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Posted by momtogirls (Member # 28078) on :
 
Did anyone have pressure headaches as their only symptom? I have that and a feeling of earfullness and disequilibrium to go along with it but no tiredness or anything. I would maybe say brain fog but its really only when I get the tension headaches and the fact that I've been so obsessed about figuring out whats wrong with me. I did test positive (igM 23 and 41 positive) though but am waiting for a 2nd confirmatory test.

If this was your primary symptom, were there co-infections? How were you treated? For how long? And did it help?
 
Posted by fflutterby (Member # 28081) on :
 
Hello Momtogirls

I have the similar symptoms since July. Full head, where I feel like popping my ears but they do not

pop ! Brain fog, tension headaches. In addition to that a crawling in my temple and painful temporal joint. Also slurred speech and lethargic.

First Lyme test came back negative. I was treated for Vertigo, given inner ear vitamins, then

second time tested positive IGM & negative IGG. Mine also is 23 & 41 reactive. I have not been tested for co-infections yet.

My primary Md. gave me Doxycycline only 100 mg twice a day. I am seeing a LLMD on Oct 4th and will see.

What is your treatment? If any?
 
Posted by fflutterby (Member # 28081) on :
 
I have been on the doxy around 8 days. I had a good day today. Was closer to being MYSELF, and it was really nice.

[Smile]
 
Posted by momtogirls (Member # 28078) on :
 
Ffluterby-
I'd be really curious how your appt goes. How long was the wait? Does your LLMD take insurance?

I have to wait until 11/4 but live in Southern CT so could definitely make a trip to NJ if you would recommend your guy.

Brain fog is only present with the disequilibrium feeling. I hate that feeling more than the headaches. I really feel like the disequilibrium feeling is more from the ear fullness than it is from lyme though.
 
Posted by hadlyme (Member # 6364) on :
 
The pressure headaches and neck stiffness/sore is my main type of herx.

I have babs.... been in and out of treatment since 2000.

zith and mepron first... now just zith.
 
Posted by rmsfnc (Member # 27539) on :
 
pressure headaches and necs stiffness/soreness are now my only symptoms and the herx I get. Tested negative for all co-infections but will explore abx for them anyway at my next appt. Once I got 400mg of doxy in me a day for a few weeks the lethargy, nausea and anxiety disappeared and now I am left with the symptoms above occasionally and after my 2nd day of pulsing flagyl. They only last a day so I can deal with it.
 


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