Mind clarity or feeling of mental confusion on minocycline? Depersonalization worse, feel like
everythings new, not frantic though. DP with or without minocycline. Hope I recognize the old
me when and if it returns. Stopping iv zithro till I see my llmd this week, staying on orals.
Neuro told me this week that my lesions on my brain were from age, wants it repeated in 6
mos. Is there justice with this???Cried so much last week, mentally exhausted, "I" came back for
a little while and almost felt peace whatever that might be. Nice feeling...hope everyone
suffering gets better and keeps it. God bless.
[ 09-05-2010, 12:12 PM: Message edited by: lyme in Putnam ]
Posted by Keebler (Member # 12673) on :
- "mental confusion on minocycline" is most likely due to vestibular effects. Minocycline can be a wonderful helper against lyme - but it is ototoxic (as are many medicines, even aspirin). Therefore, liver support is key to being able to manage that. Some can take it; some can't. Support can make the difference, sometimes.
What is your liver support?
Are you also taking B-6 ? D-3 ? Magnesium? All are needed to help manage the inner ear (vestibular) effects from minocycline.
GINGER capsules, too, help the inner ear balance system - and, in turn, helps with mental and cognitive function.
In addition to liver support, what are you doing to keep cytokines down (as a herx raises them and they cause lots problems)?
While some do great with mino, for many, it just causes too many side-effects, even if all the protective measures are taken.
However, I hope you were able to get all those in place or - in not yet - you can do so now. The measures listed above are absolutely vital to help your inner ear tolerate mino -- and the inner ear affects so much more than we can even imagine. Really.
As for that neurologist, if you keep going back to doctors who are not lyme literate, you will keep hearing stupid things from them.
If you must see a non-LL doctor for a test or procedure, then if that has anything at all to do with lyme, just don't let their ignorance affect you.
You are allowing them to take a huge chunk out of you and you simply don't have the emotional bank account for that. Block it, just as you block strangers from your debit card, block non-LL doctors from affecting your energy account on matters having to do with lyme. You have control over some of the emotions on this.
Get the results, thank them, listen to what might not be lyme related and then get back with your LLMD for the bigger picture.
By the way, there are many reports of brain lesions diminishing and even disappearing after adequate treatment for lyme. In the meantime, be sure to discuss your recent MRI with your LLMD. Be sure a copy of the actual images (not just the written report) gets to your LLMD. -
Posted by Keebler (Member # 12673) on :
* Magnesium: The Underappreciated Mineral of Life Part II
-----------
One important note: those with kidney issues need to stay within a certain range.
For most, to find optimum does, as soon as oral magnesium causes loose bowels, back down in dose to find what works best.
All this on magnesium is partly because it has helped me so much. I take at least 1,000 mg a day as a primary anti-seizure helper. Sometimes, I need more. I did IV drip & shots for a while to get my levels up. If shots are needed, B-12 in the syringe will help take the sting out.
However, after reading all the links above, be sure to ask your LLMD for what is best for you - most of the links are really pretty low and don't account for depletion in lyme patients.
Most lyme patients are very low in magnesium as the infections seem to do that.
Some are concerned that the magnesium can "feed" infection, however, if the body is severely depleted the body must be replenished as magnesium is a necessary mineral for survival.
Taking magnesium with B-6 helps it get into our cells better. And B-6 is a calming vitamin, too.
As seizures are not uncommon with neurolyme (especially when it goes so long untreated and under-treated), this article is a good one for all lyme patients to have in their back pocket. Information here has saved my life.
Those with anxiety may also benefit from this article as anxiety can be the same NMDA overload as can trigger seizures from toxicity.
Note the suggested level of magnesium (but be cautious about GABA, it's best to work with magnesium first): ------------
. . . baths with Transdermal Magnesium Chloride or footbaths (several in a week) with the Transdermal in it. Massage in. . . . -
Posted by Keebler (Member # 12673) on :
- A gluten-free diet is also tremendously helpful regarding clarity / cognitive function.
Green Tea and other anti-oxidant measures help, too. -