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Posted by Ariel1 (Member # 22227) on :
 
My Mom just got her Lyme test results back.

She is negative on the ELISA portion of the test but IgM positive for bands 23 and 41. She is IgG negative.

Is this Lyme? I thought the ELISA had to be indeterminate or positive in order to have Lyme?

This test was done by LabCorp.
 
Posted by Paul Mall (Member # 27581) on :
 
Band 23 is lyme specific. I would say she has lyme


the ELISA is only 40% acurate

many people with lyme come up negative on the ELISA
 
Posted by Paul Mall (Member # 27581) on :
 
upon further investigation this test result looks like a CDC positive because it has 2 of the IGM 23 and 41 positive.

either one of the 2 would be considered positive by a LLMD but this tests is even a CDC positive

Paul.

[ 09-14-2010, 02:36 AM: Message edited by: Paul Mall ]
 
Posted by KS (Member # 12549) on :
 
Those were my exact test results and although I initially doubted that I had lyme, there is no doubt antibiotics saved my life....
 
Posted by Cattail (Member # 24357) on :
 
I also had those same exact test results and antibiotics working for me. I was clinically diagnosed as having Lyme.
 
Posted by Ariel1 (Member # 22227) on :
 
Paul, KS, and Cattail... thank you for this information.

It helps to clarify things a bit.

She has an appointment with my LLMD in 2 weeks.
 
Posted by Lymetoo (Member # 743) on :
 
More information here:

Dr C's Western Blot explanation:

http://tinyurl.com/ffn3x

I would suggest printing this out and reading it several times. It sure helps explain a few things!!
 
Posted by kimmie (Member # 25547) on :
 
same here: IGM positive, IGG negative.

Also, very early on my Elisa was positive, but has been negative since...

Herxing and responding to antibioitcs.
 
Posted by Ariel1 (Member # 22227) on :
 
Lymetoo, thank you for posting that link for the Western Blot explanation.

I had forgotten that was here.

Kimmie, thank you, that's more proof that you can have a negative Elisa but but still be positive for Lyme.
 
Posted by Keebler (Member # 12673) on :
 
-
ELISA should never be used. It's a waste of money. It's used often to deny treatment, really. Same with spinal taps (Lumbar Puncture) which is NEVER a good test to evaluate lyme.

Also remember that for Western Blots, most labs don't test all the bands. But your mom's IgM is very telling, indeed, for chronic lyme.

My guess is that she has symptoms or she'd never have been tested. I hope she can find a good LLMD to take it from here.

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www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

=============================

BASIC INTRODUCTORY LINKS:
------------------------------------

www.ilads.org

ILADS - be sure to read all the articles in "Articles and Presentions" Get the DVDs of ILADS of past seminars.

=================

http://www.lymediseaseassociation.org/

Lyme Disease ASSOCIATION

- In the menu to the left of their home page, you can order DVDs of past ILADS seminars. You might also be able to borrow some from your local lyme support group.

This are invaluable to understanding how these infections work. And, none of this is taught in medical schools. None.

-================

http://cassia.org/checklist.htm

Symptom checklist for lyme.

=================

http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

=================

http://www.lymeinfo.net/lymefiles.html

LYME DISEASE MEDICAL LITERATURE SUMMARIES

=================

http://www.ilads.org/lyme_research/lyme_articles4.html

Lyme Disease: Two Standards of Care

by Lorraine Johnson, JD (revised 2005)

=========================

This explains WHY you need an ILADS doctor:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

From the May 2007 issue of Clinical Advisor

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

======================

www.jneuroinflammation.com/content/5/1/40

http://www.jneuroinflammation.com/content/5/1/40/abstract

Journal of Neuroinflammation 2008, 5:40

25 September, 2008

Persisting atypical and cystic forms of Borrelia burgdorferi and local inflammation in Lyme neuroborreliosis

======================

http://www.underourskin.com

Documentary: UNDER OUR SKIN (you can purchase for $35 at the site or see if you local lyme support group has a copy to lend.)

========================

http://tinyurl.com/5crsjv

CURE UNKNOWN: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com

============================

It is best to see a LLMD in person first for a physical exam, history and symptom assessment. Then the LLMD can guide you to the best tests.

www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

============================

TESTING

You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:

www.igenex.com

IGENEX

-----
There are a couple other good labs for certain tests: Fry; Clognen; Focus. Your LLMD will know.

================================

VERY important to read - even BEFORE testing:

Dr C's Western Blot explanation is discussed here:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

=================================

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

===============================

Find your local SUPPORT GROUP for help in finding a doctor, etc.

www.lymenet.org/SupportGroups/UnitedStates

==================================

Post in: SEEKING A DOCTOR

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=forum;f=2

===================================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT
-
 
Posted by Keebler (Member # 12673) on :
 
-
I'm sure you've seen these, but for your mom to get started on good self-care:
--------------------------

http://www.lymepa.org/html/dr__j__burrascano_september_20_0.html

Burrascano's Powerpoint SLIDE presentation 9-20-08

------------
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

------------
As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----------------------
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages

==============================

It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)- by KS, MD

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com
-
 
Posted by Ariel1 (Member # 22227) on :
 
Keebler, thank you so much for all the info.

I will get all of this to her.
 


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