pee is also a sign --
Hope this helps you--Jay--
Posted by Amelia (Member # 17677) on :
Hi Jalama: Jay stated some things you need to look for.
Have you done B12 shots. They might help you through this time. Also, when I did not detox properly I was extremely tired. EXTREMELY- to the bone tired you know - I am sure you do.
It sounds like you might be herxing from the Lyme and Babs treatment.
Do you have the symptoms above- night sweats, low body temp- etc.
I pulse treated for 7 months (it was a ROUGH 7 months- horrid night sweats etc)-- did not shake it. Now on everyday treatment and am seeing my symptoms abate a bit. I think my load is also lower from the 7 months.
I think your doctor might be the best person to talk to but I would try detoxing first and see if that makes any difference. It was NIGHT to DAY for me. I actually remember saying... the sun is really shining... Yes, I was down in the dumps.
Feel free to PM me if I can do anymore for you...
Posted by jalama (Member # 14600) on :
Thanks so much for the response! I haven't noticed any night sweats or other sweating. I've never noticed a low body temperature and any time I've taken my temperature it's been normal. Haven't noticed dark colored urine. My possible babesia symptoms were intense fatigue (ongoing), intense depression (somewhat alleviated) and nightmares, vivid dreams and unresful sleep.
Posted by hadlyme (Member # 6364) on :
A little off the subject maybe...
Night sweats, yes. But does anyone else have day sweats too? I am positive for babs.... and I can feel the 'sweat' come on and peak, then go down... anyone else feel this same thing? It's not hormonal either.. lol.
And.... I'm being treated for hypothyroid and my adrenals. Seems like this disease loves to screw that up. Low body temps with hypo too.
I have gotten back a lot of my energy treating them too. Armour, Ioderal, and DHEA.
I too, take B12 shots. They are my lifeline.
Posted by mallory (Member # 23364) on :
Amelia, what kind of detoxing did you do? Is babs detoxing the
same as lyme? I mentioned detoxing to my LLND and she said she
usually doesn't recommend it unless a patient has neurological
symptoms.
Posted by Amelia (Member # 17677) on :
Gosh Jalama-- I definitely had bad night sweats -- and day sweats. This is perplexing. Maybe you don't need the babs treatment but of course that needs to be your doc and your decision.
Hadlyme: I definitely had the daytime sweats too... no doubt. I can remember feeling them come on-- like I had the flu all the time and like I was also going to hit the floor or run out of energy very soon. The closest thing the energy loss reminded me of was mono.
Mallory: No shame here... I use coffee enemas. Lord, that was a big thing for me to even get to but gosh, I went from darkness to light in terms of my energy etc. I think I was SO toxic, honestly I don't know that any treatment would have fully worked. You can do a search here and PM me if you have questions. We are all in this together... You are a college student... how are you doing it?