I see DR. P in CT and so far have been pretty happy. My only objection might be that he is pretty opposed to cyst-busters. Seems to think that they are carcinogenic, but don't quote me on it.
Although he does do pulse therapy, I am concerned that the lack of cyst busting will just lead me to inevitable relapse. Thanks in advance.
Posted by Haley (Member # 22008) on :
My doctor is the same way but he agrees to use Flagyl 2 weeks at a time. He doesn't really like to use it.
I have always felt that Flagyl or Tindi is an important part of treatment and wondered if it might be the key to turning a corner for me.
There are people that are well that have told me they felt it was a very important part of getting well.
I start IV Flagyl in about a week. Scared but excited.
Posted by stork (Member # 24167) on :
Haley,
What does your Dr. say about why he doesn't like to use flagyl? Thanks.
Posted by LAXlover (Member # 25518) on :
My doctor had me start Tindamax and in the beginning I would start herxing after just 2 doses. I feel that it's helping me. Right now I only do the Tindamax on weekends.
Best,
Posted by Haley (Member # 22008) on :
He has seen many people get permanent nueropathy after taking it for prolonged periods of time. I believe that is his main reason but there may be other reasons.
Posted by stork (Member # 24167) on :
Well then what should we do? I guess the pulse therapy approach's goal is to avoid cysts in the long run?
Are there any herbs that target cysts particularly well? Maybe cat's claw? I thought I heard some research to that effect.
Posted by Lymeorsomething (Member # 16359) on :
stork, im doing the pulse therapy with your doc too, but i add my own flagyl in for 4-5 days after a cycle for good measure Posted by dmc (Member # 5102) on :
he's had me & family on cyst busters...plaquenil & tini, so don't know what you mean.
Posted by stork (Member # 24167) on :
interesting. maybe his philosophy on it has changed, or it has something to do with my age or some other factor. i'll have to ask him abt it next appt.
Posted by lymemila (Member # 23433) on :
He has me on MEPRON & biaxin...According to Dr P -MEPRON is one of the best cystbusters there is..
So you must be missing something...because I see your current treatment includes mepron.. Ask Dr P to explain this to you -he is a very knowledgeable LLMD and I have alot of faith in him..
Posted by stork (Member # 24167) on :
Believe me mila, it's not for a lack of faith. Just trying to hit this thing from every angle, you know? And every Dr. does things differently. Definitely been very happy with him as a Dr. and owe him and his staff quite a lot even at this point.
I'll have to ask about mepron and cyst busting. I wasn't aware of that. Thanks.
Posted by Lymetoo (Member # 743) on :
MEPRON as a cyst buster??
That's a new one to me.
I think whatever you use, cyst busting is essential to recovery.
Posted by Lymeorsomething (Member # 16359) on :
He's definitely receptive and open to different approaches. He just exercises care with the more dangerous meds. He's a good doc though...
Posted by lymemila (Member # 23433) on :
He got me symptom free in 5 months time back in 2002 using 1 month tetracycline followed by zithromax mepron...then a couple months doxy..
That lasted until 11/09 when I flared again due to too much stress & not taking care of myself..
When I walked back into his office after a long hiatus- he talked to me on a first name basis and remembered everything about my case..
IMHO - he is one of the best llmd's in the USA... and I've been to many over the past 21 yrs of dealing with lyme..
Posted by nefferdun (Member # 20157) on :
Grapefruit seed extract is supposed to be a cyst buster.
Just read on another thread that someone is taking amantadine with biaxin to help with cysts (did I get that right?)
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