2 weeks ago i started my new babesia protocol (before it i only was on bactrim and artemisin).. first i took some malarone to test if im allergic to atovaquone.. i wasnt so i bought a bottle of the yellow paint. im takin azi and arte with the mepron (1500mg/day) .. since tuesday im depressed and very fatigued... my brain fog is worse too... but today was such a WORSE day.. i hadn't such a bad day long time:
- i feel totaly out of power - my brain is a wreck.. i can HARDLY HARDLY think.. it wasnt that bad a long time - depressed - my muscles hurting.. my bones hurting.. - headaches - difficulties to breath normal.. - no appetite at all - stomach burning sometimes - stinky sweating (through day)
im on day 9 of mepron+azi+arte
could this be a babesia herx?? the first week was totally ok when i took the mepron or malarone.. i felt not SUPER but it was ok... when will it be over?? its HELL on earth.... i had the same in week 2-3 when i took some clindamycine and quinine.. i felt very bad.. so i made a break.. i dont want the bugs to win against me.. so i dont want to make a break with the mepron... i will win this battle but its so tough..
Do be careful not to overdo it!!!!
Posted by GNBRETT (Member # 17241) on :
Yea that's common. I took Mepron/Zith myself for 4 months and am 100% healed. That was two years ago.
Was also on PICC line for 6 months.
It will get better. In fact, most rid all their Basesia symptoms within 3 months. Some dont but MOST do.
It's a parasite that affects 1% of ur blood. It can and most often is erradicated.
Sux at first and makes u wanna crawl under a rock and die but that is common and will get better.
Make sure ur taken a quality probiotic. If not ur stomach will hurt and u wont beable to eat for chit.
GL
Posted by sixgoofykids (Member # 11141) on :
Babesia herxes are tough!! Sounds like a herx to me. Hang in there!!
Posted by Fordace (Member # 14874) on :
6 8 15 21 30
Posted by daniel (Member # 22201) on :
i forgot to say... im taking probiotics twice daily.. (very good probiotics.. cost 100 euro a months.. ) i had diarhea 2 times since i started the mepron.. but only 1-2 days.. after 1-2 days it was gone.. maybe a flu or something i dont know..
big thanks 4 your responses.. i will hang in there and fight against this nasty bug..
Posted by Maradona (Member # 24552) on :
Hang in there it is babesia i hade same thing.First week is tough then you will feel beter. Are you taking azithro 1500 ore artemisinin ore both of them 1500mg that looks to me high dose.
Posted by Lymetoo (Member # 743) on :
Fordace... are you OK?
Posted by daniel (Member # 22201) on :
im taking 750mg-1000mg azi + 2x 500mg arte + 2x 750mg mepron daily... im pulsing the azi 4 days on, 3 days off, when i have ma 3 day break of azi im taking arte 4 days (so 1 day overlap with azi and arte).. goin to my doc tomorrow and get a check up
Posted by marypart (Member # 27012) on :
quote: It will get better. In fact, most rid all their Basesia symptoms within 3 months. Some dont but MOST do.
Doesn't it depend on the kind of Babesia? My son has Babesia Duncani (also called WA1) and I keep hearing that it is the worst kind.
Has anybody gotten well from it? He's on Lariam.
Posted by Consuelachacha (Member # 26538) on :
Hang in there Daniel!! Posted by TF (Member # 14183) on :
Daniel, regarding your diarrhea, my lyme doctor gives a hand-out to all his patients regarding the various lyme meds.
Here is part of what it says about Mepron:
"It is ALWAYS taken with a fatty meal (e.g. nuts, cheese, butter, etc.) because it will not be properly absorbed unless taken with a fatty meal. (Diarrhea after Mepron is an indication that not enough fat was ingested.)"
Posted by Maradona (Member # 24552) on :
I think the dose of Azith.is high unless you are more than 150kg.
Posted by zil (Member # 12048) on :
I would just like to ask the group with this kind of a herx would you back off that dose of meds for a while or even stop the mepron? That would be what I would want to do but don't know if it would be a big step backward.
Posted by Annelet (Member # 13503) on :
Daniel said at the beginning of this thread that his muscles and bones hurt.
Is bone pain a common part of Babesia herx?
I am on Mepron and Azithromycin. I have new pain in my lower legs and top of my feet....sort of above and below my ankles. Plus all day headache, feeling as if I am overheated all the time.
I was beginning to wonder if the bone pain was Bart, but it could be the babesia herx, could it?
Posted by daniel (Member # 22201) on :
it could be babesia i think, like when u have a flu.
im pulsing the azi thats why im taking 750-1000mg...
@zil 6 weeks ago i took clinda and quinine.. i had a major herx in week 3... made a 2 day break.. after that breat.. the clinda and qunine wasnt that effective like it was on the beginning before the break.. so i wouldnt back off anymore when u herx.. do some bloodwork .. if all things are fine.. keep going on.
@tf yeah i know the thing with the fat.. i always take the mepron with 20-30 grams of fat.. usually good oil (cold pressed)
Posted by nefferdun (Member # 20157) on :
Annelet, that is the type of pain I have with bart.
Hope this works for you daniel.
Posted by mmcmann (Member # 21872) on :
I had excruciating nerve pain with Babs herx. I seriosuly never felt anything like it.
I ended up having to take vicodin..it was the only thing that dulled some of the pain It lasted four days.
My LLMD had me stop Mepron. I haven't been back on yet, but because I switched docs.
Hang in there and good luck.
Posted by jalama (Member # 14600) on :
I just started Mepron a week ago (I was on Malarone 2x per day for two months prior with not improvement). I think I may be experiencing the first thing that I recognize as a herx which means that I actually may have Babesia after all:
--I have cried every day since starting Mepron --I feel achey like I have the flu --I feel extra exhausted --I feel extra depressed --I feel like I want to crawl out of my skin --My arms feel kind of hot and
I notice that I smell my sweat but I've never noticed excessive night sweats. I've questioned whether I have Babesia because I haven't had pain or chills (until today, I feel a little cold). I haven't had the usual symptoms. No shooting pains. I have had nightmares and vivid dreams.
Does this sound like a Babesia herx?
Thank you!
Aloha,
M
Posted by jalama (Member # 14600) on :
Question: has anyone treated with Malarone and with little results either in improvements or Herxes and then switched to Mepron and noticed a Herx (for me fatigue, depression, crying.) I'm still not sure if I have Babesia but I'm thinking that maybe this response to Mepron is a good thing? Is Mepron more powerful than Malarone? Only on 1 tsp twice per day.
I also never had headaches which I understand is common with Babesia.
Thank you!!!
Aloha,
M
Posted by daniel (Member # 22201) on :
hey jamala,
i had/have the same feeling which u prescribed.. crying.. out of power.. flu.. etc.. i think thats a part of a herx... i am too an 2x 750mg mepron daily.. i think its enough because the halflife of this med is 70 hours!! so if u take 1500mg of mepron today.. u will still have 750mg in your system in 3 days.
greetz
Posted by Fordace (Member # 14874) on :
quote:Originally posted by Lymetoo: Fordace... are you OK?
wow, I have no recollection of that post, none whatsoever....thanks for asking....
Posted by beths (Member # 18864) on :
Annelet-My bones and muscles hurt with babesia herx.
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