This is topic American Lyme Disease Foundation says rash in 90% of cases in forum Medical Questions at LymeNet Flash.


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Posted by alextaylor14 (Member # 25124) on :
 
I was just looking at different Lyme disease websites and found this. I remember hearing on here or somewhere else that a rash only appears in 50% of cases? Reading things like this make me sometimes question my diagnoses.


http://www.aldf.com/lyme.shtml#symptoms
 
Posted by joshzz (Member # 23526) on :
 
The American Lyme Disease Foundation is a fraud.

No one in the Lyme Community takes their statements as being credible.
 
Posted by Keebler (Member # 12673) on :
 
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Duplicate Thread:

More replies at:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/98800
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Posted by Pinelady (Member # 18524) on :
 
Yes but for those just looking==they may hit the American Way first....

Then they will continue to be lost.

I wish someone would make them change this---as it is a downright lie. Among others.
 
Posted by manderson7185 (Member # 27787) on :
 
I had no rash ever, but did test positive on western blot through Quest (which I've been told is pretty rare due to their poor testing protocols).
 
Posted by erikjh1972 (Member # 20964) on :
 
had no rash either, there a fraud just like IDSA.
 
Posted by erikjh1972 (Member # 20964) on :
 
also do you see their treatment guideline, the most they say is 28 days of abx. haha, yeah right.
 
Posted by Tincup (Member # 5829) on :
 
You must be one of the lucky 10%.

[Big Grin]
 
Posted by LSG Scott (Member # 21624) on :
 
they may be right, i may have had a rash and never saw it, or it was 30 years ago and my parents had no idea what it was who knows and

who really cares they need better testing period
 
Posted by Lymetoo (Member # 743) on :
 
Liars.

I had no rash that I know of... was also bitten when I was a child... way before Lyme was discovered. So if there was a rash, no one would have thought that much about it.
 
Posted by WildCondor (Member # 434) on :
 
In case you have not learned...the American Lyme Disease Foundation is unreliable. Go to ILADS.org
 
Posted by AlanaSuzanne (Member # 25882) on :
 
90%? Where I come from it's around zero.

American Lyme Disease Foundation---maybe these folks need to attend an ilads conference or 2 or 18.
 
Posted by Paul Mall (Member # 27581) on :
 
I see numbers ranging form 30 percent to 80 percent

because I never had a rash and a lot of others I would have to believe 30 percent is a lot closer to the truth than 80

Paul
 
Posted by Andie333 (Member # 7370) on :
 
I had a nasty bulls eye rash on my left arm.
 
Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by AlanaSuzanne:


American Lyme Disease Foundation---maybe these folks need to attend an ilads conference or 2 or 18.

No way they would do that. They are an arm of the IDSA... or maybe it's a leg!! [Roll Eyes]
 
Posted by cactus (Member # 7347) on :
 
quote:
Originally posted by Lymetoo:
They are an arm of the IDSA... or maybe it's a leg!! [Roll Eyes] [/QB]

Or maybe an armpit?!
 
Posted by Lymetoo (Member # 743) on :
 
THAT'S it!! [lol]
 
Posted by KENNEDY (Member # 9628) on :
 
I'm not sure they should even put a percentage

on how many May get the rash. In my

experience I knew something was wrong with me

because of all the symptoms I had but I

accidently found the rash.

I was dragging myself around the house, the

fatigue was like nothing I ever had and I went

to take a shower and when the spray hit my back

it stung and I thought " now what", I had

terrible pain from my neck to my lower back and

everywhere in between, fever and as I said

fatigue and so when the water hit my back I got

out of the shower to look at my back and that's

when I saw the bulls eye rash. If I would have

taken a bath instead I would have never known

the rash was there. So how many times does that

happen? Percentages mean nothing.
 
Posted by Tincup (Member # 5829) on :
 
"American Lyme Disease Foundation---maybe these folks need to attend an ilads conference or 2 or 18.

No way they would do that. They are an arm of the IDSA... or maybe it's a leg!!"

[lol]

My bet is many still haven't had their lips surgically removed from Bumsteere's butt yet... which could explain the reason their thoughts are so scrambled.

[lol]
 


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