4/10 tick bite in Myrtle Beach, SC while camping with no rash
5/17 negative lyme titer
6/2 ER visit checked for stroke
6/8 diagnosed with Lyme via dr while traveling in VA. Started 100mg Doxy twice per day for 6/8=6/22.
6/28 Symptoms reappeared and have been on 100mg Doxy twice per day since then.
7/27 Saw ID doc and told Lyme is not in SC.
7/28 Saw PCP and given anti-depressants (Haven't taken them)
8/10 Finally found a doc who would order Igenex test (Had been refused by 4 others)
8/20 ER visit with symptoms of heart attack
8/23 Saw Rhemutalogist who is testing for more autoimmune dieases.
8/27 Igenex results show: Burgdorferi 1.40 Indeterminate Lyme IgM Western Blot Positive with 3 + and 2 Indeterminate Lyme IgG Western Blot Negative Babesia Negative HME Panel (Ehrlichosis) Negative HGE Panel (Ehrlichosis) 1.80 Titer for phagocytophilum IgM
8/27 ER visit with intramuscular uncontrollable muscle shaking in both thighs with elevated Pulse.
My symptoms have included: Stiff neck, fatigue, rapid pulse, muscle twitches, stiff knees & elbows, electric current in head, chills with no fever, elevated BP, tingling & numbness in arms & legs, insomnia, headache, & brain fog.
Have cervical c-6 & c-7 compression that "normal" docs think may be the cause and have dismissed the Igenex findings.
Not sure what to do now. Please help!
Posted by skigal (Member # 7443) on :
You need to get to a LLMD (lyme literate medical doctor) ASAP. Go to Seeking a Doctor on this website (look under Questions and Discussions). You might have to travel out of state, not sure if there are any llmd's in SC.
You have Lyme & looks like Erlichia. Do you still have doxycycline??
Posted by geo (Member # 18333) on :
Agree with skigal - similar scenario as we have all endured. Please find an LLMD ASAP.
Posted by scsavages (Member # 27310) on :
I'm still on the Doxy. No LLMD in SC. I'm willing to travel up to the northeast if necessary since I have family in Massachusetts. There is 1 LLMD in NC (4 hours from me), but his website looks a little strange...not to be judgmental.
Posted by skigal (Member # 7443) on :
That would be your best bet, try MA/CT/NH or DC/MD/VA in Seeking a Doctor :-).
Posted by scsavages (Member # 27310) on :
I have an ID doc appointment tomorrow. I don't have much hope that he'll address this.
Posted by scsavages (Member # 27310) on :
Do IDs acknowledge & treat co-infections? Or will he just dismiss the results since it's from Igenex?
Posted by skigal (Member # 7443) on :
You are wasting your time, ID dr's will most likely dismiss your Igenex test results. You can try, but don't be surprised when they ignore your test. That's why you need to get to a LLMD.
Posted by scsavages (Member # 27310) on :
Can either of you recommend your own dr to me? You can PM me.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by scsavages: Do IDs acknowledge & treat co-infections? NO Or will he just dismiss the results since it's from Igenex? YES
"Normal docs" don't know anything, as there is a coverup. There is only a 1% chance a positive is false, and in the majority of those cases, the patient has syphilis or something like that.
Posted by janet thomas (Member # 7122) on :
I sent you a personal message, a PM.
Click on the flashing envelope.
Posted by NCAugust (Member # 27396) on :
Depending where you are in SC, there are some good docs in NC that may not be too far.
Posted by sixgoofykids (Member # 11141) on :
Most of us have to travel for treatment. I had to fly to NY from Ohio to see my Lyme doctor. See www.underourskin.com for details on the reasons we have trouble getting treatment.
You need to find an LLMD. Please post in seeking a doctor.