I just started treament like 11 days ago , after 2 1/2 months of symptoms. two days ago i got up to my dose of biaxin and of planequil. the 8 days before that i was building up gradually.
I take Therelac probiotic everyday and today I just took my first Florastor after hearing all the good things about it.
yesterday was my second day taking the full dose of biaxin. i had no problems. just felt sleepy but was starting to feel better.
this morning i woke up and my stomach felt kinda crampy. i couldnt tell if it was my stomach or muscles around my stomach. and i felt it all the way around my lower back too. i feel stiff, i'm burping alot and feel awefully gassy. im normally kinda constipated in general but so far today ive had 2 small bowel movements and i feel like a combination of constipated and gassy. like im about to get diarreah but it wont come out.
im just nervous. everyone on here talks about c-diff and i just cant afford to get that bcuz im in treatment and starting to feel a bit better. i was told once you get that you can never treat your lyme again.
im just so nervous. please give me insight.
** edited to remove dosages, please see Lou's post above regarding posting dosages **
[ 11-30-2010, 12:58 PM: Message edited by: sixgoofykids ]
Posted by lymegal23 (Member # 28573) on :
oh yea and my stomach feels burny. like a burny feeling. and like i said im burping alot. feels sore around my lower back too. feels like tightness
Posted by gmb (Member # 23562) on :
Maybe try some ginger capsules, or activted charcoal to calm down your gut.
gmb
Posted by TerryK (Member # 8552) on :
If your gut flora is out of balance you can get a lot of GI symptoms when you start to balance it with probiotics. Your "normal" constipation could have been caused by unbalanced gut flora.
In another post you mentioned feeling drunk. That can be caused by yeast. Yeast (candida) symptoms can overlap with lyme symptoms. Unbalanced gut flora and yeast often go hand in hand.
Sounds like you need to talk to your doctor about the possibility that you already have a systemic yeast infection. Many people do have it and are unaware. Most doctors are unaware of systemic yeast infections unless they are at the stage of being ife threatening except ILADS trained LLMD's who will be on the look out for yeast in the lyme patient who is in treatment.
You probably should be taking a prophylactic for yeast while on abx. The problem is that if you already have it, treatment can make you feel very sick. In that case, you may want to clear some of the yeast before going on with abx treatment because abx only make the yeast worse and add to your symptoms.
Have you talked to your doctor about any of the issues that you've been asking about?
Terry I'm not a doctor
Posted by lymegal23 (Member # 28573) on :
i thought feeling drunk and a bit dizzy with head pressure is a lyme symptom too tho?
Posted by lymegal23 (Member # 28573) on :
im thinking the stomach is from the Biaxin increase. ive heard baxin can do that.
Posted by lymegal23 (Member # 28573) on :
ive been taking the probiotics for a month now
Posted by lymegal23 (Member # 28573) on :
the dizziness i felt the other day subsided. i think it was a herx
Posted by TerryK (Member # 8552) on :
lymegal wrote: i thought feeling drunk and a bit dizzy with head pressure is a lyme symptom too tho?
Dizzy and head pressure yes but never heard before that feeling drunk is a lyme symptom. Symptoms do overlap though.
lymegal wrote: ive been taking the probiotics for a month now
I didn't know that. It wouldn't be the florastor either since you woke up with the symptom and didn't take the florastor until later if I understand you correctly.
Perhaps it is all the biaxin then. I'd still get on a prophylactic for candida since many of your symptoms could be caused by a worsening candida infection. I often see candida type symptoms listed as a side effect of abx. I think it happens because most people don't realize that they have candida and taking abx makes it worse.
If you don't get a lot of die off symptoms from taking a prophylactic for candida then great, no harm. If you do, then you know you have an issue that you need to watch.
Do you have a white coating on your tongue?
Terry I'm not a doctor
Posted by Lymetoo (Member # 743) on :
Sure could be yeast. You may have had yeast before you began treatment.. I did.
Are you taking Threelac or THERAlac? In my opinion, Theralac is much more effective. You may need to take two a day to protect yourself.
And if you already have yeast, then Diflucan and/or Nystatin may be in order.
Only problem is, you can't take Diflucan or Nystatin with Florastor. They will kill the Florastor.
DIET, DIET, DIET is the key. Then, be sure to follow the 5 step plan outlined below. It was developed by my naturopath. It works.
"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."
Five Steps to Candida Elimination:
1. You must starve it into submission by eliminating its food source.
2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]
3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]
4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]
5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]
Posted by lymegal23 (Member # 28573) on :
no white coating no
Posted by lymegal23 (Member # 28573) on :
my stomach seems to have calmed down. thank god
Posted by lymegal23 (Member # 28573) on :
for a few weeks last month they had me on therelac and taking an anti fungal supplement. i never remember having die off I just got really really tired after i started the candida diet.
