In my desperation for help with never ending pain I filled out a checklist for lyme disease symptoms and found my symptoms matched most on the checklist. From there I was recommended to this site and after reading some the posts about muscle pain, nerve pain, and joint pain it was as if I wrote the posts myself!! I couldn't believe what I was reading. I have never spoken to anyone who has ever understood the pain was in let alone could descride it exactly.
I was diagnosed with RSD in my right leg 13 yrs ago, which is a nerve disorder that causes chronic pain. However,a few yrs after I started to developed many more symtpoms and for quite a while they were continuously contributed to the RSD. But as the symptom list kept growing, the years kept numbering on and days kept hitting 10 on the pain scale I finally realized everything that's happening to me cannot be contributed to RSD. After researching I am now wondering if I could have Lyme disease. Especially after reading the posts on muscle.joint pain.
I get these episodes of fullbody hypersensitivity. I can barely be touched anywhere, it is like my whole body is one giant bruise from the neck down.The muscle and nerve pain is in my thighs, hips, back, Both my shoulders and my neck. I had an MRI done and I actually have damage in both shoulders that would suggest I play tennis. But I have been barely able to do more than walk for the past 13 years so were did that come from. My neck is always stiff it just hurts to move. I have joint pain in hips,elbow, ankles, finger and where leg meets torso. My husband thinks that 13 yrs is too long for it to have been lyme, that if was I should be really deteriorated like maybe organ failure or something, that it couldn't be lyme. Is he right? I don't ever remember a tick bite. Should I get tested? I would love to get help from this nightmare. Thanks, Lisa
Posted by Lymetoo (Member # 743) on :
Sure sounds like US!! The sensitivity is pretty common...as is the muscle and joint pain... that was the worst for me.
I was not diagnosed for 42 yrs... never was tested for it since I was bitten WAY before Lyme was recognized as an illness from a tick bite.
YES... get tested!! Ticks are VERY tiny and you could have been bitten and not have known it.
Here are some links for your reading pleasure (or not!)
Thanks for the information. I appreciate it. If I can find a LLMD in my area I am going to go.
Posted by Consuelachacha (Member # 26538) on :
You have found a very helpful and informative site with caring people.
Please keep coming back. There is endless information here.
Welcome!!
Connie in STL
Posted by cleo (Member # 6646) on :
Many intracellular infections could be the cause that don't require a tick bite, bartonella from a flea or other insects, mycoplasma immed.org, chlamydia pneumonia cpnhlep.org and many others. It is a good idea to find llmd and get tested.
Posted by timaca (Member # 6911) on :
