I think I have it. I have been getting nausea and extreme doom feeling anxiety for a while now. Lately my nausea and anxiety have been surging, especially at night. I am currently taking just doxycycline. Any other questions just ask.
Posted by Clint31 (Member # 16420) on :
only thing about babesia is i am having actual upset stomach, not just nausea. so that is the one thing that isn't consistent w/ it.
Posted by seekhelp (Member # 15067) on :
Yes, I believe it is consistent. I have this symptom. You need a NEW, better doctor it seems. If she doesn't treat this coinfection, she's not a real LLMD or Lyme-literate.
Posted by Abxnomore (Member # 18936) on :
He is not a LLMD if he does not treat babesia and co-infections.
If he is not testing you for co-infections, looking for symptoms of co-infections and treating clinically based on symptoms, then you probably should start looking for a new doctor who belongs to ILADS and follows Dr. B's guidelines.
Posted by Keebler (Member # 12673) on :
- Ditto to Abxnomore:
"He is not a LLMD if he does not treat babesia and co-infections."
Still, be careful trying to diagnose yourself. Lyme can create all kinds of symptoms. Still, a real LLMD should assess and address all coinfections.
Anxiety surges at night are classic for low magnesium and adrenal exhaustion. -
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Abxnomore: He is not a LLMD if he does not treat babesia and co-infections.
If he is not testing you for co-infections, looking for symptoms of co-infections and treating clinically based on symptoms, then you probably should start looking for a new doctor who belongs to ILADS and follows Dr. B's guidelines.
correct
Posted by Clint31 (Member # 16420) on :
i also have adrenal problems.... saw an endocrinologist.. she just was clueless IMO.
He IS an LLMD. People on this very board see him and refer to him as so. From PA if that rings a bell.
Just doesnt treat co-infections. I take a xanax and the surges stop or improve. but the upset stomach has been so bad lately and the nausea even to the point where i've had to throw up several times.
** edited to remove city **
[ 12-27-2010, 03:48 PM: Message edited by: sixgoofykids ]
Posted by seekhelp (Member # 15067) on :
I thought hard about seeing that LLMD (yours), but for the very issue you're stating I didn't. I heard he doesn't believe much in coinfections and treating them. This isn't an illness where you can 'half treat.' Someone told me he believes Babesia is a 1 in 200 persons infected illness.
Posted by seekhelp (Member # 15067) on :
All that said, I feel terrible most of the time so I'm no role model to follow. Posted by Clint31 (Member # 16420) on :
hi Seek,
Have heard great things about him though other than the thing about co-infections bit.
I'm guessing since you said you thought hard about seeing him, that you heard the same?
Posted by Abxnomore (Member # 18936) on :
He could be a great guy, have compassion, run a good office, have a good rapport with his patients but he CANNOT be a good LLMD is he does not address co-infections. He cannot be called an LLMD.
If you have babesia, for example, which is treated with malaria medications and he never prescribes them to you how will you ever get better? And would that make him a great LLMD? Co-infections play a huge part in lyme treatment. They are not to be ignored or underestimated in how damaging they can be and how not treating them can keep us indefinitely ill.
Posted by Clint31 (Member # 16420) on :
I know a lot of lymies who think co-infections are also over-diagnosed. I'm not necessarily one of them. But I'm just saying.
Posted by Abxnomore (Member # 18936) on :
No way are they over diagnosed. They are real and occur frequently in the population of people who contract lyme disease and will keep you from getting well if not addressed.
Posted by Tammy N. (Member # 26835) on :
I agree with the gang that a good LLMD will not leave co-infections out of the picture. I think they are often a central part of the picture. I would get a second opinion from a highly regarded LLMD.
Posted by Abxnomore (Member # 18936) on :
He should be addressing adrenal issues, as well.
Posted by Clint31 (Member # 16420) on :
Based on my location--what should I do about an LLMD? There aren't any here. Or anywhere close that I could see with any regularity.
Posted by Tammy N. (Member # 26835) on :
Enter a post under "Seeking a Doctor". Hopefully something will pop up for you.
Also, check out the Doctor Referral section at lymediseaseassociation.org.
Good luck!
Posted by Keebler (Member # 12673) on :
- In addition to all possible coinfections, and adrenal issues - it would be good to have a LLMD who recognizes heavy metals, parasites and liver support - as well as dealing with neuro toxicity issues of porphyria (including the categories of KPU/HPU).
Now, while it is vital to have a LLMD who addresses coinfections, you may not find one who can address ALL matters. A LL ND may serve well for adjunct care. To contrast and compare methods, see the articles section, near the end of this thread: -------------------
Topic: How to find an ILADS-educated lyme literate (LL) professionals in these areas:
Naturopathic doctor (ND); Acupuncturist (L. Ac.), a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, . . .
. . . Holistic MDs, and also Doctors of Osteopath (DO) and Doctors of Chiropractic (DC), etc.
�� Includes many professional links, articles and books on complementary / integrative methods - & RIFE links -- all by LL authors. -
Posted by seekhelp (Member # 15067) on :
Unfortunately, by the time you find a great LLMD AND LLND, you're broke. No one can afford both most times. They charge a fortune. Then you say look for all Lyme-literate specialists too. It's a great theory, but SO SO expensive. I wish we had the funds.
Posted by lymednva (Member # 9098) on :
Clint there are some new LLMD's in OH, so do post in Seeking.
Posted by Paul Mall (Member # 27581) on :
All I keep hearing is you will never get better until you treat babesia
I met a lyme friend who was treating for 5 years with a doc who said babesia would go away on it's own
she has not gotten better and has terrible night sweats
she has now left this doc to find one who treats babesia so she has a chance at getting better
Paul
this patient had no clue that babesia was keeping her from getting well...
Posted by Paul Mall (Member # 27581) on :
PM me your email I will give you what I have for Ohio.
![[Frown]](frown.gif)
If she doesn't treat this coinfection, she's not a real LLMD or Lyme-literate.
![[Smile]](smile.gif)