Posted by lymegal23 (Member # 28573) on :
although I am starting to notice benefits of the lyme treatment.
Posted by Lymetoo (Member # 743) on :
they also had me taking an anti fungal supplmenet three times a day for a few weeks
and i was on the candida diet
it was precautionary. i didnt notice any results tho. except for getting very very tired when i did the diet.
i had antibody test for candida and only came up a little itty bit elevated for an IGG antibody. nothing IGM or IGA
i also had a mouth culture done. a urine culture and a blood culture
nothing came back
Posted by lymegal23 (Member # 28573) on :
the antibody test i had done was a blood draw from the LLMD's office.
Posted by TerryK (Member # 8552) on :
glad your stomach is feeling better. If you took a strong anti-fungal and didn't notice die-off then seems like candida would not be out of control, especially since no white coating on tongue. That said, I am not a doctor, don't know for full history etc. etc...
Unless things have changed, testing for candida isn't that great but it does sound like you've done due diligence for yeast.
The fatigue could have been from the change in diet alone.
Terry I'm not a doctor
Posted by lymegal23 (Member # 28573) on :
I coulda probably had a stool test done but ive heard theyre very unreliable.
Posted by lymegal23 (Member # 28573) on :
the antifungal they had me on was undecenoic acid three capsules a day,
what would die off symptoms have been?
Posted by sixgoofykids (Member # 11141) on :
Are you taking your abx with food?
Posted by lymie tony z (Member # 5130) on :
Now would be a good time to mark the dates of an
obvious jarisch-herxeimer die of of
spirocetes....the regeneration period for
November just past and you probably killed some
of the chetes with the biaxin at a lower dose so
it does'nt seem quite like a full blown "herx".
I have had minor herx type symptoms from
metronidazole or other spirochetal antibiotics.
However, whenever I followed the Dr B ILADS protocol I never had a real tough yeast
problm....are you staying away from sweets and sugars and even some sugar substitutes....I
would get a drunkish effect and a hangover if I
drank too much fruit juices or pop with natural or artificial sweetners....
THE HOLIDAYS might have prompted you to eat what you should'nt have like even YAMS or SWEET
POTATO, pumpkin pies or those stringy butter gords(?)
Cranberry sauce, salad dressings, dips....coockies...etc....you get what I mean....
The biaxin may have hit a critically high dosage in you for your probably
gastritic stomach we all seem to get either early on or later on with these TBD's....
Try ramping down from the biaxin again and see if the gastro-symptoms resolve....
good luck with that other stuff....I only used live culture yogurt or simple
probiotics....switching them up at times....
Stay away from starches....as in goodie things to eat durring the holidays....
good luck zman
Posted by lymegal23 (Member # 28573) on :
well . not always. i get lazy. i was thinkin the same thing
i took it last nite before i went to sleep with a small bag of popcorn and some oatmeal
then i just took my daytime dose an hour ago with just a small bag of popcorn.
i need to start taking it with full meals i think
Posted by lymegal23 (Member # 28573) on :
it just makes my stomach feel sore and kinda acidy
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by lymegal23: [QB] ive been taking therelac for the past month
Posted by lymegal23 (Member # 28573) on :
^ lol what does that mean?
Posted by sixgoofykids (Member # 11141) on :
Taking your meds without food, or with too little food, can cause stomach upset.
If you're trying to avoid yeast, popcorn isn't the best idea. I did eat popcorn (I didn't have yeast issues). I air popped organic popcorn, then topped it with melted ghee, coconut oil, and sea salt. Coconut oil is a good anti-fungal. Ghee is clarified butter and has many health benefits. But it is a simple carb, so if you're fighting candida, it's a bad idea to eat popcorn.
Oatmeal is a good carb as long as you're not loading the sugar on it or using some kind of instant variety that is loaded with sugar.
Posted by sixgoofykids (Member # 11141) on :
Popcorn can also make you gassy.
Posted by lymegal23 (Member # 28573) on :
Well im just getting freaked out bcuz im reading so much about this c diff on here.
Posted by Keebler (Member # 12673) on :
- It's natural to freak out a bit but be sure not to let that sidetrack you, - turn it around to put that energy into learning what you need to do to take care of yourself. Freaking out never helps.
You might also turn that energy into developing expansive menu options - using new spices and garden herbs, etc.
A) No, Florastor is not really like acidophilus but they are both probiotics. Florastor is non-pathogenic (good) yeast, not a bacterium like acidophilus.
Saccharomyces boulardii lyo has been studied by many researchers over the past 50 years.
