have had chronic lyme for at least 10 years or more. neuropsych symptoms getting worse.
Been out of treatment for a while do to cost and confusion re; fibromyalgia & cfs vs chronic lyme.
Doing alot of research just torn do to cost as to which llmd to see.
also looking for facebook friends (new to that too} Won't bore you with how long it took to get on ! Now to learn to navigate, patience, patience, patience.
Posted by Keebler (Member # 12673) on :
- In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
MAKING THE MOST OF YOUR LLMD VISIT -
Posted by Keebler (Member # 12673) on :
- Regarding FaceBook, be sure to set your privacy setting very high.
I caution even then about using your full, real name as with job searches in the future, prospective employers scout out social network sites and a history of health issues could jeopardize your chances.
So, share and get support but keep it so that you cannot be identified from any kind of search with your name.
Any information you put on any site may be circulation on the web for many years to come. Guard your privacy and think way ahead.
Be sure to check out your local lyme support groups, too. Get out as much as you can to make friends face to face. Consider groups for Tai Chi, Qi Gong, Restorative Yoga, music (that is not loud as ears are more easily damaged by lyme) . . . maybe a writing group or book club.
If you like acoustic music, check out your area Folk Music groups for song circles (you can just sit and listen) and for house concerts. You can just search the web for: your city, house concerts. Usually, in someone's house. Break times can forge lasting friendships.
Very low key, usually about $10 but often they don't turn anyone away if you call in advance and explain how much it means to you but with medical bills, might they have a donation space for you? Or, do they have a sliding fee and what is that range? -
Posted by merrygirl (Member # 12041) on :
welcome!!!
I have fibro and cfs from lyme.
Posted by Lymetoo (Member # 743) on :
Welcome! I'm glad you figured out how to post!! It's not easy to find the "post new topic!"
Here are some links which may help you on your journey!