I guess I am being thrust into the "It might be Lymes, even though you test neg" because for no good reason I lost my "speaking voice", then it came back, now it is back and forth.
Think I am going insane. Have been told for last 15 years I have Fibro, menopause, depression, anxiety, antisocial personality.
Have tested negative all these years, so I thought that was the end of it.
Just recently someone heard about my voice and said "It might be Lyme" ***?
Posted by 2young2die (Member # 25434) on :
I lost my voice 2 years ago. A throat specialist offered to give me botox shots in my vocal chords. I declined. After 5 months my voice came back slightly. I still can't yell or sing but I can speak clearly for short times.
I am being treted for Lyme with ceftriaxone now. I've never tested positive for Lyme. My swallowing is much easier and I don't choke when I eat.
I have also been dxd with ALS. I am hoping that was a misdiagnosis since I am feeling so much better on the drug. I also have atrophy in my shoulders.
Posted by Keebler (Member # 12673) on :
- Several times over the years, my voice would leave totally for up to 2 months at a time. I can't write more now but I hope that you can find a good LLMD. All the things you describe are certainly suspect for lyme.
You do know that the tests are not very reliable. Symptoms, history, clinical presentation - that all matters. This can get better.
I see that you have posted in "Seeking a doctor" - that is a good start. Good luck. -
Posted by TF (Member # 14183) on :
I know a guy who was given the ALS diagnosis. I was able to convince him to see a lyme doctor. He tested positive for lyme, babesiosis, and bartonella.
During lyme treatment, he lost his voice. But, the lyme doc was able to get it back for him. That doesn't happen with ALS. Once function is lost, it is not recovered. So, that proved to me that the ALS diagnosis was incorrect.
Many people with lyme are incorrectly diagnosed with ALS.
Lyme also causes all of the other ailments you have been diagnosed with--every single one.
It gave me a false menopause. Good lyme treatment got me back to pre-menopause.
And, severe cases of fibro are generally lyme disease. My lyme doc had fibro for years until he tested himself for lyme, tested positive, and treated himself for lyme.
Now, he routinely treats fibro patients for lyme and gets rid of their fibro.
Not everyone tests positive for lyme even though they have it. So, you have to get lyme treatment and see how your body reacts. That will prove the diagnosis.
Posted by psano2 (Member # 11711) on :
I attribute this to Babesia. Loss of voice had become a fairly persistent symptom for me until I started getting better w/Babesia treatment.
Posted by lymednva (Member # 9098) on :
I lost my voice when I was still teaching. I had Lyme then, just didn't know it. I also have Babesia Duncani.
Posted by lymeladyinNY (Member # 10235) on :
I, too, have lost my voice. I attribute it to babesiosis, but I think bartonella may play in there as well.
I go from being unable to utter a sound to whispering, to hoarse, to "accent voice".
It can come and go and I might be free of this symptom for months at a time.
Last night I had "slow motion" voice. It sounds like when a voice on tape is slowed down. Other times I stutter.
I am not sure which disease is causing what. But it's definitely tick-borne disease.