Florastor and the capsule are gluten free.
Q) Florastor� has Lactose and I am dairy sensitive, can I still take Florastor�?
A) Yes. There are no milk proteins found in Florastor. However, it does contain lactose monohydrate in a very small amount. Many lactose and dairy sensitive patients have reported good results while taking Florastor. As with any product, be sure to consult your health care professional first.
Be aware that it�s to be ingested � don�t break the capsule open and mix in water as you don�t want it in your lungs.
How nutrients and neurology influence a body�s defences
Excerpt:
Only Saccharomyces boulardii and, to a lesser degree, L. casei rhamnosus (GG) have been shown to protect against C. difficile. . . . ============================
Saccharomyces boulardii is a non-pathogenic yeast that is recognized to have probiotic effectiveness used alone and/or in combination with other probiotics to support digestion. It usefulness was discovered by a group of French physicians investigating intestinal issues.
DESCRIPTION/CHARACTERISTICS
Saccharomyces boulardii is considered a non-pathogenic, non-colonizing baker's yeast species, which is very closely related to brewer's yeast also known as S. cervesiae. The S. boulardii, although it is recognized as a yeast, is not related to the Candida species (Candida albicans, tropicalas, etc.), which can cause pathogenic infections in the gastrointestinal and genitourinary tracts.
S. boulardii is a unique probiotic in that it is known to survive gastric acidity, it is not adversely affected or inhibited by antibiotics and does not alter or adversely affect the normal flora in the bowel. For this reason good friendly probiotic organisms (including Lactobacillus and Bifidobacterium) can be taken at the same time as S. boulardii.
For optimal results it is recommended that the capsule be taken between meals, on an empty stomach, with un-chilled water. Each size #3 Vegetable capsule contains 3 billion CFU (colony forming units).
. . . Do not take the S. boulardii supplementation at the same time as any prescription antifungals like Nystatin, Diflucan, Sporonox, etc. Antifungals are recognized to kill S. boulardii and thus should be taken at a different time of the day (separated by 2 to 3 hours) as is recommended by the physician.
FULL DETAILS AT LINK -
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by lymegal23: ^ lol what does that mean?
You finally answered the question on your other thread. Since there's no such thing as therelac, I was wondering which one you were taking.
Also.. no need to post a new thread on the same thing or to post every sentence on a new post. Could be overloading the system.
c.diff usually takes awhile to occur.. so this is more likely a yeast issue in my opinion.
Posted by lymegal23 (Member # 28573) on :
or a reaction to the antibiotic? ive heard that Biaxin is rough on the stomach and i just ramped up to 10000
Posted by Keebler (Member # 12673) on :
- Most antibiotics are hard on the stomach. So is lyme. You'll have to develop a set of good menu options to help.
Popcorn is not a good option for a couple different reasons as mentioned above. Since abx are so hard on the stomach, popcorn will further tear it up. And many have sensitivities to corn so, for now, it's best to have that as only an occasional treat when your stomach feels good.
Are you eating LOTS of fresh vegetables with every meal? Quinoa and Wild rice can help round that out. Chicken soup, etc. Lentil soups with lots of vegetables, etc.
Leafy greens are important for each meal. You can add at the last minute to soups and a stir-fry. -
Posted by lymegal23 (Member # 28573) on :
^ Thank you Keebler for your insight
I hate chicken soup an hour ago. tonight will have grilled chicken breast and some green beans. ill look into the rice.
Posted by Shahbah (Member # 28735) on :
I get a lot of stomach issues too, I actually wonder if it's not rather from the nerves that go to the stomach more than the stomach itself... Do you have a lot neuro involvement?
Posted by nenet (Member # 13174) on :
You might want to take double the dose of probiotics now that you have ramped up your antibiotics.
I just wanted to mention that there is a subset of the population that is represented in the Lyme patient community as well that has Sulfa side-effects, allergy or intolerance. Biaxin is a Sulfa-based drug.
I just tell you so that you can be aware and keep this in mind if something pops up later that could be an allergic response (including swelling or trouble breathing - read about the drug online to get all the info).
There are sites you can google for that collect patients' experiences with Sulfa drug reactions.
Most likely you are just having the relatively common side-effect of stomach pain and GI cramping that can happen with most if not all antibiotics.
(I'm not a doctor - the best thing to do if you are worried about symptoms being drug-related and being too much to handle is contact your LLMD!)
A homemade herbal tea with marshmallow root, chamomile, and slippery elm, taken morning and night away from your antibiotics and supplements can really help. I can share my tea recipe if you would like.
![[confused]](graemlins/confused.gif)
![[Smile]](smile.gif)